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Hormonal Changes?

LuvMoosic4life

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LuvMoosic4life Collaborator
LuvMoosic4life
Posted

I heard switching over to the gluten free diet can effect hormones in the body. I was just wondering if there is anyone else, particualry women, who has experienced this and how long does it take for the body to go back to "normal"???

I'm not sure if hormones are my issue, but I really don know what else it could be. I'v been gluten-free almost a year now and it seems all my PMS symptoms started up after going gluten-free. A lot of it has to do with cysts that alo popped up, but i never had bad PMS until I turned about 21, I'm turning 23 in march and am wondering if maybe this is just a change of getting older, or does it have to do with diet???

I just dont know what to do anymore because I am effected by this really bad for 3 weeks out of each month....sometimes I dont get a break at all!!!

I've posted about this before but I have literally been in tears lately b/c it is effecting my life so much. Especially my singing voice. Doctors just dont seem to understand how it can effect my singing, but it does. I was planning on laying vocals down for a song I'm recording, but now it is postponed b/c, well, my symptoms started up and my voice is just not there, its like I'm working twice as hard to try and produce the same sound, and it just feels like fatigue in my vocal chords, not to mention fatigue throuout my whole body. I even wrote a letter to "the doctors" TV show b/c I am so fed up. I've had hormone tests done, there was nothing there as far as I know, and am going back for a second ultrasound next week. I've just been wiped out.

and for the record I am gluten/soy/dairy/nighshade/red meat free. sodium well under 2000mg a day, no sugar, no artifical sweetners, no caffine, no alcohol and I eat tons of fruits and veggies, plenty of water. Nothing seems to help. Normally excericize makes me feel better, I'm a dedicated runner, but I've have taking off so many days lately b/c I just get so fatigued and feel light headed after working out sometimes. I know I'm not being glutened, if I was I'd be puking and going to the ER. I'm not a depressed person at all, but with all these symptoms I'm sure thats one thing a doc would think...I only get depressed when my body just decides to do whatever it wants!!!! I almost sometimes think the digestive problems while on gluten were better than dealing with this- thats how awefull I feel ........so upset right now :( I feel normal for 7 days a month...it seems I'm always trying to squeeze all my activities in in those 7 days, especially recoridng/music stuff, b/c once whatever this is hits, it just takes over...i can fight all I want, but it doesnt go away.

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Mother of Jibril Enthusiast
Mother of Jibril
Posted

I'm sorry you're going through such a hard time! :(

It's possible that this is not related to celiac disease at all. I think you could benefit from making an appointment with a good gynecologist.

My periods were getting progressively worse through my 20s... very heavy, lasting from 7-10 days (normal is 6-8), irregular (normal is every four weeks, mine were as often as every three weeks), and very painful. Sometimes I would get cramps in the middle of the night, only I wouldn't wake up until they were really BAD and I was near the point of throwing up.

I'm not advocating this as a solution, but once I had my first baby the pain really decreased! My other problems were caused by gluten intolerance and not having enough thyroid hormones.

LuvMoosic4life Collaborator
LuvMoosic4life
Posted
  • Author
I'm sorry you're going through such a hard time! :(

It's possible that this is not related to celiac disease at all. I think you could benefit from making an appointment with a good gynecologist.

My periods were getting progressively worse through my 20s... very heavy, lasting from 7-10 days (normal is 6-8), irregular (normal is every four weeks, mine were as often as every three weeks), and very painful. Sometimes I would get cramps in the middle of the night, only I wouldn't wake up until they were really BAD and I was near the point of throwing up.

I'm not advocating this as a solution, but once I had my first baby the pain really decreased! My other problems were caused by gluten intolerance and not having enough thyroid hormones.

thanks. I defintily plan on making another gyno appointment after my ultrasound next week regardless of the results. I'm thinking that maybe my estrogen and progesterone levels are out of wack b/c it can cause the symptoms I'm having (I think ). hopefully they can have a blood test or something before I go... They never really told me my blood work results after the last appt. so I assume everything was normal....but then knowing some doctors, things can go left un-talked about.

Indigo - Brighton -UK Newbie
Indigo - Brighton -UK
Posted

I went onto a completely coeliac diet (I have not managed to get a diagnosis but it definitely helps) in April and have only had one accident with gluten since. I have now had 4 incidents of night sweats and aching legs. I didnt think much of it until the fourth one as there are lots of viruses around but now I am wondering if it is hormonal and as I am 40 I was concerned I might be entering peri menopause.

The other interesting thing is my older sister was diagnosed coeliac 2 years ago and she has been seeing her doctor with the same symptoms. We both have some degree of osteoporosis so early menopause will not be good news.

I am so sensitive I can not even take a pain killer let alone HRT.

I am going to see my doctor next time it happens (it could still be viruses).

Our mum didnt hit menopause until her very late 50's.

ang1e0251 Contributor
ang1e0251
Posted

I'm sorry you are feeling so bad. I can feel for you because I had bad periods from the first one. No dr could ever find anything wrong with me. Going on birth control helped with the pain and duration some. I was always told childbirth would clear that up for me. Sorry, no. When I started cycling every 3 weeks & only had a few days a month with a "brain", I threw my hands up. What my gyno asked me to do was to go on continuous birth control if I didn't mind. Mind? I was willing to try anything. It did help and gave me my sanity back. Last year for monetary reasons, I had to back on traditional BC with a cycle each month. By then I was gluten-free, I hoped since so many other problems had disapeared with the diet, that would too. No such luck, in a few months, I was cycling back into the pain, no brain thing. My situation improved so I'm back on continuous Nuvaring again. Love it!! I'm still getting some craps and a little spotting but they are lessening each month, what a relief...

If your gyno can't find any reason for your cycles irregularities, you might discuss this option with her.

My other thought is, are you eating enough? Sounds like your diet is lean. Are you eating enough protein and omega oils? Also vitamin D is another one of those celiac's seem to be short of.

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      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
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