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Joint Pain


swbailey

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swbailey Apprentice

I am struggling with joint pain. I can have my ankles, feet, or knees hurt for an hour or for days. I was diagnosed with celiac disease in Novemeber, and have been gluten-free since then. I do not eat anything unless I am sure it is gluten-free. If it is questionable I don't eat it. I am taking a multi-vitamin and a subliquinal B-12 every day.

Has anyone found anything that would help the joint pain? This week has been extremely tough! And what exactly causes the joint pain?

Thank you so much for your support!

Wendy


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veggienft Rookie

You're probably taking ibuprofen or some other NSAID for the joint pain. Try stopping. It's a leap of faith, but I've seen it work.

.....screwy, take a pain killer for the pain ........which causes more pain .......which causes you to take the pain killer ......which.....

..

ravenwoodglass Mentor

Something that I found helpful was acupuncture combined with an OTC anti-inflammartory. I use St josephs baby asprin. For me the pain seems to come from inflammation and it did take a while to die down.

I also developed an intolerance to soy which causes the same type of pain for me but not the other gluten related issues. It helped a great deal when I figured that out.

*lee-lee* Enthusiast

i had joint pain (in my hips) for a year before i went gluten free. i tried so many things to make the pain stop and nothing ever really worked so eventually i gave up and just tried to live with the pain. it wasn't until 4+ months into the diet did i start to feel some relief. i would take Advil occasionally at night to help take the edge off but it was mostly the diet that healed me.

you may just need some more time for your body to heal. also you may want to double check and make sure you're not accidentally getting gluten somewhere. that will obviously hinder your recovery. (i was eating Nature Valley granola bars for about 6 weeks until i realized they had gluten - DUH!)

RiceGuy Collaborator

Aside from the healing time, and the B12 which you are already taking, I found magnesium to be fabulous for all sorts of muscle/joint/nerve pains. The other thing I found was that nightshade foods would give me horrible pains for weeks. From the reading I've done on it, I surmise that the toxic alkaloids in these plants where getting through the damaged intestinal wall, in far greater amounts than they normally would. But whatever the reason, not eating those has helped me quite a lot.

HTH

chatycady Explorer

Yes, I had joint pain and stiffness. I was tested for osteoporosis and failed the test miserably. So I asked for blood test and found I was vitamin D deficient. I started taking a double dose for a week or two and the joint pain and stiffness disappeared over time.

Get tested for both!

If that doesn't work, check out the "original" gluten free diet by Dr. Merrill Haas, which healed many, many celiacs. It is called the Specific Carbohydrate diet.

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    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
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