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One Side Only?

Jenny (AZ via TX)

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Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted

Can DH just be on one side or is it always symmetrical?

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Smiling-Eyes Newbie
Smiling-Eyes
Posted
Can DH just be on one side or is it always symmetrical?

I have asymptomatic DH, when my body first became intolerant, 2 years ago, I had DH covering a large percentage +50%, of my body, heavily on the right side, also on my genitals. Diagnosed with scabies (skin mites) and covinced to cover myself, entire body with permethrin, a 5% solution of insecticide. Massive bad reaction, oh the joys of oozing inflamation. No need to cover the celiac/stomach impact.

I am now 99% gluten free, like all of us, still learning and will always need to. The last time I got glutened, about 10 days ago, 95% of the blisters I got were on my right hand index and middle fingers on the last joint. The skin thickend and the joint became swollen and less mobile. My left hand, same location got very minor blistering, healed in days. Now, on my right fingers, the joint inflamation is almost gone, the skin is dry and thick but no longer itches. I try to increase my vitamin e and omega fatty acid supplements, flax oil and hemp powder to assist healing, and apply a good qualtiy vitamin e oil topical seems to also help heal faster.

I have read that iodine and candidia overgrowth, yeast infection, can trigger your DH.

Always research and read! You might miss something important for years and then by chance, an article, the right phrase or link will educate you in a way that helps you get that much healthier. Good Luck

ang1e0251 Contributor
ang1e0251
Posted

I had two different DH rashes, one in the groin area that was on both sides and another on my right forearm and hand. I won't say I never had lesions on the left side but there was very little. I also can get those on my scalp but under my hair I really can't tell a pattern, they just itch. These rashes also looked different from each other.

Julz Newbie
Julz
Posted

So far my DH has been symmetrical. Mostly on my thighs, hips, and arms. But sometimes it will be worse on one side than the other. An ice bag definitely helps with the itching! Hope this helps. (I'm very new to this stuff too)

Julz

Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted
  • Author

I used to get this rash before going gluten-free. I've been gluten-free for about 6 months and then I got this rash again, first time since going gluten-free. It's not as bad as it used to be and it is only on one side.

ang1e0251 Contributor
ang1e0251
Posted

I had a little bit on my scalp this week too. Found my DH was sharing my PB & J, didn't know that & couldn't figure out why I was sick and itchy! He felt really bad. I had a problem this spring and that led to a return of the rash in the groin. THat one I finally traced to the syrups I used in my one coffee. We're kind of like detectives, aren't we?

I lived in Flagstaff for 15 years and really miss it, I envy you in AZ.

Jenny (AZ via TX) Enthusiast
Jenny (AZ via TX)
Posted
  • Author

If this is DH it must be from cc. I help my in-laws quite a bit and there is gluten everywhere. I wash my hands a lot, but it may have been from kissing them.

AZ is nice right now, but I would trade it in the summer! I haven't been to Flag in a long time, but hear that it has really grown.

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    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

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      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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