Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Skin Problems/gluten Intolerant


jasmari

Recommended Posts

jasmari Newbie

Hi all. I haven't been on here for a while but had a question about my skin. I was diagnosed celiac based on a biopsy. Then after a couple months the doctor sent the same biopsy off to another pathologist who said it wasn't positive. Needless to say, I'm much better going gluten free and with the unclear diagnosis, have remained gluten free. No more vomiting, no more nausea, much less stomach pains, etc.

Anyways, I had dinner at my son's house the other night. My DIL made a lovely dinner but I asked her to cook my pork without breadcrumbs. I wasn't aware she had cooked it in the same pan as the breaded meat until it was on my plate. Not wanting to be the nasty mother-in-law, I kept quiet and ate it. It was really delicious!

I was nauseaus that night and

the very next day I had these blistery things on my face. I haven't had these since giving up gluten. They're almost always around my mouth and last for a few days. Definitely not cold sores. I've suffered from them and know exactly how they feel and their appearance. After going back to my regular gluten free diet, the blisters went away....took about a week.

Have any of you had this problem?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



fedora Enthusiast

lots of people get skin reactions. I get litte water filled blisters on my hands

  • 1 month later...
isabelle Rookie
Hi all. I haven't been on here for a while but had a question about my skin. I was diagnosed celiac based on a biopsy. Then after a couple months the doctor sent the same biopsy off to another pathologist who said it wasn't positive. Needless to say, I'm much better going gluten free and with the unclear diagnosis, have remained gluten free. No more vomiting, no more nausea, much less stomach pains, etc.

Anyways, I had dinner at my son's house the other night. My DIL made a lovely dinner but I asked her to cook my pork without breadcrumbs. I wasn't aware she had cooked it in the same pan as the breaded meat until it was on my plate. Not wanting to be the nasty mother-in-law, I kept quiet and ate it. It was really delicious!

I was nauseaus that night and

the very next day I had these blistery things on my face. I haven't had these since giving up gluten. They're almost always around my mouth and last for a few days. Definitely not cold sores. I've suffered from them and know exactly how they feel and their appearance. After going back to my regular gluten free diet, the blisters went away....took about a week.

Have any of you had this problem?

Hi there,

you are not alone ... this happen to me but under my eyes ... i look like a racoon ... itchy, dry and

red ...it's kind of frustrating it's so hard not to have a little contamination ...

isabelle

  • 2 weeks later...
Kurzemiete Explorer

This is comforting for me to read that you also have skin reaction to gluten. As for myself, my blood test was negative to celiac. However, when I go off (most) gluten and then reintroduce it to my diet, I also get reaction of the skin. Reddish blotches appear on my face , they are dry and a little itchy, not blistery or wet in any way.

This is a bit off topic but I will mention it. For many years (maybe 10+) occassionally after I am done with teeth brushing and propell that first big gob of spit into the sink, I would see just a hint of blood in it. I know it is not from my gums. When I told my GP about this she brushed it off and gave me some answer which did nothing to satisfy me. Well this last summer for almost a month I did not eat gluten (very small amounts) and no blood at all was in my spit. For the last while I have been pretty much pigging out on it (the usual diet prior to my being aware, the NA diet :S) and in my spit voila: The was a bit more than a bit of blood. I am assuming that it must be gluten related , due to the damage to my insides. I am just wondering if it is damage from my stomach or intestines?

Liya.

caek-is-a-lie Explorer
lots of people get skin reactions. I get litte water filled blisters on my hands

Oh my gosh me too. And they itch. They happen on the tops of my fingers, mostly on my pinky between the 2nd and 3rd knuckle, or on the top of my thumb in sort of the same place. Sometimes it swells up like a red welt with water blisters on the top. Like a raised coin on my finger. And I scratch and scratch ... I can't help it! Then I have dry peeling skin there for a week or two. I have to put Carmex on it to soothe it...lotion just doesn't help at all. The Naturopath was stumped when I showed her but lately I've been wondering...maybe it's gluten. The last one happened kind of close to the last gluten attack. I'll keep closer track of it related to my accidental glutening to see if it happens again. Gawd I hate accidental glutening. Why can't this be easier??

I really don't know if I'm an "official" Celiac because I don't want to eat gluten for 3 months to find out, but the more I read, the more I think there's really no doubt. I can't even eat a single crumb.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    2. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.