Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Brain Development And Celiac Disease


gayle and madison

Recommended Posts

gayle and madison Newbie

My daughter is 5 years old and was diagonosed with celiac when she was 21 months old. As I look back I think she had symptoms when she was one year old. She is having trouble in pre-school with learning her alphabet. I was wondering if anyone knows what part of the brain is developing in the second year of life. If this has any link to her having trouble with her alphabet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

I'm sure it makes you worry... wondering about the long-term impact on your daughter. My eight-month-old son had meningitis this summer (thankfully the viral kind, which is rarely fatal) and I definitely worry about whether there will be any long-term effects!

I also have a daughter who's three years old. Her preschool has the three, four, and five-year-olds in the same classroom... at that age there is SO much variation in kids' abilities and interests. Are there are other things your daughter is interested in? Books, cartoons, dress-up, imaginative play, physical play...? If she's showing normal development (or even above-average development) in some other areas, I guess I wouldn't worry too much about letters. Maybe she just isn't quite ready yet. Have her teachers expressed any concerns to you?

taweavmo3 Enthusiast

I only have my experience to go by......my daughter was diagnosed at 3, and before that time she starting showing symptoms a little after 12 months.

By the time she entered pre-k, she was behind the other kids. Her teachers recommended we wait a year to send her to kindergarten b/c she had very little alphabet or number recognition, and there were other issues. We decided to have her evaluated by a developmental pediatrician (which wasn't cheap, but well worth it). At that evaluation, she also had a thorough speech eval too. It turned out she has a receptive/expressive delay, and after a summer of one-on-one speech therapy, everything "clicked" and she was finally able to retain numbers and letters. She was also anemic, which can also cause learning difficulties, so we corrected that as well.

She ended up doing fine in kindergarten, and she is in first grade now, reading above grade level. She does struggle with math, but I am told that is related to the expressive/receptive delay and will likely always be a problem area for her. If you had told me back when she was in pre-k that she would be doing so good at this point, I would not have believed it!

If possible, you might consider getting a developmental evaluation just to cover all your bases. A speech therapist once told me that between the ages of 0-3, kids learn to speak. After age 3, they speak to learn, so any sort of underlying speech issues get in the way of learning basic fundamental skills. We knew my dd had articulation problems, but the receptive/expressive delay was not obvious to us in any way.

Hope that helps some.....who knows, everything could just click one day, and you won't have to worry at all!

chrissy2 Newbie
My daughter is 5 years old and was diagonosed with celiac when she was 21 months old. As I look back I think she had symptoms when she was one year old. She is having trouble in pre-school with learning her alphabet. I was wondering if anyone knows what part of the brain is developing in the second year of life. If this has any link to her having trouble with her alphabet.
Kibbie Contributor
My daughter is 5 years old and was diagonosed with celiac when she was 21 months old. As I look back I think she had symptoms when she was one year old. She is having trouble in pre-school with learning her alphabet. I was wondering if anyone knows what part of the brain is developing in the second year of life. If this has any link to her having trouble with her alphabet.

I'm not sure what part develops when but most kids make gains in one area at a time in learning (I'm an English teacher ... or was before my daughter was born). It's possible that she is making her educational gains in math skills, language skills, drawing etc and the rest is lacking right now.... if that's the case it will all eventually level out.

If you are still having issues, hearing, vision, and possibly a learning disability should be looked into all of wich can be easy fixes :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,564
    • Most Online (within 30 mins)
      7,748

    Anne65
    Newest Member
    Anne65
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.