Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could This Be Celiac?

momtoo3

Recommended Posts

momtoo3 Newbie
momtoo3
Posted

My nephew just got diagnosed with celiac. My sister called me to let me know the symptoms she was reading about fit my kids and I too a T. Can anyone relate?

Son 1- diagnosed with tourettes syndome, ocd, sensory integration at age 3. Terrible canker sores in his mouth all the time. Very skinny, cant gain weight well.

Son 2- sleep apnea so bad had tonsils adenoids removed age 3. Diagnosed with asthma 4 years ago with severe sinus infections and pnemonia every year. His asthma is not controlled. NOthing helps. He has terrible sleep issues now which I have no idea why or what causes it. Mood swings, extremely picky with food, only likes meat. Constant cough. Has had 4 different allergic reactions in the past 4 years for unknown reasons. Rash develops, trouble breathing, went to ER once and had api pen one other time. Benedryl helps now that we know what to look for. Was allergy tested but found nothing.

Me-asthma my whole life. ADD, ocd, anxiety, constant cough, sleep issues, reflux.

Husband (I know he's not blood related but this fits him too) extreme anxiety whole life. Underweight whole life. Diarhea when he would eat or get anxious. That seems to be under control somewhat now with anxiety meds but still gets bouts of depression and anxiety. His daughter is the exact same way. Sickly skinny, trouble sleeping, upset stomach all the time.

My kids and I do not have the terrible diarhea and stomach issues though. This whole thing amazes me because I am actually hoping we test positive for this disease so we finally have some answers to whats been making us sick for so long.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


flourgirl Apprentice
flourgirl
Posted

Hi! Yes, any and all of these things COULD be Celiac related, or maybe not. The only way to know for sure is to get tested, best bet biopsy. Your other alternative is to try the gluten free diet on your own without diagnosis, but please make sure you give it time enough to positively identify what, if any symptoms can be attributed to your diet. Either way, I invite you to read everything you can to educate yourselves. Not only here in the forum but on websites (trustworthy ones) and books.

Because it's in the family, you have a greater chance of having it too. I would also look at other causes just to rule them out.

Personal note: I was ill through out my childhood and teen years as well as my adult life. Many allergies, infections, anemia, "ulcers" migraines...you name it. I believe most if not all of the illness I had is attributable to Celiac. Can't prove it...but that's my belief.

Good luck in your search for answers and in finding healing :)

lovegrov Collaborator
lovegrov
Posted

A number of those symptoms could be celiac, but also a number of other things. I'd get the celiac panel done on everybody.

richard

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,539
    • Most Online (within 30 mins)
      7,748
    dutch8s
    Newest Member
    dutch8s
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Supplements for those Diagnosed with Celiac Disease

      By knitty kitty · Posted

      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      Are Lindt chocolate balls gluten free?

      By RUKen · Posted

      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      Supplements for those Diagnosed with Celiac Disease

      By lmemsm · Posted

      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Supplements for those Diagnosed with Celiac Disease

      By Scatterbrain · Posted

      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.