Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Guillian Barre?


curiousgeorge

Recommended Posts

curiousgeorge Rookie

Is there a link between guillian barre syndrome and celiac? I have a family history of guillian barre and of celiac and wondering if there is alink?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



henny Explorer

not that I know of.

also, as far as I know, GBS is not genetically inherited. of course, not a whole lot is known about GBS and what causes it yet, so this may turn out to be the case.

who in your family suffered with GBS? my sympathies to them and those close to them. it's a terrifying ordeal to go through....I hope they recovered well!

mslee Apprentice

I don't know if there is any other link besides that both are autoimmune. I believe I read they think there could be a link between G.B and Lupus...which is also autoimmune. I have recently learned that with one autoimmune condition there are usually others. My Dr thinks the celiac made my immune system go crazy and start attacking all systems...and that treating the celiac will allow my body to heal.

Don't panic or worry but it may be something to keep an eye on.

autoimmune conditions: Open Original Shared Link (info link)

curiousgeorge Rookie

It was my aunt. It was a long time ago and she was fine after being completely paralyzed for a good three months. She is old and frail now but not from that. She now has dementia issues and it had me wondering if GBS would be linked. I'm 99% sure my mother had celiac and I think its rampid in y mothers family.

  • 2 weeks later...
henn Newbie
Is there a link between guillian barre syndrome and celiac? I have a family history of guillian barre and of celiac and wondering if there is alink?

curious george,

I had Guillian Barre in my early 20's. I am now almost 50 and I have celiac disease. I was diagnosed 5 years ago with celiac, but suffered for years before being diagnosed. My episode with Guillian Barre was one I will never forget. I was also paralyzed for 3 months and had to learn to crawl again and finally to walk. I recovered completely, except for weak reflexes in my ankles and knees.

One of my doctors told me that research is being done to study the relationship between the 2 autoimmune syndromes. Because I have experience both, I tend to believe that there may be a connection.

I know of no one else in my family that had Gullian Barre or has been diagnosed with celiac.

henn

  • 1 year later...
gf Mel Newbie

I know this is an old post, but I am also looking for info linking GBS to Celiac. My nephew was just diagnosed as Celiac right around the time I was having issues with my thyroid. A quick look at my life showed that I am possibly Celiac (without the obvious stomach problems). I had a severe case of GBS when I was in college, and I also have/had several autoimmune disorders and diseases. Looking back, we are pretty sure that my grandfather was Celiac, and several of the suspected linked autoimmune disorders run in that side of the family. I found a few references to articles that discuss a possible link, but I haven't been able to read them yet. Since this is an old post, does anyone know of new info?

mommida Enthusiast

Hi gfMel,

I am so sorry I am running out of time to give you a proper informational post.

If I am remembering right, HLA gene + auto-immune search should find some articles with a possible GBS and Celiac connection.

I have to run out the door. :blink: I don't even know when I will have a chance to even look at the computer again. Possibly on Monday, so PM me if you further questions I might be able to help with.

(or Jegstar is a research junkie, and might look all this info up and post you some links!) :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Can't resist a challenge :P

only one case associated with celiac

Open Original Shared Link

No real HLA association

Open Original Shared Link

Open Original Shared Link

gf Mel Newbie

Can't resist a challenge :P

only one case associated with celiac

Open Original Shared Link

Thanks! I really appreciate it! I found that one, but I didn't know if there were any others. Considering the rarity of GBS, I am usually lucky to find anything. I started seeing Celiac symptoms 1-2 years after recovering from GBS, but I didn't start connecting the symptoms until February of this year. I didn't think to even try to connect celiac disease with GBS until this week. I am not sure if I even think there could be a connection, but, then, they know so little about GBS. I guess pretty much anything is possible.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,614
    • Most Online (within 30 mins)
      7,748

    Retired RN
    Newest Member
    Retired RN
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.