Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Milk Help


jmeds77

Recommended Posts

jmeds77 Rookie

Hey!

I know many of you all deal with gluten-free and CF diets. I have a few clarification questions ...

My two kiddos have been gluten-free with some improvemet but we also suspect a lactose/dairy problem. Their poos are still very soft and loose.

What is the difference between Casein Free/Lactose Free/Dairy Free/Milk Free, etc.??????

I know my dad and brother (also celiacs) have problems wtih what they refer to as lactose. Is it really a casein problem.

Do we add being lactose free or casein free?

I just don't know the difference. One is sugar and one is protein? And which one do we need to be?

Is casein free automatically lactose free or vice versa?

Thanks for your help.

Jaime


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sugarsue Enthusiast

I found this exerpt to be helpful in explaining it..... My daughters are casein free as much as we can in hopes that it will help with their behavior issues. So far, it seems to be helping and my 6 yr old who is super gluten sensitive seems to be doing very well since we cut out the casein.....

Casein is the principal protein found in fresh cow

Mother of Jibril Enthusiast

Sugarsue gave you a great definition, but I just wanted to add a couple of things...

Lactose is the sugar in milk. Lactose intolerance is very common. People with celiac disease can have temporary lactose intolerance because the tips of the villi are where lactase (the enzyme to digest lactose) is made. Sometimes you can get around this by drinking Lactaid or lactose-free milk. However... milk proteins like casein are common allergens that are hard on the digestive system (and immune system), so you might find it very helpful to give your body a break by avoiding all dairy products for a while.

Foods like yogurt and cheese have low levels of lactose, so some people with permanent lactose intolerance can handle them (even if they can't handle regular milk).

People who are sensitive to casein need to avoid all cow's milk dairy products. Some can tolerate other kinds of milk (goat, sheep) because the proteins are slightly different. Some can't. You just have to keep track of your diet and symptoms and see what works for you. :)

BarbaQ Rookie

Is it true that clarified butter (Ghee) is casein free?

I have tried to find information on this. Apparently butter is also low in lactose and can be tolerated by some.

Barb

Mother of Jibril Enthusiast

I have read that ghee is considered casein free, but... IMO, there's a strong possibility of cross-contamination. Whether you can use it or not depends on how sensitive you are.

sugarsue Enthusiast
Is it true that clarified butter (Ghee) is casein free?

I have tried to find information on this. Apparently butter is also low in lactose and can be tolerated by some.

Barb

My Mom swears by Ghee and believes that it is casein free. I have not tried it yet. We use Smart Balance Organic, the dairy free one, not sure what it is called exactly and it seems the most like butter from everything we've tried.

s

Lovey25 Rookie
Hey!

I know many of you all deal with gluten-free and CF diets. I have a few clarification questions ...

My two kiddos have been gluten-free with some improvemet but we also suspect a lactose/dairy problem. Their poos are still very soft and loose.

What is the difference between Casein Free/Lactose Free/Dairy Free/Milk Free, etc.??????

I know my dad and brother (also celiacs) have problems wtih what they refer to as lactose. Is it really a casein problem.

Do we add being lactose free or casein free?

I just don't know the difference. One is sugar and one is protein? And which one do we need to be?

Is casein free automatically lactose free or vice versa?

Thanks for your help.

Jaime

Something I'll add to the already great info on Lactose/Dairy/Casein is that I have heard Casein described as a glue-like substance, which causes the overgrowth of mucus. So that's why some people have a problem with Casein -- because it causes alot of mucus to be formed. And if you already have an inflammation problem, Casein definitely makes it worse!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    2. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    3. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.