Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Guillian Barre?

curiousgeorge

By curiousgeorge
in Related Issues & Disorders

Recommended Posts

curiousgeorge Rookie
curiousgeorge
Posted

Is there a link between guillian barre syndrome and celiac? I have a family history of guillian barre and of celiac and wondering if there is alink?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


henny Explorer
henny
Posted

not that I know of.

also, as far as I know, GBS is not genetically inherited. of course, not a whole lot is known about GBS and what causes it yet, so this may turn out to be the case.

who in your family suffered with GBS? my sympathies to them and those close to them. it's a terrifying ordeal to go through....I hope they recovered well!

mslee Apprentice
mslee
Posted

I don't know if there is any other link besides that both are autoimmune. I believe I read they think there could be a link between G.B and Lupus...which is also autoimmune. I have recently learned that with one autoimmune condition there are usually others. My Dr thinks the celiac made my immune system go crazy and start attacking all systems...and that treating the celiac will allow my body to heal.

Don't panic or worry but it may be something to keep an eye on.

autoimmune conditions: Open Original Shared Link (info link)

curiousgeorge Rookie
curiousgeorge
Posted
  • Author

It was my aunt. It was a long time ago and she was fine after being completely paralyzed for a good three months. She is old and frail now but not from that. She now has dementia issues and it had me wondering if GBS would be linked. I'm 99% sure my mother had celiac and I think its rampid in y mothers family.

  • 2 weeks later...
henn Newbie
henn
Posted
Is there a link between guillian barre syndrome and celiac? I have a family history of guillian barre and of celiac and wondering if there is alink?

curious george,

I had Guillian Barre in my early 20's. I am now almost 50 and I have celiac disease. I was diagnosed 5 years ago with celiac, but suffered for years before being diagnosed. My episode with Guillian Barre was one I will never forget. I was also paralyzed for 3 months and had to learn to crawl again and finally to walk. I recovered completely, except for weak reflexes in my ankles and knees.

One of my doctors told me that research is being done to study the relationship between the 2 autoimmune syndromes. Because I have experience both, I tend to believe that there may be a connection.

I know of no one else in my family that had Gullian Barre or has been diagnosed with celiac.

henn

  • 1 year later...
gf Mel Newbie
gf Mel
Posted

I know this is an old post, but I am also looking for info linking GBS to Celiac. My nephew was just diagnosed as Celiac right around the time I was having issues with my thyroid. A quick look at my life showed that I am possibly Celiac (without the obvious stomach problems). I had a severe case of GBS when I was in college, and I also have/had several autoimmune disorders and diseases. Looking back, we are pretty sure that my grandfather was Celiac, and several of the suspected linked autoimmune disorders run in that side of the family. I found a few references to articles that discuss a possible link, but I haven't been able to read them yet. Since this is an old post, does anyone know of new info?

mommida Enthusiast
mommida
Posted

Hi gfMel,

I am so sorry I am running out of time to give you a proper informational post.

If I am remembering right, HLA gene + auto-immune search should find some articles with a possible GBS and Celiac connection.

I have to run out the door. :blink: I don't even know when I will have a chance to even look at the computer again. Possibly on Monday, so PM me if you further questions I might be able to help with.

(or Jegstar is a research junkie, and might look all this info up and post you some links!) :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jestgar Rising Star
Jestgar
Posted

Can't resist a challenge :P

only one case associated with celiac

Open Original Shared Link

No real HLA association

Open Original Shared Link

Open Original Shared Link

gf Mel Newbie
gf Mel
Posted

Can't resist a challenge :P

only one case associated with celiac

Open Original Shared Link

Thanks! I really appreciate it! I found that one, but I didn't know if there were any others. Considering the rarity of GBS, I am usually lucky to find anything. I started seeing Celiac symptoms 1-2 years after recovering from GBS, but I didn't start connecting the symptoms until February of this year. I didn't think to even try to connect celiac disease with GBS until this week. I am not sure if I even think there could be a connection, but, then, they know so little about GBS. I guess pretty much anything is possible.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley...
    2. MogwaiStripe
      - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease. Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/
    3. Scott Adams
      0

      Tahini Swirl Fudgy Brownies (Gluten-Free)

    4. Butch68
      - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too. is this everyone’s experience? Can I drink it? I get dermatitis herpetiformis and don’t get instant react...
    5. trents
      - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,211
    • Most Online (within 30 mins)
      7,748
    MogwaiStripe
    Newest Member
    MogwaiStripe
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Scott Adams
      Guinness, can you drink it?

      By Scott Adams · Posted

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Gluten Issues and Vitamin D

      By MogwaiStripe · Posted

      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Guinness, can you drink it?

      By Butch68 · Posted

      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By trents · Posted

      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Scott Adams · Posted

      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.