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Was Up All Night

jasonD2

By jasonD2
in Coping with Celiac Disease

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jasonD2 Experienced
jasonD2
Posted

I just found out yesterday that Rice Dream rice milk contains gluten and I have been consuming it like water for the past year and a half while I was supposed to be Gluten-Free. I made such a strong effort to change my lifestyle and for what? i just wasted an entire year and further jeopardized my health and well being because the aholes at Rice Dream can't label a product properly. I dont know what to think or what to do now

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lbd Rookie
lbd
Posted

Jason,

Maybe this is the answer for you :D You have been ingesting gluten the entire time and now you know the solution. Look at the positive of this. It might explain everything for you. You might want to look at any packaged food you eat and make sure this isn't happening in other places as well. At least now, you know about this and can start new today!

Laurie

jasonD2 Experienced
jasonD2
Posted
  • Author

I suppose - everything else I consume is free of gluten and when i travel i do the best I can, but nothing is guaranteed. fortunately or unfortunately I dont get violently ill from consuming gluten like a lot of folks on here, so I never really know whats going on and what causes what.

ravenwoodglass Mentor
ravenwoodglass
Posted

Jason I think you may find the world looks a lot different to you fairly soon. We all make mistakes in the beginning and not all of us are 'lucky' enough to have a strong gut reaction to show up that we messed up. I could be wrong but I suspect that a bit of the anxiety that you have expressed in your posts will ease up for you with the deletion of your daily barley. As another poster said you may have just found the answer. Hang in there and I hope you feel better soon.

lbd Rookie
lbd
Posted

I don't get violently ill either. In fact, I may get a headache several days later or weird body and joint pain. Occasionally, I have to make a fast trip to a bathroom somewhere, but that is rare. (I finally connected this with gluten CC at a Border's bookstore. Every time I went there and had a coffee drink, I had to make a beeline to their restroom. I always got a mocha latte - darn things have gluten somewhere in the mix. Now I get regular coffee with no added things and I am fine. The stuff lurks everywhere!).

Anyway, I hope you can take this as a positive event. You sound so much like my daughter at times, especially when you said "I guess." She has problems with anxiety and depression too, but at college, it is so hard for her to be gluten-free, so she has not really tested it out yet.

Try to stay positive, stay away from the rice milk, and see what happens now...

Laurie

jasonD2 Experienced
jasonD2
Posted
  • Author

Thanks Laurie- do you have celiac or gluten intolerance? Seems like the folks who are celiac tend to get the horrible diarrhea and migraines more often than not

lbd Rookie
lbd
Posted

I would say I have gluten intolerance, not bona fide celiac. I have DQ1 and DQ2 (2.2) genes, which are not classified as the "celiac" genes. However, I am not convinced that celiac is a separate entity altogether. I just prefer to think of myself as a genetic original without the genetic mutation needed to process gluten ;)

No question about the migraine link - I can't tell you how pleasant it is to be migraine free after more than 40 years.

Laurie

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Judyin Philly Enthusiast
Judyin Philly
Posted

Jason

Yes, agree, I'd look at this as a 'good find' on your part and i hope it will help you get better faster.

I am dx'd celiac and know right away if I ingest something. It's a pain but easier than for folks like you

kept looking for the results of your Thanksgiving day.

Did you post and if not, how did it go for you.

Whatever you did i pray it was a good day for you.

Judy

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