Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Remember When....?

digmom1014

By digmom1014
in Coping with Celiac Disease

Recommended Posts

digmom1014 Enthusiast
digmom1014
Posted

Has anyone else experienced whole periods of time that you can't remember? I have people all the time saying to me, remember when we did this or that....but I don't really remember the incident.

I probably have been gluten allergic my whole life but had the added "brain fog" from the chemotheraphy I had several years ago.

Is anyone elses "brain fog" as bad as mine is? I don't have a problem thinking of the correct vocabulary, remembering my keys, or most short term identifiers. However, whole vacations, funny/tragic incidents, and day to day events are gone from my memory.

It is very fustrating and I find myself pretending I remember in quite a few incidences.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


curlyfries Contributor
curlyfries
Posted

Oh, yes........have lost much of my childhood.

I always thought there must've been some reason my mind has blocked it out,,.....even thought about hypnosis. But now I realize that the older I get, some adult memories are being lost, also. It feels like I haven't been present in my own life.

I also pretend sometimes when people ask..........very frustrating.

flourgirl Apprentice
flourgirl
Posted

I'm the same way. There are huge chunks of my childhood that are just plain old gone. I also wondered if there was something about it that made me block it all out. It also applies to a great deal of my adult life, just gone. I spent a lot of my life "drifting" if you know what I mean....struggling just to go from day to day without any real goal or plan...going with the flow. How much different would our lives have been if we had use of our full mental capacities? We'll never know. I was always very introspective, my mother used to tell me I had no common sense. When talking to other people I realize that other people remember so much more than I do, somehow I filed all that stuff in the wrong drawers and can't find any of it :D:(

ravenwoodglass Mentor
ravenwoodglass
Posted

It is frustrating and at times a bit sad. I did eventually get to the point where I couldn't name day to day things and at times forgot what to do with my car keys, that was really scarey. Thank goodness a lot has resolved but it seems what was locked in there from younger years is forever lost. It is nice to know I'm not alone in this issue. Thanks for bringing it up.

ang1e0251 Contributor
ang1e0251
Posted

I will have to say I'm optomistic about my memory. It's getting better and better. When asked something, like someone's name, and I get the doink look on my face, in the past I could either never recall the name or maybe in a few days recall it. Now after a few seconds or maybe a minute I can usually recall it. A major accomplishment for me!!

Sometimes I have to remember it "sideways". I have to think of something related to it or an incident where I knew it before. This morning I was commenting on a customer to my DH, to remember his name, I had to visualize him then his wife. Her unusual first name came to mind, then in another second the last name which allowed me to remember his name. That sounds frustrating but when on gluten last year, I wouldn't have remembered it at all. I'm happy with this progress.

I used to feel like I was fighting a battle with my brain and now it feels like we've signed a truce!

harp1 Apprentice
harp1
Posted
I will have to say I'm optomistic about my memory. It's getting better and better. When asked something, like someone's name, and I get the doink look on my face, in the past I could either never recall the name or maybe in a few days recall it. Now after a few seconds or maybe a minute I can usually recall it. A major accomplishment for me!!

Sometimes I have to remember it "sideways". I have to think of something related to it or an incident where I knew it before. This morning I was commenting on a customer to my DH, to remember his name, I had to visualize him then his wife. Her unusual first name came to mind, then in another second the last name which allowed me to remember his name. That sounds frustrating but when on gluten last year, I wouldn't have remembered it at all. I'm happy with this progress.

I used to feel like I was fighting a battle with my brain and now it feels like we've signed a truce!

It's funny, the B12/Magnesium shots are helping my memory and my over all mood. I feel much more stable mentally. It's a wonderful thing. More confident about my memory. ( for example with my private music students)

digmom1014 Enthusiast
digmom1014
Posted
  • Author

Maybe I should try the B-12/ Mag shots too. I take the oral B-12.

