Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Kicking Myself.

miss vivian

By miss vivian
in Coping with Celiac Disease

Recommended Posts

miss vivian Newbie
miss vivian
Posted

I am so mad at myself, I actually started to cry. :(

I made these cookies that I thought were gluten free. They weren't They were organic. Yep, they had wheat in them....I ate one half of a bite of one, they were terrible anyway. Then I read the box again. How could I have been so careless?

I have NOT made one mistake in 3 months - and I have been so careful....

I feel okay - other than the fact that I'm depressed as hell. My biopsy came back normal after going gluten free for 5 weeks, so I imagine I will have to figure this as a set back and go from here.

I want to punch something right now I AM SO MAD at myself.

Just wanted to share my experience with you all.....

UGH!

Happy New Year and I hope that you're all doing ok.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AshleyS Newbie
AshleyS
Posted
I am so mad at myself, I actually started to cry. :(

I made these cookies that I thought were gluten free. They weren't They were organic. Yep, they had wheat in them....I ate one half of a bite of one, they were terrible anyway. Then I read the box again. How could I have been so careless?

I have NOT made one mistake in 3 months - and I have been so careful....

I feel okay - other than the fact that I'm depressed as hell. My biopsy came back normal after going gluten free for 5 weeks, so I imagine I will have to figure this as a set back and go from here.

I want to punch something right now I AM SO MAD at myself.

Just wanted to share my experience with you all.....

UGH!

One bite of a cookie isn't the end of the world. It most likely won't even have an effect on your body, so don't stress yourself out!

No point in being depressed and dwelling on something so ridiculous. We all have slip-ups. Just give the cookies away.

Happy New Year and I hope that you're all doing ok.

Mtndog Collaborator
Mtndog
Posted

I'm so sorry- but even after 4 years I STILL make mistakes. It's OK- we're human and celiac/gluten-free is a HUGE learning curve.

Just hope it doesn't make you feel badly.

miss vivian Newbie
miss vivian
Posted
  • Author

Thanks, to both of you for your responses.

I've been so good about not making mistakes - I just can't believe I did this.. I did it to myself!

I threw the cookies away. They were horrible, that's when I took a second look at the box because I was talking outloud, saying how crappy gluten free stuff is... then I saw what it said on the box. Made with organic wheat.

UGH!!! I had a meltdown. But I am going forward from today... I DO feel a slight burn in my stomach, like heartburn - that's what it makes me feel like....

Oh well, onward march...

Thanks again.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Forget the cookie mixes--make from scratch!

This recipe tastes just like regular Tollhouse: Open Original Shared Link (scroll down for the chocolate chip cookie recipe)

They use this flour mix: Open Original Shared Link

I use butter-flavor Crisco for the shortening, but plain shortening works just fine, as does coconut oil (which is solid at room temp). The brown rice flour she uses is very expensive, so I use half Bob's Red Mill (which is a bit gritty) and half white rice flour from the Chinese grocery (cheap and very fine). I didn't have dark brown sugar, and used light brown, and they were still yummy, so it's a very forgiving recipe!

It takes maybe 5 minutes longer than using a box mix, but makes twice as much. I usually double the recipe and keep the dough in the fridge and make a dozen or two at a time, for fresh cookies for the kids every day! I do the same thing with pancake batter. (But don't keep for more than 5 days unless you freeze it, because of the raw egg.)

EmmyLouWho? Newbie
EmmyLouWho?
Posted

You sound like me! I made a mistake this weekend. Actually I had Quaker Rice Cakes. Boy was that a mistake. The sad thing is I had JUST contacted the manufacturer to ask if any of their products were gluten-free (I had just bought their corn meal) and they told me they can

MELINE Enthusiast
MELINE
Posted

I understand you are feeling frustrated but when I make a mistake (in this year I 've had about 10) all the bad reaction go away in 1-2 days (with the help of sleep and water). Don't be so hard on your self! And this mistake definately didn't take you back to day 1. It is just a break and then you keep going. You are human...and yes you will have more gluten mistakes in your life.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


miss vivian Newbie
miss vivian
Posted
  • Author

THANK YOU for all of your stories and support.

I am hoping that they find a cure for us - not so that we can go crazy and eat whatever we want, but at least it can lessen the fear and dread of eating something bad by accident.

:)

MELINE Enthusiast
MELINE
Posted

I don't know how this will sound....Any way, I'll say it . I am not sad that I have celiac. I 've learned that I can have discipline and enjoy my food more and I am happy that it is not something serious / fatal.

I really enjoy it when people tell me "If I had to follow that diet, I couldn't do it. " That makes me proud. "Healthy" people think their life is food. They can't imagine them selves without pizza. That is pathetic.. I don't NEED pizza to live a normal life...! (to tell you the truth there is bad and there is worse. Gluten free is bad.Ok. And I have to follow a candida diet. You don't wanna know how limiteted THAT IS...I couldn't believe it when I first saw what I was supposed to eat. Consider your self lucky. You can have candies, fruits, rice, juices, coffee, sugar, potatos, nuts, cheese.....

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,684
    • Most Online (within 30 mins)
      7,748
    Betty Siebert
    Newest Member
    Betty Siebert
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Draft gluten-free ciders… can they be trusted ?

      By Scott Adams · Posted

      I'd go with a vodka tonic, but that's just me😉
    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.