Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pain

chuckybaby

Recommended Posts

chuckybaby Rookie
chuckybaby
Posted

I have had the Celiac panel done about two months ago and it was negative. Dr thinks I still have a good chance of being diagnosed with Celiac's. I am scheduled for capsule endoscopy and upper endoscopy early in Dec. I have undiagnosed anemia. My RBC was a 6. Now on iron and had transfusion.

I have a new symptom I have noticed lately... The joints on my left hand (pinky finger, joint closest two fingernail) is swollen and sore. Index finger on right hand is the same. Pain/ache in right hip, but today is in both hips. Anyone else have this happen?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


*lee-lee* Enthusiast
*lee-lee*
Posted

i had hip pain for nearly a year before being diagnosed with Celiac. i underwent numerous blood tests, physical therapy and cortisone injections before finally giving up and resigning myself to a life of pain. Since going gluten-free 4 1/2 months ago, the pain is nearly gone with virtually no more flair-ups.

mftnchn Explorer
mftnchn
Posted

I think it is totally worth it to see if the gluten-free diet makes a difference for you. Whether it is the celiac disease itself or deficiencies due to malabsorption, or additional autoimmune disease like arthritis.

If it doesn't clear there may be another issue. For me, the joint pain is caused by lyme disease/infection and associated conditions.

mushroom Proficient
mushroom
Posted

I went gluten free after my rheumatoid arthritis diagnosis, followed by research four years later on that disease and other auto-immune diseases. Unfortunately the arthritis has not resolved being gluten free but it is better most of the time.

mhb Apprentice
mhb
Posted
I went gluten free after my rheumatoid arthritis diagnosis, followed by research four years later on that disease and other auto-immune diseases. Unfortunately the arthritis has not resolved being gluten free but it is better most of the time.

I have read that going gluten free doesn't necessarily "fix" autoimmune disorders once you have them, but prevents them or stops worsening if they are gluten-related.

I have always wondered whether the joint pain celiacs get because of gluten is arthritis or something else?

*lee-lee* Enthusiast
*lee-lee*
Posted

my doctors were all but convinced i had rheumatoid arthritis but the tests always came back negative. there was even some talk of fibromyalgia and going on Cymbalta to see if i got better but i opted not to. i often wonder if i would have ended up with RA had i not been diagnosed with Celiac. (well, i guess i still could but i like to think i caught it in time.)

QueenOfPain Rookie
QueenOfPain
Posted

Hi there. I'm not officially diagnosed with Celiac yet, but I have had a migratory joint problem that has plagued me for around 10 years or so. And it's gotten worse over the past couple of years, so I finally decided to go see a doctor about it. Because I was scared it could maybe be RA. But, all of the tests they gave me came back negative for RA, Lupus, Lymes, Gout, etc... except the Celiac blood test came back positive. I had biopsies done and they were negative for Celiac, though. So, I'm stumped. I've decided to give the gluten-free diet a try for now to see if that helps.

My joint problem can occur in any of my joints. It's usually in my legs or feet, but it can occasionally get in my fingers, wrists, elbows or shoulders. The joint becomes very stiff and sore, swollen, pink, and warm to the touch. It usually travels to several different joints before it disappears, and now it occurs in more than one joint at a time. I usually have some form of joint pain 14 to 19 days or so out of every month.

I hope you get to feeling better soon! Good luck with your tests next month!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,360
    • Most Online (within 30 mins)
      7,748
    anabjermeland
    Newest Member
    anabjermeland
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Gluten Allergy

      By Scott Adams · Posted

      Welcome to the forum--and you are absolutely not alone in your experience with a non-celiac gluten sensitivity that presents with severe constipation and profound inflammatory consequences. While the more commonly discussed symptoms are diarrhea-centric, your reaction is a valid and documented, though less common, manifestation. It is completely understandable to feel isolated, especially after moving to an area with less familiarity with this specific presentation, but your vigilance in protecting your remaining colon is not just justified, it is critically important. Your history of autoimmune disease (Hashimoto's) further supports the likelihood of your body mounting a significant inflammatory response to gluten. Many in this community share similar frustrations with a skeptical medical community and the social challenges of maintaining a strict diet, so please know you have found a place where your condition is believed and understood. Staying gluten-free to prevent further damage is the safest path for your health, and we are here to support you in that crusade.
    • Rogol72
      Draft gluten-free ciders… can they be trusted ?

