Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Health History


Yoekie

Recommended Posts

Yoekie Apprentice

The more I'm reading about celiac, the more things pop up that I didn't know could be related. So I decided to make a sort of medical history. I'm going to a GI on friday, to get a second opinion and ask if I should be checked for celiac. Would it be a good idea to tell him all this?

early childhood: eczema, asthma, dust allergy (grew out of all of this)

at 14: food poisoning -> never been GI-symptomfree since + underweight

18: colonoscopy showed no abnormalities -> IBS?

around that age I got a lot of hypos, got off sugar for a while

21: chronic throatache and irritated gums

tried real hard to gain weight but when I did dust allergy came back?!

22: low immunity (had the flue despite vaccination), athlete's foot, allergy for medication (neomacrolids)

now 23: blood test because of fatigue shows low iron/anemia + gluten/lactose/egg intolerance

+ one of my sisters was glutenintolerant as a baby, had candida, now has cfs and fibro, has a lot of bowl trouble and hypos as well

Any theories of you guys on my symptoms are equally welcome!!!

my GI-symptoms are pretty vague: mild obstipation (but D since glutenfree) and severe bloating

I cannot eat certain dishes like spaghetti/lasagna without being real sick afterwards

tomatoes always give trouble (I think it's the acidity, have it with some fruits too)

when I eat a little more than I'm used to, I'm terribly bloated and wake up with a white swollen tongue

I don't know if there's any relation there but when the first 5 years after the foodpoisoning, I was so nauseated everyday that my tastebuds could only cope with tasteless food wich is ... carbs! I survived on bread/patotoes and rice (the GI at that time encouraged me to, because this would give me energy). I ate sugar and dairy as well but almost no meat, vegs and fruit. I know it sounds really unhealthy but it was the only way to make it to the next day. I could hardly drink water, so imagine what a torture eating was... Anyway... it really strikes me now that I have an intolerance for gluten/diary... is my unbalanced diet taking revenge? But I did it out of utter GI-symptoms-despair!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mother of Jibril Enthusiast

I've also been amazed at how many things from my childhood suddenly have an explanation :lol:

I don't know what country you live in, but in the US you only get about five minutes per doctor's appointment... not enough time to go through your medical history. It's best just to be direct and ask for the celiac panel. It's easy (a blood test) and not very expensive. If that turns up negative and you still want an endoscopy, then you might get/need to explain more.

curiousgeorge Rookie

I too thoguht it was the tomatos. After pizza my mouth would be raw. Must be the tomatos. Never liked pasta because I'd be starving an hour later. Something to do with the tomatos. Had allergy testing, fine with tomatos. It seems a lot of us blame tomatos LOL when its the wheat.

lizard00 Enthusiast

I am SOO glad you are getting a second opinion!

I would definitely take the list. That way you don't forget anything. Be sure to tell the doc that your sister had/has a problem with gluten, as celiac is hereditary. (Sounds like she still has a problem w/gluten)

I've had experiences with two GI docs. The first gave me a lot of time, and let me talk, but didn't really listen. The next one gave me a lot of time and actually listened. I actually got somewhere with him. So, make the doctor listen. It's your body, not theirs.

Yoekie Apprentice

thanks for your encouragements! To be honest, I'm quite nervous! This is the second time I'm going to a GI, luckily the same. I always end up telling way less than I prepared to (but I'm really shy too), so I guess that's why I end up making pages full of preparations :lol:

Yoekie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748

    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.