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Going Gluten Free Today

erinb24

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erinb24 Newbie
erinb24
Posted

I had an appointment with the GI today and was put on a gluten-free diet. Even though the tests came out negative, my symptoms line up too much with Celiac, so I'm going to try the diet and see how it works. This is going to be hard, especially the week of Christmas, but I'm so ready to start feeling better that I hope this is it!

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nasalady Contributor
nasalady
Posted
I had an appointment with the GI today and was put on a gluten-free diet. Even though the tests came out negative, my symptoms line up too much with Celiac, so I'm going to try the diet and see how it works. This is going to be hard, especially the week of Christmas, but I'm so ready to start feeling better that I hope this is it!

Welcome!

I know what you mean...I went gluten free right before THANKSGIVING! :)

But one great thing about this forum is that people share recipes for gluten free *everything* so, with the help of Whole Foods Market, I was able to prepare gluten free pies, stuffing, gravy, etc., and my family thought it all tasted just as good as the "regular" recipes, if not better!

By the way, you may start to feel better right away, but if not, don't get discouraged because it can take a while for your body to heal. Some people report that it literally took them 2 years to feel "normal" again. I figure that following the gluten free diet is DEFINITELY worth it if I can feel normal again, even if it takes years to get there. Some of my symptoms (neurological and gastric) started to get better right away, although they still come and go, while other symptoms have not improved significantly (yet). But I've only been doing this for less than a month now.

Good luck!

JoAnn

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Welcome aboard!

If there is any food you crave, post a thread about it (or post on this thread), and many of us will do our best to provide you with GOOD gluten-free substitutions so you can have the same foods over the holidays that you've always had--just made from scratch from gluten-free ingredients!

For example, if you always have green bean casserole, you can use chicken broth, garlic powder, freeze-dried mushroom (available at Sam's Club) and sour cream in place of the cream of mushroom soup, and Funyuns (a kind of onion-flavored ring-shaped chip, very similar to French-Fried onions but gluten-free!) in place of the French-fried onions.

If you are a pasta fiend, Tinkyada makes rice pasta that tastes practically identical to normal pasta. You have to cook it a little longer (use the normal cooking directions, NOT the fuel-saver directions, and follow exactly), and you have to use more water than you might have for normal pasta, and in the first 5 minutes, stir A LOT).

I hope the diet totally resolves your symptoms. That's the best part about it--no pills, no drugs, no more expensive doctor visits, no surgery!

Lisa Mentor
Lisa
Posted

Welcome!

Here is a link that you might find very valuable to you in the next few weeks:

Open Original Shared Link

Merry Christmas! :D

flourgirl Apprentice
flourgirl
Posted

Welcome aboard! You'll find you have ups and downs, I'm sure, and that you will make mistakes. We all do. It's a learning process, and a change of a lot of habits. Hopefully you'll heal quickly and feel better soon. Have patience if you don't. There is a ton of info to be had, it helps to find the time to read, read, read. Helped me a lot! :D

Good luck.

erinb24 Newbie
erinb24
Posted
  • Author

Thank you for all your responses! I love to cook, so I think I'll be able to adjust to making substitutions okay, but I think the hardest part will be having so many goodies there to tempt me :) I'll definitely keep posting here because I've gotten a lot of help already!

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    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
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