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Joint Pain

chuckybaby

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chuckybaby Rookie
chuckybaby
Posted

I have had the Celiac panel done about two months ago and it was negative. Dr thinks I still have a good chance of being diagnosed with Celiac's. I am scheduled for capsule endoscopy and upper endoscopy early in Dec. I have undiagnosed anemia. My RBC was a 6. Now on iron and had transfusion.

I have a new symptom I have noticed lately... The joints on my left hand (pinky finger, joint closest two fingernail) is swollen and sore. Index finger on right hand is the same. Pain/ache in right hip, but today is in both hips. Anyone else have this happen?

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*lee-lee* Enthusiast
*lee-lee*
Posted

i had hip pain for nearly a year before being diagnosed with Celiac. i underwent numerous blood tests, physical therapy and cortisone injections before finally giving up and resigning myself to a life of pain. Since going gluten-free 4 1/2 months ago, the pain is nearly gone with virtually no more flair-ups.

mftnchn Explorer
mftnchn
Posted

I think it is totally worth it to see if the gluten-free diet makes a difference for you. Whether it is the celiac disease itself or deficiencies due to malabsorption, or additional autoimmune disease like arthritis.

If it doesn't clear there may be another issue. For me, the joint pain is caused by lyme disease/infection and associated conditions.

mushroom Proficient
mushroom
Posted

I went gluten free after my rheumatoid arthritis diagnosis, followed by research four years later on that disease and other auto-immune diseases. Unfortunately the arthritis has not resolved being gluten free but it is better most of the time.

mhb Apprentice
mhb
Posted
I went gluten free after my rheumatoid arthritis diagnosis, followed by research four years later on that disease and other auto-immune diseases. Unfortunately the arthritis has not resolved being gluten free but it is better most of the time.

I have read that going gluten free doesn't necessarily "fix" autoimmune disorders once you have them, but prevents them or stops worsening if they are gluten-related.

I have always wondered whether the joint pain celiacs get because of gluten is arthritis or something else?

*lee-lee* Enthusiast
*lee-lee*
Posted

my doctors were all but convinced i had rheumatoid arthritis but the tests always came back negative. there was even some talk of fibromyalgia and going on Cymbalta to see if i got better but i opted not to. i often wonder if i would have ended up with RA had i not been diagnosed with Celiac. (well, i guess i still could but i like to think i caught it in time.)

QueenOfPain Rookie
QueenOfPain
Posted

Hi there. I'm not officially diagnosed with Celiac yet, but I have had a migratory joint problem that has plagued me for around 10 years or so. And it's gotten worse over the past couple of years, so I finally decided to go see a doctor about it. Because I was scared it could maybe be RA. But, all of the tests they gave me came back negative for RA, Lupus, Lymes, Gout, etc... except the Celiac blood test came back positive. I had biopsies done and they were negative for Celiac, though. So, I'm stumped. I've decided to give the gluten-free diet a try for now to see if that helps.

My joint problem can occur in any of my joints. It's usually in my legs or feet, but it can occasionally get in my fingers, wrists, elbows or shoulders. The joint becomes very stiff and sore, swollen, pink, and warm to the touch. It usually travels to several different joints before it disappears, and now it occurs in more than one joint at a time. I usually have some form of joint pain 14 to 19 days or so out of every month.

I hope you get to feeling better soon! Good luck with your tests next month!

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