Safe Lists?

[mcle8232]

I have less and less trust each day in these so-called safe lists of supposed gluten-free food like the one published by ROCK (raising our celiac kids).

Dinty Moore, for example - BIG no, no for me. I was sicker than a dog when I tried nearly ALL of the processed foods on their list.

I get the DH too so not only am I miserable on the inside, I look miserable on the outside too. I try to cover up the blisters on my face w/ make-up each morning.

Maybe I'm a human gluten detector and I should be patented as "an even more sensitive test than ELISA" for gluten testing. At least then my suffering might be for a good cause. Seriously though, are these foods really gluten-free?

I have no food allergies - both my arms were poked from top to bottom for testing. I do have an allergic reaction to "grasses" -- but I don't plan on eating them anytime soon!! I guess I'm not that desperate

[angel-jd1]

Any list is out of date as soon as it is printed. Things constantly change. That is why you have to take it upon yourself and call the company directly. The lists are there to give you an idea of what you can have, or a guide. You really need to double check it on your own. I would never depend totally upon a list. I always call and confirm on my own. Gives me piece of mind to hear it for myself anyways.

-Jessica

[celiac3270]

The lists aren't correct--you always need to call, unless the company has a labeling policy, such as Kraft. Clan Thompson books are nice because they include date of verification and PHONE NUMBERS in their pocket-sized food and medication booklets. These are nice because some products don't have the number on the package.

[KaitiUSA]

Yes, lists change frequently and you should call about a product rather than assuming it is gluten free. Ingredients change on products more frequently then we realize.

With companies like Kraft, and General Mills a list is not necessary. All you have to do is check the label with their products and unless it says wheat,rye,barley, or oats then it is safe because they will not hide anything. I try to stick with brands like that whenever I can.

[mcle8232]

Thanks for your insight... I really appreciate it! I must admit that I am a tad lazy when it comes to contacting companies about gluten content. I've also gotten frustrated with the few I actually did try to get info from b/c their responses were so ambiguous I wondered why I went to the trouble to look up their contact info.

Anyway, I've been searching for tried and true gluten-free items on the internet trying to shortcut it. I currently weigh in at ~108 lbs and am constantly wondering what I can eat. After a year of chicken and rice (w/ fruit as a snack) I'm striving to add a little variety. You're right though -- I best start picking up the phone. It's the only way. --Thanks again!

[Guest nini]

I've had reactions to so called gluten-free foods on "safe lists" and even checked the label, especially processed foods like Dinty Moore...

I now try to stick with companies like Kraft and ConAgra that have a labeling policy intact, but I'm even more supportive of companies that CLEARLY LABEL which of their product as gluten free.

Annie's Naturals, Amy's Organics, Erewhon, Envirokids (for example)

[flagbabyds]

You can't trust anything unless you're heard it yourself directly from the company