Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Take It Back!

caek-is-a-lie

By caek-is-a-lie
in Coping with Celiac Disease

Recommended Posts

caek-is-a-lie Explorer
caek-is-a-lie
Posted

Well I spent the night at my sister's to see my parents who are visiting from out of town. I was worried about CC in her kitchen or someone's feelings getting hurt if I made a request, but my family was so awesome and supportive! :D

They made sure they did every little thing per my instructions and asked lots of questions to make sure they got it right. Despite using my sister's cookware and my dad leaving toast crumbs all over the kitchen, I did not get sick! I had been so nervous going over there but everything went much better than I expected.

We're supposed to go back tomorrow. I bought gluten-free ingredients to make a gluten-free cake for my son so I could eat some too, but now I have the flu and don't have the energy to bake. We'll just have to buy a regular one and I'll bake his gluten-free cake next week. I know he won't mind. I'm gargling like crazy and putting H2O2 in my ears regularly to try and kill this thing. The last thing I want is to miss my son's birthday party tomorrow! First it was the snow, now this. I really wanted to see my parents for more than one day before they leave, and I'm really sad! :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


YoloGx Rookie
YoloGx
Posted
Well I spent the night at my sister's to see my parents who are visiting from out of town. I was worried about CC in her kitchen or someone's feelings getting hurt if I made a request, but my family was so awesome and supportive! :D

They made sure they did every little thing per my instructions and asked lots of questions to make sure they got it right. Despite using my sister's cookware and my dad leaving toast crumbs all over the kitchen, I did not get sick! I had been so nervous going over there but everything went much better than I expected.

We're supposed to go back tomorrow. I bought gluten-free ingredients to make a gluten-free cake for my son so I could eat some too, but now I have the flu and don't have the energy to bake. We'll just have to buy a regular one and I'll bake his gluten-free cake next week. I know he won't mind. I'm gargling like crazy and putting H2O2 in my ears regularly to try and kill this thing. The last thing I want is to miss my son's birthday party tomorrow! First it was the snow, now this. I really wanted to see my parents for more than one day before they leave, and I'm really sad! :(

That's wonderful! Wish my family was half as supportive.

I am mounting an assault and gaining troops so to speak in this behalf since many in my family has this same condition. It just takes a lot of finegaling meanwhile for them to get it and be convinced its worthwhile and necessary.

Meanwhile....I am hoping your gargle doesn't have (grain based) alcohol in it. You are just using salt water, right? Various anti catahral herbs (not tinctures) can also help as well as the usual chicken soup with lots of onions, garlic and cooked veggies...

Bea

ang1e0251 Contributor
ang1e0251
Posted

My best wishes are coming your way for a snappy recovery and a great time at your son's birthday pary!!

caek-is-a-lie Explorer
caek-is-a-lie
Posted
  • Author

The gargle was just salt water. And I used hydrogen peroxide once (diluted, of course.)

The belated xmas dinner was fabulous last night! It was 100% gluten free. I must have my family under some spell because they forgot to buy rolls! haha We even had gluten-free gravy. My brother-in-law-to-be did an amazing job with the potato starch!! I haven't had gravy in almost a decade!

I was too sick to bake a gluten-free cake, so we bought him one at the store and I had some soy egg nog for desert. I didn't feel like I was missing out on anything. I got to pig out on Lay's potato chips all day, and my sister and I baked sweet potato & beet chips in the oven. I think maybe I got a tiny bit of residue off her baking sheets because I forgot to ask her to line them with foil, but I didn't actually get really sick...the beets are just passing through a little faster than they should be. I can't say it was for her lack of trying to be gluten-free, though! totally my fault.

I think after this I won't feel so nervous eating at other peoples' houses. It is actually possible. :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,685
    • Most Online (within 30 mins)
      7,748
    tdouglas2901
    Newest Member
    tdouglas2901
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.