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Peripheral Neuropathy And B12

Laurenlovespink

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Laurenlovespink Newbie
Laurenlovespink
Posted

Hi,

I am not diagnosed yet. Presently going through a bunch of tests to figure me out. I just went back to the doctor yesterday to look into what else could be causing my peripheral neuropathy besides celiac disease(even though I have all of the classic celiac symptoms). My new doctor just did a full celiac panel. which my first one did not do the first time, so I am waiting for my results. My new doctor wants to do an MRI to test for MS because of the peripheral neuropathy.

Anyway to my question, What have some of your B12 levels been when experiencing peripheral neuropathy?? When my B12 was tested 2 months ago it was 373 which is "normal". I am just wondering if anyone has had a level in the 200-500 range and still experienced the neuropathy. Did it get better with B12 injections or sublingual B12?

Thank you!

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rinne Apprentice
rinne
Posted

My B12 levels were 228 and yes the B shots and the methylcobalmin B12 helped.

My thinking is that it is worth supplementing before having tests such as an MRI. I am of the opinion that testing procedures themselves may stress the body and that once we are ill we don't need more stress especially if by supplementation we can see positive changes.

And hello :) and welcome.

rinne Apprentice
rinne
Posted

Open Original Shared Link

MRI IN THE NEWS

JUL-17-08: After two years of legal wrangling between a victim of gadolinium contrast dyes used in an MRI procedure and her insurer, the court has order that the woman receive treatment. [NEWS INFERNO: MRI HEALTH RISKS] JUN-25-08: Two patients who had MRIs at the Mayo Clinic last year have been diagnosed with Nephrogenic Systemic Fibrosis, a disease linked to a metal-based contrasting agent used in MRIs. [NEWS: MRI KIDNEY FAILURE] MAY-23-08: Patients with weak kidneys put themselves at risk if they undergo an MRI scan that uses gadolinium dye as a contrast agent. [uS RECALL NEWS: MRI GADOLINIUM]

MAY-30-07: The mother of a man who died after receiving injections of Magnevist for an MRI while he had end-stage kidney disease has filed a lawsuit against Bayer Healthcare. The lawsuit claims that Bayer knew about the risk of NSF but did not properly warn the public. [FORBES: MRI KIDNEY] MAY-27-07: A woman who suffered from chronic kidney disease for 15 years has been immobilized by a dye that was injected into her veins for an MRI test in 2002. She developed NFD/NSF, a disease that creates thick scar tissue that can paralyze internal organs. [COURIER-POST: MRI KIDNEY FAILURE] MAY-24-07: The FDA is asking manufacturers of certain contrast agents used for MRI scans to put a black box warning on the packaging. The warning would state that patients with severe kidney insufficiency are at risk for developing a potentially fatal disease. [MARKETWATCH: MRI

MaryJones2 Enthusiast
MaryJones2
Posted

When I started several years ago mine was around 350 and considered 'normal' by the lab standards but I certainly felt off. Two of my doctors like to see it about 500. I feel much better when it higher that's for sure. I've been doing weekly injections for several years now and love them. It's one less pill I have to worry about each day!

'

ravenwoodglass Mentor
ravenwoodglass
Posted
Hi,

I am not diagnosed yet. Presently going through a bunch of tests to figure me out. I just went back to the doctor yesterday to look into what else could be causing my peripheral neuropathy besides celiac disease(even though I have all of the classic celiac symptoms). My new doctor just did a full celiac panel. which my first one did not do the first time, so I am waiting for my results. My new doctor wants to do an MRI to test for MS because of the peripheral neuropathy.

Anyway to my question, What have some of your B12 levels been when experiencing peripheral neuropathy?? When my B12 was tested 2 months ago it was 373 which is "normal". I am just wondering if anyone has had a level in the 200-500 range and still experienced the neuropathy. Did it get better with B12 injections or sublingual B12?

Thank you!

Not all MRI's do not require injectables. I have had this one done and basically they just stick you in the tube with your head restrained. They will be looking for demylinating lesions that would surround the mylin sheath. Some celiacs, especially those of us with ataxia, will have similiar lesions but they will be in the 'wrong' place to be diagnostic of MS. In the US those lesions are called UBO's or unidentified bright objects and they look just like what they are called. In other countries these are considered diagnostic of celiac but most neuros here just shrug their shoulders. Mine said 'Lot's of people have them they don't mean anything, here have a prozac.'

As far as the B12 levels go, the body stores B12 and often stops being able to utilize it long before the numbers crash. I had clear PN at a level close to 500 and by the time I dropped to 212 I had been in serious trouble for a while. The sublingual B12 made a real difference in a relatively short time. I would go ahead a get some but let you doctor know you are taking it as if he tests your levels again it will show very high when you are supplementing.

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