      By Rogol72 · Posted

      I've never had an issue this side of the pond. If I'm out I drink Bulmers Cider. Sometimes draft and sometimes bottled. The draft cider lines are for Cider only. 
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      Hi everyone do you know whether when you get a draft cider if there is a chance that it runs through the same tubing as a beer did sometime prior?  the reason I’m asking is that I’m trying to eliminate a source of hidden gluten that I think hits me about once a month. And I have a suspicion it might be cider from the draft at certain bars. When I am out, if I decide to drink, I usually order a cider brand that I know is gluten free.    what I’ve noticed is that a couple times when I got a draft cider, I got symptoms of being  glutened that night and the day after. This doesn’t seem to happen with all times I drink cider. I had a draft at a very clean brewery and I didn’t react from that, which is what made me start to wonder. Does anyone know if this is a possible source of getting glutened? I am like 99% sure that this is the cause and I think I’ll switch to bottle/can only from here on out, but would be interested if others experienced the same thing (or work in a bar and know how this works). Thanks!
    • Mykidzz3
      High Cost of Gluten-Free Foods

      By Mykidzz3 · Posted

      Hello everyone, I am at struggling finding gluten-free food for my 17-year-old daughter who has celiac disease. she finds things that she thinks she would like she takes a bite and ends up in the trash gluten-free food happens to be very expensive. I collect Foodstamps and I contacted the county to see if I could get extra Foodstamps due to her, so the ex disease, considering the food cost more. I am running out of options. Most stores don’t carry gluten-free stuff and we spend majority of our time looking at the ingredients and get frustrated because everybody’s looking at us, wondering what we’re doing and what we’re looking for so I’m struggling as a mom to find the best options for my daughter that she would like, and I didn’t know that he could also affect her mental health she does get a check up every six months, but our biggest thing is getting her on a good vitamin one that the doctor can call in because we have insurance and just trying to find food that she could eat and not waste we waste almost $200 a month and just gluten-free food that she just throws in the trash or that to sit on the shelf and go to wasteso if you have any ideas, please feel free to contact me with any ideas 
    • MMeade
      Gluten Allergy

      By MMeade · Posted

      Hello, I am new to your forum. I was diagnosed with multiple food allergies including gluten, 20 years ago. I do not have celiac disease. I have been gluten free for over 15 years. My symptoms seem to be very different than others and my doctors have always been skeptical about my condition. When I would accidentally eat gluten, the inflammation would cause my GI system to stop- i.e severe constipation. This eventuality led to diverticulitis which, due to numerous factors, led to abscesses and removal of my sigmoid colon 3 years ago.  Biopsies were done and confirmed that I do not have celiac disease. I do have other autoimmune diseases- Hashimotos hypothyroiditis.  I remain gluten free for fear of damaging the remaining colon I have left. My question to this group is- am I alone in this odd scenario? Does anyone else have this condition? When I lived in Seattle, many naturopaths understood my symptoms and condition but after moving to Kentucky, I can find no one that seems to understand or even believe my condition exists. I sometimes feel like maybe I could eat gluten again because it is so hard to avoid it in this part of the country - choices are much more limited- but again, I am fearful of injuring my remaining, colon. Any insight from others who may have experienced similar symptoms is greatly appreciated since I am feeling vey alone in my crusade to stay healthy.    As an aside, while the sigmoid colon removal left me diverticulitis/diverticulosis free, it also left me with less muscle control, so I now take magnesium supplements (oxygenated magnesium oxides) to  maintain regular bowel function and avoid constipation. Thank you- I appreciate the kindness and support this group brings to people. 
×
×
  • Create New...