Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Remember When....?

digmom1014

By digmom1014
in Coping with Celiac Disease

Recommended Posts

digmom1014 Enthusiast
digmom1014
Posted

Has anyone else experienced whole periods of time that you can't remember? I have people all the time saying to me, remember when we did this or that....but I don't really remember the incident.

I probably have been gluten allergic my whole life but had the added "brain fog" from the chemotheraphy I had several years ago.

Is anyone elses "brain fog" as bad as mine is? I don't have a problem thinking of the correct vocabulary, remembering my keys, or most short term identifiers. However, whole vacations, funny/tragic incidents, and day to day events are gone from my memory.

It is very fustrating and I find myself pretending I remember in quite a few incidences.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


curlyfries Contributor
curlyfries
Posted

Oh, yes........have lost much of my childhood.

I always thought there must've been some reason my mind has blocked it out,,.....even thought about hypnosis. But now I realize that the older I get, some adult memories are being lost, also. It feels like I haven't been present in my own life.

I also pretend sometimes when people ask..........very frustrating.

flourgirl Apprentice
flourgirl
Posted

I'm the same way. There are huge chunks of my childhood that are just plain old gone. I also wondered if there was something about it that made me block it all out. It also applies to a great deal of my adult life, just gone. I spent a lot of my life "drifting" if you know what I mean....struggling just to go from day to day without any real goal or plan...going with the flow. How much different would our lives have been if we had use of our full mental capacities? We'll never know. I was always very introspective, my mother used to tell me I had no common sense. When talking to other people I realize that other people remember so much more than I do, somehow I filed all that stuff in the wrong drawers and can't find any of it :D:(

ravenwoodglass Mentor
ravenwoodglass
Posted

It is frustrating and at times a bit sad. I did eventually get to the point where I couldn't name day to day things and at times forgot what to do with my car keys, that was really scarey. Thank goodness a lot has resolved but it seems what was locked in there from younger years is forever lost. It is nice to know I'm not alone in this issue. Thanks for bringing it up.

ang1e0251 Contributor
ang1e0251
Posted

I will have to say I'm optomistic about my memory. It's getting better and better. When asked something, like someone's name, and I get the doink look on my face, in the past I could either never recall the name or maybe in a few days recall it. Now after a few seconds or maybe a minute I can usually recall it. A major accomplishment for me!!

Sometimes I have to remember it "sideways". I have to think of something related to it or an incident where I knew it before. This morning I was commenting on a customer to my DH, to remember his name, I had to visualize him then his wife. Her unusual first name came to mind, then in another second the last name which allowed me to remember his name. That sounds frustrating but when on gluten last year, I wouldn't have remembered it at all. I'm happy with this progress.

I used to feel like I was fighting a battle with my brain and now it feels like we've signed a truce!

harp1 Apprentice
harp1
Posted
I will have to say I'm optomistic about my memory. It's getting better and better. When asked something, like someone's name, and I get the doink look on my face, in the past I could either never recall the name or maybe in a few days recall it. Now after a few seconds or maybe a minute I can usually recall it. A major accomplishment for me!!

Sometimes I have to remember it "sideways". I have to think of something related to it or an incident where I knew it before. This morning I was commenting on a customer to my DH, to remember his name, I had to visualize him then his wife. Her unusual first name came to mind, then in another second the last name which allowed me to remember his name. That sounds frustrating but when on gluten last year, I wouldn't have remembered it at all. I'm happy with this progress.

I used to feel like I was fighting a battle with my brain and now it feels like we've signed a truce!

It's funny, the B12/Magnesium shots are helping my memory and my over all mood. I feel much more stable mentally. It's a wonderful thing. More confident about my memory. ( for example with my private music students)

digmom1014 Enthusiast
digmom1014
Posted
  • Author

Maybe I should try the B-12/ Mag shots too. I take the oral B-12.

Does a dr. administer your shots?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,804
    • Most Online (within 30 mins)
      7,748
    heidibaillie109
    Newest Member
    heidibaillie109
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      4 Years and very little progress

      By trents · Posted

      Welcome to the  forum @maylynn! Have you had a follow-up endoscopy/biopsy of the small bowel to check for healing of the villous lining? If not, it's about time one was done. As Scott mentioned, I also wonder if you have food intolerances in addition to gluten. Oats (even gluten free oats), dairy, soy, corn and eggs are some of the most common ones in the celiac community.
    • Scott Adams
      4 Years and very little progress

      By Scott Adams · Posted

      Is your gluten-free diet strict? Do you eat out in restaurants? If so, you could be getting contamination, and over time that can slow recovery. You may want to get a follow up celiac disease antibody panel done to make sure that your levels have gone down since your last tests. Also, have you had various nutrient levels checked via a blood test, and have you been taking vitamin & mineral supplements since your diagnosis?  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.    Do you still have celiac disease symptoms?  Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • maylynn
      4 Years and very little progress

      By maylynn · Posted

      Hello!  I am here as a last result, hoping for some advice, similar stories, etc. When I was 17, I was diagnosed with Celiac disease. By the time we figured it out my iron levels were so low I had to get infusions, and I had lost 20lbs. in two weeks going from a 5'11 130lbs woman to a 110 lbs. Now, I am 21 and have gained 4 lbs since. Every time I eat a meal, I get three bites in and feel so full that I feel sick. I can't eat a full meal. Something else has to be wrong right? This can't just be more "normal" right? I have done test after test and no doctor in my area can figure anything else out. They have told me I most likely have shrunken my stomach by now with how little I am eating so that has to do with some of the sick feeling. What have you done to gain the weight back? Foods? Workouts? 
    • Bronwyn W
      Symptom treatment of gluten exposure with Anti-inflammatories

      By Bronwyn W · Posted

      Thank you so much, Scott. I find it incredibly daunting navigating this celiac space and I find comfort in your wealth of knowledge. Thank you 🙏🏻
    • Scott Adams
      Make up. Is Mary Kay gluten-free?

      By Scott Adams · Posted

      I am not sure about that brand specifically, but this article may be helpful:  
×
×
  • Create New...