Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Info Fast Befor I Make A Big Mistake

bknutson

Recommended Posts

bknutson Apprentice
bknutson
Posted

I have had Celiac Spru for about 5 or 6 years. Along with a few other things. I am 51 years old. I go up and down from a 140lbs to 110lbs all the time. I am sick constantly. I dont know why but I can not seem to get anything under controll. Recently I heard about Allegenix. It is done by this chyroprator out here in Utah that we know and mayber alot other dr.s I dont know. What I need to know is Has ANYONE HEARD OF IT AND DOES IT WORK? I keep thinking that if it works why are there so many of us still celiac sufferers?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sbj Rookie
sbj
Posted

Even if this did work it doesn't have anything to do with celiac disease. This treatment supposedly eliminates allergies. Celiac disease is not an allergy.

bknutson Apprentice
bknutson
Posted
  • Author
Even if this did work it doesn't have anything to do with celiac disease. This treatment supposedly eliminates allergies. Celiac disease is not an allergy.

Yes it is we are alergic to the gluten.

bigbird16 Apprentice
bigbird16
Posted

I'd be careful, BK. Maybe it'll work for allergies, but celiac and an allergy to wheat are different beasts. It sounds a bit like snake oil to me, though. (The lady saying she's been cured works for the chiropractor; she's not a neutral party.) Do some research on the internet and look for reputable medical studies on it (like from medical journals, rather than sites selling/advocating books, services, pills, etc.) If it seems to good to be true, it probably is.

Take care,

Kat

Mother of Jibril Enthusiast
Mother of Jibril
Posted

Celiac disease is not an allergy. It's an autoimmune reaction. Gluten causes your body to produce antibodies (EMA, Ttg) that destroy your intestines. It's currently the only autoimmune disorder that can be prevented or "cured" by avoiding the trigger (although your body will always be able to start producing antibodies again if you go back to eating gluten).

It is possible, however, that you also have one or more true allergies... which cause your body to produce histamines. I would make an appointment with an allergist before buying any products.

bknutson Apprentice
bknutson
Posted
  • Author
Celiac disease is not an allergy. It's an autoimmune reaction. Gluten causes your body to produce antibodies (EMA, Ttg) that destroy your intestines. It's currently the only autoimmune disorder that can be prevented or "cured" by avoiding the trigger (although your body will always be able to start producing antibodies again if you go back to eating gluten).

It is possible, however, that you also have one or more true allergies... which cause your body to produce histamines. I would make an appointment with an allergist before buying any products.

Ok you guys are really helping me now. Thankyou. Please anyone keep throwing things at me. I have had this so long I think I have gotten myself confused with all the other stuff I have too. Also I have a memory problem. I know Celiac is an autoimmune thing but it is caused from the alergy to the wheat by products isnt it? Or is is triggered by them. Oh my gosh I need to go back to studing. I have been sick for so long I am reaching for miricles I guess. I have never been able to feel good since I got this stuff. Thankyou so much for your info and patience. I am just an old lady who has been about ready to throw in the towel....

bknutson Apprentice
bknutson
Posted
  • Author
Ok you guys are really helping me now. Thankyou. Please anyone keep throwing things at me. I have had this so long I think I have gotten myself confused with all the other stuff I have too. Also I have a memory problem. I know Celiac is an autoimmune thing but it is caused from the alergy to the wheat by products isnt it? Or is is triggered by them. Oh my gosh I need to go back to studing. I have been sick for so long I am reaching for miricles I guess. I have never been able to feel good since I got this stuff. Thankyou so much for your info and patience. I am just an old lady who has been about ready to throw in the towel....

I just read right on this very site "Gluten Alergy symtoms" So I am so confused.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mtndog Collaborator
Mtndog
Posted
I just read right on this very site "Gluten Alergy symtoms" So I am so confused.

Hi BKnutson! I think a lot of people use the term allergy/intolerance loosely around here. Celiac is an autoimmune disorder that makes us intolerant of gluten.

I would think twice before doing this treatment only because you don't seem to know much about it. It may work but it may not and I'd hate to see you spend the money if it doesn't work :( See if you can find out more of it.

You have been gluten-free for awhile and are still feeling poopy (I was too). Have you tried eliminating other foods that seem to give a lot of people trouble here- like soy, dairy? Have you seen your doctor lately for a checkup?

I hope you find the answer- don't stop until you do!

bknutson Apprentice
bknutson
Posted
  • Author
Hi BKnutson! I think a lot of people use the term allergy/intolerance loosely around here. Celiac is an autoimmune disorder that makes us intolerant of gluten.

I would think twice before doing this treatment only because you don't seem to know much about it. It may work but it may not and I'd hate to see you spend the money if it doesn't work :( See if you can find out more of it.

You have been gluten-free for awhile and are still feeling poopy (I was too). Have you tried eliminating other foods that seem to give a lot of people trouble here- like soy, dairy? Have you seen your doctor lately for a checkup?

I hope you find the answer- don't stop until you do!

Thanks Beverly,

I actualy decided I would put in a call to my Dr. and ask him about it. I mean if it is such a miricle why arent we all healed? I have not been in for a while. I am sick all the time. But I Have some other problems and lactose is one. Fybromyalgia is one. Artoritis, so I am an old lady who is a mess. But thank you. I am wondering if you are the Beverly who sent me a huge list of foods about four years ago. It was called ----- list. I cant remember. I lost it when my computer crashed.

BK

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thanks so much!
    2. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      I have osteopenia and have cracked three vertebrae. Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins. Blood tests don't reveal the amount of vitamins stored inside cells. The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four...
    3. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician? Have you been checked for nutritional deficiencies? Osteoporosis? Thyroid? Anemia? Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the...
    4. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      @JudyLou, I have dermatitis herpetiformis, too! And...big drum roll... Niacin improves dermatitis herpetiformis! Niacin is very important to skin health and intestinal health. You're correct. dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form...
    5. trents
      - trents replied to Mark Conway's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Have I got coeliac disease

      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748
    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thanks so much! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
    • trents
      Have I got coeliac disease

      By trents · Posted

      And I agree with Wheatwacked. When a physician tells you that you can't have celiac disease because you're not losing weight, you can be certain that doctor is operating on a dated understanding of celiac disease. I assume you are in the UK by the way you spelled "coeliac". So, I'm not sure what your options are when it comes to healthcare, but I might suggest you look for another physician who is more up to date in this area and is willing to work with you to get an accurate diagnosis. If, in fact, you do not have celiac disease but you know that gluten causes you problems, you might have NCGS (Non Celiac Gluten Sensitivity). There is no test available yet for NCGS. Celiac must first be ruled out. Celiac disease is an autoimmune disorder that damages the lining of the small bowel. NCGS we is not autoimmune and we know less about it's true nature. But we do know it is considerably more common than celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.