Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Where To Now?

DgAvon

By DgAvon
in Doctors

Recommended Posts

DgAvon Newbie
DgAvon
Posted

Who do I go see now that I have had my second endoscopy and nothing has changed? Yes, I have been diagnosed with Celiac! My GI doc said to come back if I have problems! Duh! DH is really the most problem i have with the Celiac.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flourgirl Apprentice
flourgirl
Posted

Personally I think This is where you need to be now. There is a lot of information here. You have the diagnosis, it's up to you to learn and to take control. I don't think many doctors out there really know or understand just what you are dealing with. You do. My advice...read up on posts here, and the many sites that are out there that will help you to help yourself. Good luck to you...heal fast!

whitball Explorer
whitball
Posted

The important thing is now you have a diagnosis. If you are like the rest of us, it has taken years to get an answer to why you have been sick. This forum has been a life saver for me. There is lots of information here that can help you learn to care for yourself. There are lots of experienced people with good ideas and can offer support when you need it. Good luck to you.

ang1e0251 Contributor
ang1e0251
Posted

Welcome to the forum. You are in the right place for infomation and friendly advice. Since you are dx'd, now is the time to start the gluten free diet, if you haven't already. You said your main symptom is DH, but you may find, like I did that many other health issues you never imagined could be related to gluten improve or resolve completely when you are gluten-free.

Don't think a biopsy can't miss damage in the small intestine. It can happen as your dx proves. Read up on this site. It is the best spot for the info your dr doesn't know or doesn't have time to tell you. Questions? Ask away. Venting? We'll listen. We've been in your spot, starting out as Celiac "babies" with a lot to learn.

I'm glad you've found the site and good luck in your new gluten-free life.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,822
    • Most Online (within 30 mins)
      7,748
    Patty Andres
    Newest Member
    Patty Andres
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Bronwyn W
      Newly diagnosed

      By Bronwyn W · Posted

      Thank you 😊 I will certainly have those tests done to be thorough although bright red color indicates lower down.  This information is very interesting,  Thank you so much 🙏🏻 
    • trents
      Newly diagnosed

      By trents · Posted

      As Plumbago mentioned, bleeding in the upper end of the GI track tends not to show up as bright red in color because it gets acted upon by the digestion process and more thoroughly mixed in with food residues that are passing through the intestines.
    • plumbago
      Newly diagnosed

      By plumbago · Posted

      @Bronwyn W Working with your medical provider, you could do a complete blood count test. If you were bleeding say from an ulcer in the stomach (and let's hope not), your red blood cells could be low and your hemoglobin low as well. Your stools may show up as the proverbial "dark and tarry," indicative of a bleeding site further away from the anus. Basically, you may be anemic. Your heart may be beating extra fast as a way to compensate for the decreased number of blood cells, your oxygen saturation may be lower than normal on a pulse oximeter, and so on. But talk to your doctor.
    • Bronwyn W
      Newly diagnosed

      By Bronwyn W · Posted

      Thank you for this insight. I have had rectal bleeding after glutening and subsequent constipation (+ IBS-C) and always attributed it to internal hemorrhoids (diagnosed). What I wasn't aware of is the possibility of bleeding further up the digestive tract. Please can you elaborate on the causes and symptoms to watch for?
    • Scott Adams
      Still unsure.....

      By Scott Adams · Posted

      Be sure to be eating gluten daily until all of your celiac disease tests are completed (at least 2 slices worth of wheat bread per day for at least 6-8 weeks before any blood tests, and 2 weeks before an endoscopy).
×
×
  • Create New...