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It's Official... My Mom Has Celiac!

Mother of Jibril

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Mother of Jibril Enthusiast
Mother of Jibril
Posted

Six months ago I was diagnosed with autoimmune hypothyroidism. I kept reading about a possible connection to gluten... and I was having abdominal pain... so after checking with an allergist I went on a gluten-free diet. Wow. What a HUGE difference it made. I wasn't able to get an accurate blood test, but the DQ8 gene, a couple of other autoimmune disorders, and a positive response to the diet was enough evidence to make me stick with it.

Anyway... when I saw my parents over the holidays they certainly noticed the change in my weight (I've lost about 30 pounds) and my skin (which hasn't looked this good since I hit puberty!). I was talking with my mom and I told her she really should get tested for celiac disease. And she listened! :lol: The blood test came back positive, so now she has an appointment to have her digestive system examined with a pill cam.

My mom is 61 years old and has been sick ever since I can remember. Over the last thirty years she has been diagnosed with diverticulitis, IBS, depression, diabetes (which she's now taking insulin for), fibromyalgia, chronic fatigue, endometriosis (hysterectomy), arthritis (knee replacement), neuropathy, and migraine headaches. I hope she's able to adapt to the gluten-free diet and stick with it!!! She really deserves to feel better.

Keeping in mind that my mom has a lot of brain fog, can anyone recommend some good books or websites to help older adults? I'm going to send her my copy of "Celiac Disease: A Guide to Living with Gluten Intolerance," but I know she could use some tools that are really easy to understand and follow. She's a smart woman... but she has some mixed-up ideas about what a "healthy" diet means (thanks to the low-fat craze). I wish I had time to go up there and cook for a few weeks! :(

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rinne Apprentice
rinne
Posted

Good for you for figuring it out and helping your Mom. :)

This site? :)

curiousgeorge Rookie
curiousgeorge
Posted

oh that's GREAT! I'm pretty much sure my mother had it too but by the time I figured it out it was, alas, too late.

I hope she takes it to heart! It also gives you confirmation too!

caek-is-a-lie Explorer
caek-is-a-lie
Posted

Wow, your mom sounds like my mom, except her blood test was negative 10 years ago. Of course, it was just "below" a certain level, not necessarily zero. They never told us if we were actually at zero antibodies or not.

So she's 70 and I keep encouraging her to go gluten free anyway, but she won't, I suspect. It worries me because she will actually stop eating to stop feeling sick. If I lived closer, I'd just go over for a week and do all the cooking and make her see what a difference it makes. No more staying home for days because she can't leave the house with all the D she gets.

Oh well. :(

Kaycee Collaborator
Kaycee
Posted

Your mums sound so much like my mum.

She has been ill for years, mainly just with stomach issues, and I guess high blood pressure and high cholesterol. She went to the doctor just before Christmas thinking she had what I had, coeliac. But the doctor didn't run the tests, instead he blamed it on her gall bladder and the thing that got me was that the Doctor said coeliac is not hereditary. Well those were mums words.

So mum has been low fat, she still has stomach issues. She is up here, well in this area for a few weeks. I can't convince them to go further, as dad is a hurdle in himself to get past. He did say once, it would be too hard for mum to change to a gluten free diet, but yet she embraces a lower fat diet. Her reading of labels even at 77 has never been a problem. What do you do?

Cathy

rinne Apprentice
rinne
Posted
Wow, your mom sounds like my mom, except her blood test was negative 10 years ago. Of course, it was just "below" a certain level, not necessarily zero. They never told us if we were actually at zero antibodies or not.

So she's 70 and I keep encouraging her to go gluten free anyway, but she won't, I suspect. It worries me because she will actually stop eating to stop feeling sick. If I lived closer, I'd just go over for a week and do all the cooking and make her see what a difference it makes. No more staying home for days because she can't leave the house with all the D she gets.

Oh well. :(

And mine too. :(

nora-n Rookie
nora-n
Posted

My mom has the D too and I have told her to stop eating all that bread lots of times. She is blood type 0 and knows about that type of diet, and she should eat maninly eat vegetables and meat, she does know how to do that, and that is the way I cook, but she craves bread, and lots of it....I wish she would listen to other people.

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    • Jmartes71
      My only proof

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      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
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