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Any Relationship Between Celiac And Paget's?

marie06

By marie06
in Related Issues & Disorders

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marie06 Rookie
marie06
Posted

I have Celiac disease. It was just diagnosed in this summer (altho I have been sick for 16 years...it has been a blessing to finally figure out what the problem was). I am fairly certain that it comes from my dads side of the family (based on their medical histories), but he will not get tested. His brother, my uncle, was just diganosed with Paget's Disease. Has anyone out there seen any correlation between Celiac and Paget's? I am kind of hoping that if there is, maybe THEN my dad will get tested. Thanks!

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Lisa Mentor
Lisa
Posted
I have Celiac disease. It was just diagnosed in this summer (altho I have been sick for 16 years...it has been a blessing to finally figure out what the problem was). I am fairly certain that it comes from my dads side of the family (based on their medical histories), but he will not get tested. His brother, my uncle, was just diganosed with Paget's Disease. Has anyone out there seen any correlation between Celiac and Paget's? I am kind of hoping that if there is, maybe THEN my dad will get tested. Thanks!

I don't know about Padget's Disease, but osteoporosis, arthritis, fibromyalgia and similar issues are quite common.

  • 3 weeks later...
marie06 Rookie
marie06
Posted
  • Author

bumping? Anyone?

I have had a headache since 1999 (everyday, 24/7). I was hoping, after the Celiac diagnosis and 100% gluten-free diet, it would go away. It hasnt. I was wondering if there is a link between Celiac and pagets.

Gentleheart Enthusiast
Gentleheart
Posted
bumping? Anyone?

I have had a headache since 1999 (everyday, 24/7). I was hoping, after the Celiac diagnosis and 100% gluten-free diet, it would go away. It hasnt. I was wondering if there is a link between Celiac and pagets.

I'm so sorry to hear about your constant headaches. I wish I could take them away. :( Maybe more time free from gluten will eventually do it. Let's hope so.

I am the only one in my family who has tested or who is even interested in being tested. So even though there are others in my family who are likely blessed with gluten sensitivity too, we may never know. Anyway, my father has definite Paget's. I have asked my doctor and he hasn't heard of any connection. But he isn't very well read on the subject of gluten, unfortunately either. There are lots of other bone and cartilage related issues in my family scattered about as well. But I'm sorry I can't give you a more definitive answer.

Personally, I do think there may very well be a connection between Pagets's and gluten issues. Just my opinion.

marie06 Rookie
marie06
Posted
  • Author
I'm so sorry to hear about your constant headaches. I wish I could take them away. :( Maybe more time free from gluten will eventually do it. Let's hope so.

I am the only one in my family who has tested or who is even interested in being tested. So even though there are others in my family who are likely blessed with gluten sensitivity too, we may never know. Anyway, my father has definite Paget's. I have asked my doctor and he hasn't heard of any connection. But he isn't very well read on the subject of gluten, unfortunately either. There are lots of other bone and cartilage related issues in my family scattered about as well. But I'm sorry I can't give you a more definitive answer.

Personally, I do think there may very well be a connection between Pagets's and gluten issues. Just my opinion.

marie06 Rookie
marie06
Posted
  • Author
I'm so sorry to hear about your constant headaches. I wish I could take them away. :( Maybe more time free from gluten will eventually do it. Let's hope so.

I am the only one in my family who has tested or who is even interested in being tested. So even though there are others in my family who are likely blessed with gluten sensitivity too, we may never know. Anyway, my father has definite Paget's. I have asked my doctor and he hasn't heard of any connection. But he isn't very well read on the subject of gluten, unfortunately either. There are lots of other bone and cartilage related issues in my family scattered about as well. But I'm sorry I can't give you a more definitive answer.

Personally, I do think there may very well be a connection between Pagets's and gluten issues. Just my opinion.

Thanks! All of my other "issues" have gone away on the gluten-free diet...and I feel SO much better, so I am happy. I keep HOPING that the headaches will go away eventually, but after 6months, I am not so sure. So, I am keeping Pagets in the back of my head (no pun intended) since my uncle has it and Pagets can cause headaches. I am going to see a doc more versed in Celiac in Jan and I will ask if he know of any Celiac/Pagets connections. I will post if he thinks there is. Thanks for your post.

Mother of Jibril Enthusiast
Mother of Jibril
Posted

I think you're smart to keep this idea in mind and pay attention to your symptoms. Celiac can explain a lot, but it doesn't explain everything.

A few months ago I was diagnosed with autoimmune hypothyroidism. Since then I've figured out I'm intolerant to gluten and corn and have low stomach acid (hypochlorhydria). I was also diagnosed with halo nevi, rosacea, and chronic dry eyes... I'm planning to get the blood test for Sjogren's antibodies later this month.

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marie06 Rookie
marie06
Posted
  • Author
I think you're smart to keep this idea in mind and pay attention to your symptoms. Celiac can explain a lot, but it doesn't explain everything.

A few months ago I was diagnosed with autoimmune hypothyroidism. Since then I've figured out I'm intolerant to gluten and corn and have low stomach acid (hypochlorhydria). I was also diagnosed with halo nevi, rosacea, and chronic dry eyes... I'm planning to get the blood test for Sjogren's antibodies later this month.

Gosh, that is a lot to deal with! Hope you feel better soon!

Mother of Jibril Enthusiast
Mother of Jibril
Posted

It is a lot to deal with...

The thing is, I had SO many warning signs. Some of them I thought were just "normal" for me... dandruff, hair loss, feeling cold all the time, constipation, dry skin. Others symptoms (abdominal pain, heartburn, fatigue, depression, joint pain) I chalked up to being pregnant three times in four years and losing one child. Other things doctors knew about... low blood pressure, heavy periods, acne, weight gain, slow heart rate, dry eyes... but nobody put the pieces together! I was only able to do it once I was diagnosed with hypothyroidism (a total fluke... I was just looking for a new primary care doctor). Autoimmune disorders seem to be like that. You can be half dead before someone notices. Anyway... now I'm doing a LOT of reading and really paying attention to the signs my body is giving me :) I could have gone months or years without getting these other diagnoses.

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