Gluten Free: I Am Missing Something....

[Debbie16]

Hello. My son is just over two. After a negative biopsy but some fishy bloodwork, we have been told to treat our son as if he has celiac's even though it is not a for sure thing. That is fine becuase if he even looks at gluten he gets sick. He has been "gluten free" for months but i think i am missing something because he still is not back to normal (although much better). He gets no direct source of gluten but i am not sure how far i have to go in determining if something is safe to use. For instance, seasonings? can i use the big bottle of taco seasoning from Costco? There is no gluten listed but it does not say Gluten Free. My son cant have dairy but there are vegetable based butter like spreads, again, no gluten listed but doesnt say gluten free? I am just not sure where he is being exposed. I am confident in our cooking procedures and kitchen set up. I appreciate any help.

ALso, does anyone have a child with Eosinophilia? they are thinking my son may have that in addition or instead since he seems to have a problem with any food he eats more than a few weeks straight. I dont know a lot about it. Is it commonly tied to celiacs?

Thank you in advance,

Debbie

[RiceGuy]

It could be that he simply needs more time to heal. However, does he get symptoms that seem to come out of nowhere, like he ate something he shouldn't have? I don't know about taco seasoning containing gluten, but I do know that red pepper is often in that sort of stuff. Many find that nightshades are a problem. Also, have you tried eliminating other top allergens, like soy, corn, nuts, eggs, etc?

[Debbie16]

  RiceGuy said:

It could be that he simply needs more time to heal. However, does he get symptoms that seem to come out of nowhere, like he ate something he shouldn't have? I don't know about taco seasoning containing gluten, but I do know that red pepper is often in that sort of stuff. Many find that nightshades are a problem. Also, have you tried eliminating other top allergens, like soy, corn, nuts, eggs, etc?

Yes, he is actually egg, gluten, oats, buckwheat, soy, dairy, rice, nut, tomatoe free (to name a few) they all bother him.

and also to clear up, he has been pretty much gluten free since last july. i only started worrying about cross contamination in december because of the diagnosis.... from july to about thanksgiving he was doing so well with spurts here and there and then december he was just a mess... we are seeing new doctors so who knows...

[RiceGuy]

One other thought, is the possibility of a candida overgrowth. Leaky gut and candida seem to go hand-in-hand, and this can cause intolerances to all sorts of foods. In my experience, caprylic acid capsules worked great. Of course, you'd also need to avoid all sugars, yeasts (including yeast breads), vinegars (including ketchup), and fruit. Improvement should be seen in a few weeks, I think.

If I think of anything else, I'll be sure to mention it. Hopefully, others will have some ideas for you to try.