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Gluten Ataxia

UnhappyCoeliac

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UnhappyCoeliac Enthusiast
UnhappyCoeliac
Posted

I don't have ataxia, but I fear I have had symptoms of it 2-3 times while not being gluten free. I am now gluten three heh two days (longest so far)

And im simply worrying if I had mild ataxia or gluten ataxia was ever going to come it back will it simply go away now?

Hope someone can help this really scared the hell out of me into going gluten free.

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GFinDC Veteran
GFinDC
Posted
I don't have ataxia, but I fear I have had symptoms of it 2-3 times while not being gluten free. I am now gluten three heh two days (longest so far)

And im simply worrying if I had mild ataxia or gluten ataxia was ever going to come it back will it simply go away now?

Hope someone can help this really scared the hell out of me into going gluten free.

Open Original Shared Link

Good for you going gluten-free! It is not as hard as it seems at first. Just takes a while to learn the ropes as they say.

If you can stay off the gluten the antibodies should diminish over time. So your symptoms may not go away but they wouldn't in theory get worse either. That is if they are caused by gluten in the first place.

UnhappyCoeliac Enthusiast
UnhappyCoeliac
Posted
  • Author

Ive read that article perhaps I am being paranoid I am not sure 3 days gluten free now

ang1e0251 Contributor
ang1e0251
Posted

So why is it you don't want to be gluten-free?

GFinDC Veteran
GFinDC
Posted
Ive read that article perhaps I am being paranoid I am not sure 3 days gluten free now

Well, that is not a bad thing! At the beginning of the diet there are lots of things to learn, and lots of unknowns. Is this food safe? Is that ingredient safe? Is this food cross contaminated? You can't usually tell just by looking at the food. Being "paranoid" about the food is not a bad thing if it helps you learn. IF you are having symptoms of gluten ataxia then it probably will help a lot to be strictly gluten-free. It is not an instant cure of course, it takes time for things to improve and to find an eating plan that works for your body. Simple foods made at home with minimal spices are a good idea to start out. And some B and D supplements might help after you confirm they are gluten-free. Extra fiber might be helpful also. Pysillium husks work well for me. And oats but some people have problems with oats.

UnhappyCoeliac Enthusiast
UnhappyCoeliac
Posted
  • Author

thanks gluten-free

Over the week I was away and had a heavy social schedule with friends I expected neuro symptoms simply because they pop up when sleep depraved but I got none was very happy

My total hours of sleep in three days was 6 hrs and had no balance issues. I was boating, drinking, and pushing boats on to trailers, swimming canoeing fairly active

Basically if my body decided to go retarded and make me lose my balance i would have been screwed but thank god nothing happen. I can only put the no symptoms too down to being gluten free

GFinDC Veteran
GFinDC
Posted

Sounds like a fun time on the water UnhappyC!

I had sinus infections on and off for years before going gluten-free, and often had loss of balance. Most of that cleared up for me after I had been gluten-free a while and learned how to avoid the stuff. I had another round of losing balance recently but it was due to high blood pressure meds HCTZ (hydroclorathiazide) I was taking. Stopped that stuff and now I am doing better again. HCTZ tends to throw your potassium levels off and that can cause lots of different symptoms.

I have problems sleeping if I eat dairy. It really charges me up and I can't get to sleep. They say the dairy protein casein is similar to the gluten proteins. So there may be a possibility of a cross reaction. Sometimes autism patients are put on diets restricting gluten and dairy. They also say the gluten and casein proteins can cross the brain membrane and cause opioid like reactions. So some people think that can cause the withdrawal type feelings that some people experience when going gluten-free.

You might want to read up on DPP-IV supplements. They may help you some with gluten and casein digestion.

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