Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Turn Down A Biopsy For Their Child?

EmmyLouWho?

Recommended Posts

Jamie's Mom Newbie
Jamie's Mom
Posted

Just wanted to follow up and let everyone know that I took my daughter to another Ped GI DR and he said that her bloodwork was enough to determine celiacs disease- he did not recommend the endo at this time. My husband and I are going to be tested- to see if we have it. I am relieved that he did not insist on the biopsy. My gut feeling told me to go to another Dr. This is my youngest child 7 years old. I have two older children that are 25 and 21 years old now, and I have always followed my gut with their medical care as well.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 77
  • Created
  • Last Reply
Gemini Experienced
Gemini
Posted
Just wanted to follow up and let everyone know that I took my daughter to another Ped GI DR and he said that her bloodwork was enough to determine celiacs disease- he did not recommend the endo at this time. My husband and I are going to be tested- to see if we have it. I am relieved that he did not insist on the biopsy. My gut feeling told me to go to another Dr. This is my youngest child 7 years old. I have two older children that are 25 and 21 years old now, and I have always followed my gut with their medical care as well.

Congratulations on finding a good doctor who appears more interested in the welfare of his young patient than putting her through more testing that wasn't needed!

Now all you have to do is figure which side of the family it came from....it could be both, as in my family. You may want to have the gene testing done to determine this. The gene testing and Celiac blood panel can tell you a wealth of information. Good luck!

EmmyLouWho? Newbie
EmmyLouWho?
Posted
  • Author
Just wanted to follow up and let everyone know that I took my daughter to another Ped GI DR and he said that her bloodwork was enough to determine celiacs disease- he did not recommend the endo at this time. My husband and I are going to be tested- to see if we have it. I am relieved that he did not insist on the biopsy. My gut feeling told me to go to another Dr. This is my youngest child 7 years old. I have two older children that are 25 and 21 years old now, and I have always followed my gut with their medical care as well.

That's great news!! It must feel great to have a doctor who is understanding and ready to make a diagnosis without the additional procedures. Good thing you went with your gut! I don

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,584
    • Most Online (within 30 mins)
      7,748
    cthome44
    Newest Member
    cthome44
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.