Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Should I?


joyful-1982

Recommended Posts

joyful-1982 Newbie

Hi everyone,

I know that many people ask this, but here it goes:

I`m not sure whether I should get myself tested. I have been constantly tired for a good two years now and have been trying to find out what`s wrong ever since.

I`ve been to several doctors, but they haven`t really been too helpful.

Now I`ve come across celiac disease and the more I read, the more I think I should be tested, although I am missing some of the "classic symptoms"

I don`t have "the big D", actually the opposite (so i don`t go for 2 or 3 days), although I eat loads of fresh fruit and veg. (I stay away from processed foods as much as I can)

Also I am on the heavy side of life ( I`d say I need to loose about 70 pounds and have almost always been heavy)

But: I am constantly tired (or rather exhausted), over the last couple of months I have become increasingly irritable (i get annoyed soooo quickly now)

I used to have a really good memory which looks more like swiss cheese now and I can`t concentrate.

I have really bad mood swings.

Ever since I was little, I had pains in my joints. They seem to come and go. I also had several broken bones when I was younger (although that might have been, because I was really clumsy ;-) )

As a child I had severe Neurodermatitis, which luckily went away, but I still have acne (some days I look like a 13 year old in the middle of puberty).

I also read that eccessive sweating can be a sign (i might have read that somewhere else, but as i said... my memory isn`t the best and i tend to mix up things lately). i normally walk to work, which is a half hour walk, but by the time i get there, my shirts are soaked and even the inside of the coat is wet. (this only started in the last couple of months)

My haemoglobin levels are normal, but my ferritin is quite low

I`m sure I could name more "oddities"... but my question:

since I don`t have the telltale signs of being underweight and constant digestion issues, should I still push for a test?

My instinct says that it is diet related, but I can`t really back it up. (was tested for thyroid issues - that was borderline).

I would have to "fight" my doc to get tested and from what I understand a full diagnosis isn`t the "nicest" thing in the world.

So what do you think is the likelyhood? Or should I just keep on looking in other directions?

Sorry for a silly "should I?" question, but I feel like I might have found what`s wrong with me... I just don`t want to go through all the trouble, if it`s highly unlikely.

Thanks a million!

Joy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



*lee-lee* Enthusiast

it sure can't hurt to ask your doctor to run a Celiac panel, especially if other tests have come back negative or inconclusive.

you don't need to have diarrhea to have Celiac. i did, but i also had joint pain, acne, fatigue, weight gain and mood swings.

talk to your doctor and if they brush you off, find a new doctor!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,991
    • Most Online (within 30 mins)
      7,748

    ZENken
    Newest Member
    ZENken
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Have faith, you will survive. I get mine from Pipingrock.com.  500 capsules of 10,000 IU for $22.  That is almost two years worth for me.  250 caps 5000 IU for $6.69 if you only take 5,000 a day.  It's like half the price of Walmart.
    • Wheatwacked
      Testing can't alone be trusted.  Else why would it take so many years of testing and retesting and misdiagnosis to finally be told, yes you have Celiac Disease. As to what to eat, I like pre 1950 style food.  Before the advent of TV dinners.  Fresh food is better for you, and cooking from scratch is cheaper.  Watch Rachel Ray's 30 Minute Meals for how to cook.  Keep in mind that she is not gluten free, but her techniques are awesome.  Just use something else instead of wheat, barley, rye. Dr Fuhrman is a ex cardiologist.  His book Eat to Live and Dr Davis' book Wheatbelly were instrumental in my survival.
    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.