Does a dr. administer your shots?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,031
    • Most Online (within 30 mins)
      7,748
    joanna19
    Newest Member
    joanna19
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results

      By trents · Posted

      Here is an article that gives an overview of all tests that can be used to detect celiac disease:    As you can see, the different tests vary in their degree of specificity and sensitivity. So, it is to be expected that if someone has celiac disease, not all the tests will be positive. Also notice that the tests break down into two large groups, IGA-based tests and IGG-based tests. There is also the EMA (Endomysial Antibodies) which is an older test and has largely been supplanted by he tTG-IGA which is less expensive to administer. So, when you report that the TTG score from your daughter's bloodwork is 22ku/l, we assume you are referring to the tTG-IGA test, which is the most popular test ordered by physicians when checking for celiac disease and considered to be the centerpiece test. However, you do not mention if there was a "total IGA" test run. Whenever the tTG-IGA is ordered, a total IGA should also be ordered to check for IGA deficiency. IGA deficiency will result in other IGA test scores, such as the tTG-IGA being artificially low, even falsely negative. This is especially true for young children. This is discussed in the article I linked. If your physician did not order total IGA test, this should have been done. Do you have a recourse for requesting such? I should also mention that you must not withdraw gluten from your toddler's diet until all testing for celiac disease is completed. Doing so would invalidate the testing.
    • Scott Adams
      Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results

      By Scott Adams · Posted

      I’m so sorry to hear about your toddler’s recent Type 1 diabetes diagnosis, and I understand how overwhelming it must feel to now be navigating possible celiac disease as well. The slightly elevated TTG antibodies (22 ku/L) with normal endomysial antibodies could indicate a few things—sometimes, mild elevations can occur due to factors other than celiac disease, such as recent infections or even Type 1 diabetes itself. However, the symptoms you’ve noticed (changes in stools, itching, and hair thinning) could potentially align with celiac disease, so it’s understandable why you’re concerned. Since the consultant wants to retest in 3–6 months, it may be because they’re assessing whether the antibody levels persist or increase, which would strengthen the case for further investigation (like a biopsy). In the meantime, if your daughter’s symptoms worsen or you feel uneasy waiting, it’s completely reasonable to ask for an earlier review or a referral to a pediatric gastroenterologist for further advice. Keeping a symptom diary until the next test might also help track any patterns. You’re doing a great job advocating for your little one—trust your instincts and don’t hesitate to push for more clarity if needed. Sending you lots of support.
    • mytype1diabetes
      Toddler recently diagnosed with Type 1 diabetes and need help understanding coeliac screening test results

      By mytype1diabetes · Posted

      Hi all, Posting from the UK.  My 2 year old was recently diagnosed with Type 1 diabetes. In the UK they routinely screen for coeliac disease. The test showed slightly elevated levels of TTG antibodies. The consultant wants to repeat these antibodies in 3-6 months time to determine clinical significance. In our letter it said "marginally elevated TTG antibodies (22ku/l), normal endomysial antibodies". I'm not exactly sure what this means, especially given one of the tests were within the normal range, and if we should be worried about the numbers. It is difficult to know if she has any "symptoms" but at the time she was diagnosed with Type 1 diabetes I noticed that her stools had changed. They are now probably a Type 6 on the Bristol stool chart. She seems to be quite itchy which is a recent thing and over the past week I have noticed some hair loss/thinning. I feel very worried and I'm not sure I can wait for her to be retested in 3-6 months time.  I'd appreciate any wisdom, advice or information you have. Thanks 🙏🏼
    • slkrav
      Glutened from hair conditioner- check your body products and makeup !

      By slkrav · Posted

      I was feeling really sick last week, for several days I kept thinking I was getting cross contamination. Typical symptoms like not sleeping well at night and waking up with widespread inflammation in all of my joints, foggy head and of course bowel issues. I had read the article recently that was talking about body products. I was starting to get depressed. I was showering and decided to read the ingredients in the products I've been using. It turns out that two of the ingredients in my conditioning hair mask contain GLUTEN. I felt really stupid for not checking before and I threw that away and also checked the ingredients of everything else I've been using. I've heard of skin issues from gluten containing body products, but this opens up a whole new way if being proactive. 
    • xxnonamexx
      Supplements for those Diagnosed with Celiac Disease

      By xxnonamexx · Posted

      I haven't taken blood test for deficiencies yet since self diagnosed but I started a Multi vitamin from reading consumerlabs Nature Made Multivitamin For Her 50+ with No Iron, Womens Multivitamin for Daily Nutritional Support, Multivitamin is actually good for men compared to the mens version since im 47 I figured this should be ok. I also just started taking Kirkland Signature Super B-Complex with Electrolytes which consumerlabs which is an independent lab that tests what is actually in it states this is a good balanced B complex vitamin where its not too much of any vitamin for you to take.  I was thinking of taking the Gluten test after the summer  ut I think if I reintroduce gluten for this test I will be so sick and make things worse. I heard there is a blood test coming in a year that they add gluten to the blood to test which would be nice but prob in a year or 2. 
×
×
  • Create New...