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Hair Loss

puggirl

By puggirl
in Coping with Celiac Disease

Recommended Posts

puggirl Apprentice
puggirl
Posted

Well, ever since I started being Gluten Free witch was about 3 months ago, I've noticed that I've been losing more hair when I brush it, wash it, blow dry it. I've always lost hair but it seems to be increasing. Just curious if anyone else had this issue. I talked to the Doctor a couple weeks ago and he said I could be missing vitamins, But I've been eating better and healthier then before I was gluten-free, Back in the beging a few months back I had blood drawn and he said My Thiroid was on the Higher side of OK. so I dont know. Also when I went to the Doc I had lost 13#'s YEAH! unbelievable! in 3 months!

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YoloGx Rookie
YoloGx
Posted

Increased hair loss at first happens a lot. However this will pass as you heal. It helps to take extra minerals, esp. calcium and magnesium and zinc as well as liquid trace minerals. I take E-zorb since I still don't absorb regular calcium very well even though I have been on diet for a while.

I used to think hair loss was normal, but now my hair is in better shape than ever. It even has a natural wave and even a curl if I go to the coast! Whereas in the past it was completely straight and wouldn't take a curl well at all even if I put it in curlers.

Taking the extra minerals will also help out your nails and teeth as well as bones.

Meanwhile I suggest you take marshmallow root caps and dandelion root capsules with meals to help your intestines speed up their healing and liver deal with the excess toxins from undigested proteins going into your blood stream due to your damaged villi from the past chronic celiac.

Bea

ShayFL Enthusiast
ShayFL
Posted

Did they test your antibodies to thyroid?

*lee-lee* Enthusiast
*lee-lee*
Posted

my hair seems to be falling out at alarming rates too, since i've gone gluten-free (about 4 months ago). interestingly enough, it's also grown very fast since then too so i'm not sure if it falls out easier because it's longer?

i'm planning on chopping quite a bit off but i just haven't gotten around to it yet. i'm curious to see what my hair will be like minus 8 or 10 inches...it's always been straight as a pin and quite thin.

puggirl Apprentice
puggirl
Posted
  • Author

hey thanks for your replies. I'll have to go look into some minerals that you mentioned. Probly wouldn't hurt. Also have any of you heard of taking BEE Pollon? just eatting it. Supposedly its supposed to help you immune system. Im just scared to eat it cuz of my stomach, I hate trying new things.

Shay I have no Idea if they tested the antibodies.... whats the difference of testing just the Thyroid and the Antibodies?

ShayFL Enthusiast
ShayFL
Posted

These are the tests you should have:

TSH

Free T4

Free T3

And there are 2 antibodies

The antibodies tell you if your thyroid is being attacked (autoimmune). The other tests show function. TSH is called thyroid stimulating hormone. It is the hormone that tells the thyroid to work harder or slow down (depending on the amount of T3 in the blood). T4 is inactive thyroid hormone and T3 is the active form. If your doctor only tested TSH that is misleading and it is likely he is not using the newest TSH range .3-3. Do you have copies of your labs?

ravenwoodglass Mentor
ravenwoodglass
Posted
hey thanks for your replies. I'll have to go look into some minerals that you mentioned. Probly wouldn't hurt. Also have any of you heard of taking BEE Pollon? just eatting it. Supposedly its supposed to help you immune system. Im just scared to eat it cuz of my stomach, I hate trying new things.

I don't take bee pollen but do use Royal Jelly. I find it helps me a lot especially in the energy dept. I have tried the caps but mostly I use the jarred variety and mix it on the little spoon with some wildflower honey. The only issue with the bee products are if you are sensitive to bee products in general.

There are also vitamins formulated to help the hair. I have used one by Country Life called just Hair Vitamins. It has a lot of good stuff including biotin.

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YoloGx Rookie
YoloGx
Posted
hey thanks for your replies. I'll have to go look into some minerals that you mentioned. Probly wouldn't hurt. Also have any of you heard of taking BEE Pollon? just eatting it. Supposedly its supposed to help you immune system. Im just scared to eat it cuz of my stomach, I hate trying new things.

Shay I have no Idea if they tested the antibodies.... whats the difference of testing just the Thyroid and the Antibodies?

Just make sure it doesn't stimulate your immune system. If you have celiac, its already overstimulated. A friend of mine who also has celiac and borderline thyroid problems has found 1/2 hour of vigorous exercise each day really helps.

There is also a Wilson's Thyroid Syndrome website you should also check out. Seems you can also take some herbal supplements (make sure they are gluten free!) that help too. My friend does all this but he still has to take 1/2 dose of thyroxin however, so it is a good idea to get your thyroid checked and stay on top of it. Sometimes too there is this whole deal about converting T-4 to T-3 that doesn't work, so that should be kept on top of as well. The WTS website will clue you in on that too.

Bea

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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