Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pain

swbailey

By swbailey
in Related Issues & Disorders

Recommended Posts

swbailey Apprentice
swbailey
Posted

I am struggling with joint pain. I can have my ankles, feet, or knees hurt for an hour or for days. I was diagnosed with celiac disease in Novemeber, and have been gluten-free since then. I do not eat anything unless I am sure it is gluten-free. If it is questionable I don't eat it. I am taking a multi-vitamin and a subliquinal B-12 every day.

Has anyone found anything that would help the joint pain? This week has been extremely tough! And what exactly causes the joint pain?

Thank you so much for your support!

Wendy

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


veggienft Rookie
veggienft
Posted

You're probably taking ibuprofen or some other NSAID for the joint pain. Try stopping. It's a leap of faith, but I've seen it work.

.....screwy, take a pain killer for the pain ........which causes more pain .......which causes you to take the pain killer ......which.....

..

ravenwoodglass Mentor
ravenwoodglass
Posted

Something that I found helpful was acupuncture combined with an OTC anti-inflammartory. I use St josephs baby asprin. For me the pain seems to come from inflammation and it did take a while to die down.

I also developed an intolerance to soy which causes the same type of pain for me but not the other gluten related issues. It helped a great deal when I figured that out.

*lee-lee* Enthusiast
*lee-lee*
Posted

i had joint pain (in my hips) for a year before i went gluten free. i tried so many things to make the pain stop and nothing ever really worked so eventually i gave up and just tried to live with the pain. it wasn't until 4+ months into the diet did i start to feel some relief. i would take Advil occasionally at night to help take the edge off but it was mostly the diet that healed me.

you may just need some more time for your body to heal. also you may want to double check and make sure you're not accidentally getting gluten somewhere. that will obviously hinder your recovery. (i was eating Nature Valley granola bars for about 6 weeks until i realized they had gluten - DUH!)

RiceGuy Collaborator
RiceGuy
Posted

Aside from the healing time, and the B12 which you are already taking, I found magnesium to be fabulous for all sorts of muscle/joint/nerve pains. The other thing I found was that nightshade foods would give me horrible pains for weeks. From the reading I've done on it, I surmise that the toxic alkaloids in these plants where getting through the damaged intestinal wall, in far greater amounts than they normally would. But whatever the reason, not eating those has helped me quite a lot.

HTH

chatycady Explorer
chatycady
Posted

Yes, I had joint pain and stiffness. I was tested for osteoporosis and failed the test miserably. So I asked for blood test and found I was vitamin D deficient. I started taking a double dose for a week or two and the joint pain and stiffness disappeared over time.

Get tested for both!

If that doesn't work, check out the "original" gluten free diet by Dr. Merrill Haas, which healed many, many celiacs. It is called the Specific Carbohydrate diet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,267
    • Most Online (within 30 mins)
      7,748
    Erica P
    Newest Member
    Erica P
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Kan-101

      By RMJ · Posted

      It is more likely code for “we think there really was a good response to the treatment, but it was small or in a small percent of subjects so it would take a large clinical trial to try to prove it.”
    • Dana0207
      Celiac symptoms

      By Dana0207 · Posted

      Thank you so much for your replies. Luckily the rash went away when I completely swore off gluten. It took several months but I have not had a flare in months. So a biopsy is no longer possible. The itch was terrible and apart from bleaching my skin the steroid lotions and potions did nothing. The Gliadin is for accidents and shall be a part of my travel kit from now on. This past exposure has made a me a little leery about eating anything that was not cooked in my kitchen or a dedicated gluten-free restaurant. As much as I used to love baked goods, I am cured and have become quite the gluten free baker to the point that friends and family forget that my cakes/cookies/and bread are not "real". I guess I will have to wait for the new blood test to come out to get confirmation but I have a suspicion that the rash was dermatitis herpetiformis.
    • Jmartes71
      Nateral remedies

      By Jmartes71 · Posted

      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      Is Caputo gluten free flour really free of gluten?

      By Scott Adams · Posted

      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      Celiac symptoms

      By Scott Adams · Posted

      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
×
×
  • Create New...