Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lack Of Sweating


kaplan1975

Recommended Posts

kaplan1975 Newbie

Anyone have this symptom? There is very little information out there regarding this symptom (not just as it is associated with celiac), unless you are a horse (I'm serious). When exercising I do not sweat and get additional symptoms consistent with heat stroke, etc. I make sure to drink plenty of fluids and am sure it is not related to being dehydrated...I have been on a strict gluten-free diet for over a year so intestines should be healed enough to absorb water, right???

I plan to change to a doctor in the area that is Celiac herself and finally be able to ask these questions and not feel like I am a hypochondriac. The official word for this is Anhidrosis...anyone else notice this


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



marciab Enthusiast

I had this problem for years and so I know how uncomfortable it is. I can't remember exactly when it went away ... my myoclonus started to go away after 7 months on the diet but most of my symptoms were with me for at least the first year or two. I'm still working on a couple ..

Good to know it has a name .. have you googled Anhidrosis gluten ?

dogle Apprentice
Anyone have this symptom? There is very little information out there regarding this symptom (not just as it is associated with celiac), unless you are a horse (I'm serious). When exercising I do not sweat and get additional symptoms consistent with heat stroke, etc. I make sure to drink plenty of fluids and am sure it is not related to being dehydrated...I have been on a strict gluten-free diet for over a year so intestines should be healed enough to absorb water, right???

I plan to change to a doctor in the area that is Celiac herself and finally be able to ask these questions and not feel like I am a hypochondriac. The official word for this is Anhidrosis...anyone else notice this

Hi, I don't know how old you are but anhidrosis happened to me during my teenage years, I also worried about that and I remember having digestive symptoms also. In fact, some of my family memebers say they have experienced the same. I remember going to the gym and also I had symtoms of heat stroke, I remember one day I almost faint in the restroom, I was shaking till they cool me down. I haven't had the intestinal biopsy but I have antiendomysial antibodies present in my blood.

JNBunnie1 Community Regular

That used to be a problem for me, until I was 20 or so. I would get really hot, but never sweat, and I'd be beet red and feel like passing out. Wierd what that darn gluten stuff can do to you, huh?

kaplan1975 Newbie

I am glad to hear I am not the only person that has had this symptom...I am even happier to hear that it can get better. I used to play basketball for 4-6 hours in hot weather with no problems (teenage years, now 33) and now I cannot play for 15 minutes without feeling terribly sick.

The majority of information out there is in reference to how horses get this and there is a supplement that contains L-Tyrosine. I just ordered (waiting for delivery) a complete amino acid supplement that contains tyrosine so I am hoping to see some improvement. I see Tyrosine is also a supplement sometimes used to increase mood as well which is something I could use at times.

Thanks for all your stories as I am now realized the therapeutic benefits of sharing your experiences with others in similar situations.

ptkds Community Regular

My youngest dd's have this problem. But I don't think it is related to Celiac. They have both been gluten-free for about 2 years and they have had this problem all their lives. But they are only 2 and 3 yrs old. their pedi won't run any tests because she says there is nothing that can be done about it anyway.

TestyTommy Rookie

This used to by a HUGE problem for me. I have no idea why it happened, but it was definitely related to celiac. Before I went gluten-free, I would try to do any cardio exercise, and I could go for an hour and not have a drop of sweat on me. Of course, I'd have to drink like a gallon of water because I was so over-heated.

I've been gluten-free for 3 years (next week!) and I'm sweating normally. It took about 2 years for me, and I (nor my doctors) have any idea as to why it happened. best guess is it's thyroid related.

I found the same info as you (there's a patent for treating horses for anhydrosis using tyrosine). I used lots of tyrosine, but I don't recommend it. Basically, all it does is make your thyroid rev up and go hyper. So you will sweat -- but you'll also get shaky, stressed out and your hair will get dry but greasy.

It took me about 2 years gluten-free before I was sweating normally, so I'd suggest you give it some more time. How long were you undiagnosed?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kaplan1975 Newbie
This used to by a HUGE problem for me. I have no idea why it happened, but it was definitely related to celiac. Before I went gluten-free, I would try to do any cardio exercise, and I could go for an hour and not have a drop of sweat on me. Of course, I'd have to drink like a gallon of water because I was so over-heated.

I've been gluten-free for 3 years (next week!) and I'm sweating normally. It took about 2 years for me, and I (nor my doctors) have any idea as to why it happened. best guess is it's thyroid related.

I found the same info as you (there's a patent for treating horses for anhydrosis using tyrosine). I used lots of tyrosine, but I don't recommend it. Basically, all it does is make your thyroid rev up and go hyper. So you will sweat -- but you'll also get shaky, stressed out and your hair will get dry but greasy.

It took me about 2 years gluten-free before I was sweating normally, so I'd suggest you give it some more time. How long were you undiagnosed?

Thanks for your input as it is comforting to hear another story where this symptom was reversed with a gluten free diet.

I have been gluten-free for 18 months, but dont think I did I good job for the 1st 6 months...so 12 months with much better care...maybe sometime over the next year I will be able to exercise without risking heat stroke...I would like to start playing sports again to get a cardio workout.

I have been taking tyrosine right before bed and seems to really help me get deep, quality sleep with dreams (I have not been able to remember dreams for as long as I can remember). I took tyrosine during the day and it seemed to make me feel tired.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    2. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    4. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

    5. - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,864
    • Most Online (within 30 mins)
      7,748

    Jojo3
    Newest Member
    Jojo3
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.