My Endo Ordered The Celiac Disease Panel Test, ?'s For Anyone

[dizzygrinch]

Hello all, I just noticed, that my endrocinologist, ordered a celiac disease panel test, I am being seen by her because of a severe vitamin d deficiency. Weird thing, I was just telling her all my problems, and after I mentioned to her the findings from a GI doc, right when I said "flattened mucosa" she said, "that is Celiacs disease, that would explain why your deficient in vitamin d", so, I told her my GI doc never even mentioned the possibility of Celiacs, she was shocked, and just shook her head. Well, I have been gluten free for about 5 weeks now, and before that, I have cut back a lot. Should I even bother with the blood test? Im also being tested for other things to, the pituitary glands and things, and I didnt even notice until I read the order for the lab that she is checking for celiacs. I wish I would have known that my Endo would check, then maybe I wouldnt have stopped eating gluten. Should I just start cramming gluten down my throat, suffer, and have the blood work done next week? She needs these tests soon, so I was just wondering... any thoughts?

[leadmeastray88]

Unfortunately, you're in a bit of a pickle.

5 weeks gluten free may have been enough to change the antibodies in your blood. Even if you cram gluten down your throat for a week, there's a chance your bloodwork will be a false negative.

5 weeks may have also been enough to heal your 'flattened mucosa', although everyone heals differently.

I really don't know what to suggest, although if a clinical diagnosis is important to you then it may not be too late. If you do want to pursue testing you should be eating the equivalent of 4-6 slices of bread per day for 6 weeks, (I think is the recommended intake) and then do the bloodwork. A week isn't long enough.

Hopefully that helps, someone else will probably chime in soon too.

Best wishes!

[ThatlldoGyp]

Have you had an edoscopy with biopsies taken that showed flattened villi?

That really may be all that you need for a diagnosis. Check the path report from your endoscopy and see what it says (if you had one). That may be all that they need to secure a diagnosis.

I don't know what to tell you about deliberately glutening yourself. Wild horses could not make me do it for anything, personally! I hope you have had the endo and path report and you don't need to walk down that path at all!

Blessings and please keep us updated!

[neesee]

I would definately take the blood test if I were you. If I recall, you said the somewhat flattened mucosa was in the terminal ileum. That is the last little bit of the small bowel. A finding like that might be more consistant with crohn's or colitis. You really need to get to the bottom of what is making you feel sick.

Good luck

neesee

[dizzygrinch]

Hello all! you do remember correct, it was flattened mucosa in the TI. But, in the same report, he ruled out Chrons and colitis. Said I was normal. So, I just thought it was interesting that the endo decided to check for celiacs. Since Im getting the blood work anyhow, because she is checking other things as well, Im just going to see what it says. Interesting, cause I have been gluten free for so long, I will just tell her that when I see her in three weeks. Now Im really curious on what the results will be, although, sounds like should be normal cause I have been gluten free for so long, but, I will keep you all posted! thanks