Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hi! I'm New. I Have Some Questions.

mr. moore

Recommended Posts

mr. moore Explorer
mr. moore
Posted

Ok first off im not sure if i celiac disease, but i have had, most of my life, really bad problems with my bowels and a very odd addiction towards cereal, crackers, biscuits, and after reading Going Gluten Free for dummies, i probably was getting a little "loaded" off them. another problem since i was a kid was this ever present "brain fog" that really feels like someone is putting a fuzzy blanket over my 5 senses, like my brain is sleepy. and chronic fatigue. i don't know, but i do at least warrent the diagnoses of "hypochondriac". The things i've went through, the pills, the misleading "mental illness" labels, come to think of it when i was told i was bipolar is when i started acting like it, from what i remember! anyways, i gladly latch on to any hope, and if eating a certain way will make me feel better then dammit im gonna do it. sorry if i sound dramatic just be glad im not talking in real life. I'm 19, a male, and definitely am going to be a little angry if it turns out my hypochondriac quest ends with something that isn't "all in my head". Thanks, and even if i don't have it, i can totally relate to the constipation thing at least!!

Mr. Moore

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RiceGuy Collaborator
RiceGuy
Posted

Welcome!

It certainly does seem like you're now on the right track. I'd encourage you to look into a few supplements, especially during the healing stage. I think you'll find a sublingual methylcobalamin (vitamin B12), magnesium, vitamin D3, a strong B complex, and probably some others, to be most helpful. Incidentally, one of the side-benefits of magnesium, is that it can bring relief from constipation. Just don't take too much right away, as it can "surprise" your intestines, meaning they won't be ready for it, which can lead to some discomfort until things catch up.

I think one of the main reasons why doctors misdiagnose Celiac so often, is that they get most of their information from drug companies. Doctors only seem to see stuff for which a drug is being sold.

mr. moore Explorer
mr. moore
Posted
  • Author
Welcome!

It certainly does seem like you're now on the right track. I'd encourage you to look into a few supplements, especially during the healing stage. I think you'll find a sublingual methylcobalamin (vitamin B12), magnesium, vitamin D3, a strong B complex, and probably some others, to be most helpful. Incidentally, one of the side-benefits of magnesium, is that it can bring relief from constipation. Just don't take too much right away, as it can "surprise" your intestines, meaning they won't be ready for it, which can lead to some discomfort until things catch up.

I think one of the main reasons why doctors misdiagnose Celiac so often, is that they get most of their information from drug companies. Doctors only seem to see stuff for which a drug is being sold.

i was reading some other posts and im getting very paranoid over what foods could be causing what problems. i just want some answers, im very tired of looking over my shoulder for a diagnoses that is stalking my ego.

your only allergic or intolerant of a food if you get like hives or bloating right? i also read on brain allergies, where an allergic reaction gives you adhd or depresion. there's also an opiate effect on food intolerance isn't there?> like if i crave i dunno a big steamy corn on the cobb, even when presented with something tastier, i must be allergic right? but that isn't me, the only thing i've told other people on this board is that i have an addiction to cereal, bagels, and subway sandwhiches. then i feel very hazy and tired after. lol why couldn't i have something cool like a drug addiction? no i kid. but that is how it works right? celiac disease or gluten intolerance are treated the same right? hmmm....so many questions. yes im really 19 i have no f****** life.

Anna and Marie Newbie
Anna and Marie
Posted
i was reading some other posts and im getting very paranoid over what foods could be causing what problems. i just want some answers, im very tired of looking over my shoulder for a diagnoses that is stalking my ego.

your only allergic or intolerant of a food if you get like hives or bloating right? i also read on brain allergies, where an allergic reaction gives you adhd or depresion. there's also an opiate effect on food intolerance isn't there?> like if i crave i dunno a big steamy corn on the cobb, even when presented with something tastier, i must be allergic right? but that isn't me, the only thing i've told other people on this board is that i have an addiction to cereal, bagels, and subway sandwhiches. then i feel very hazy and tired after. lol why couldn't i have something cool like a drug addiction? no i kid. but that is how it works right? celiac disease or gluten intolerance are treated the same right? hmmm....so many questions. yes im really 19 i have no f****** life.

Wow, you are one angry person.

It is really hard at first but once you get over that bump things start going smoothly. I've had it for four years this january and eh, it's not so bad. I used to be addicted to that stuff too, now I'm addicted to apples and green beans. It's a new way of thinking ( as long as there is no brain fog!), and you really do have to embrace it. Once you get over being angry you'll be okay. I'll be praying for you and God bless,

~Anna ;)

mr. moore Explorer
mr. moore
Posted
  • Author

im on my 4th day...of beinggluten free, when is this horrible, absent minded brain fog goin to go? and im having a really hard time catching my breath.

RiceGuy Collaborator
RiceGuy
Posted

I know others have said it already, but hang in there. Sometimes it takes awhile for the body to heal enough for symptoms to diminish. Four days is really nothing compared to what many on this board have experienced. For myself, it was six months gluten-free before much of anything improved at all. I just wish I knew then what I know now about supplements and such. It would have really helped.

ATC-BS-MS Apprentice
ATC-BS-MS
Posted

I agree with everyone else too...the days get better and better. It took me about 2 months to feel better. The best thing that helped me was to think about how much I would feel better each day. I took each day at a time realizing that each day was some improvement.

A suggestion, would be to write down what you are going to eat for the week and plan what types of meals you are going to have. With the pre-planning you take out the "unknown" and the cravings are less.

I am 23 and in Graduate school. If you ever want to talk, let me know.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Son's legs shaking

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine?
    2. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Son's legs shaking

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine. Legumes (beans) do contain thiamine. Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and Cobalamine B12 are mostly found in meats. Meat, especially organ...
    3. lizzie42
      - lizzie42 replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Son's legs shaking

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc. Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food....
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Anti-endomysial Antibody (EMA) Testing

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    5. knitty kitty
      - knitty kitty replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      Son's legs shaking

      @lizzie42, You're being a good mom, seeking answers for your son. Cheers! Subclinical thiamine deficiency commonly occurs with anemia. An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal. Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,869
    • Most Online (within 30 mins)
      7,748
    MaryannHall
    Newest Member
    MaryannHall
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
    • Scott Adams
      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.