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Psychological Withdrawals


arajput7777

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arajput7777 Newbie

I am new to blogging, this being my first time. has anyone experienced psychological withdrawal's after eliminating certain gluten foods? I have an intolerance for sugar too, and the food I experienced having a major panic attack with, where I felt like I was going to die, was Cinnamon Toast Crunch cereal-- which BTW, should not even be sold to people. First the physical exhaustion, then 2 days later, the panic set in full force.

My fear was so intense, that I wanted to go to the hospital just to feel "safe."

I am reaching out because I simply cannot go through this alone....

Any feedback would be appreciated:)

Mirasol~


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YoloGx Rookie

How awful! But not entirely unexpected... Even the Vikings used moldy bread to get themselves into a crazed state to go on a rampage. The opiates go directly into our brains if we have celiac. For many of us however its not just certain gluten foods. Its any and all gluten, even just a speck of it!

I have noticed when I have gotten glutened by others I can easily go into a rage, whether expressed overtly or not. Partly justifiable of course, however I have been known to go over the top. Normally I am very even tempered and it takes a lot to rock me. Even if I just somehow have inadvertently CC'd (cross contamination from gluten) myself, I notice one of my last symptoms before it finally clears is anxiety and then depression.

I used to hear and see people who weren't there on occasion. My understanding is that 80% of people with schizophrenia have celiac or severe gluten intolerance.

You are not alone in your reaction. I wouldn't want to purposely test out the possibility of eating a cereal with gluten in it these days. I would be very afraid of the results at this point, D plus more likely to come down with some illness, sore elbows, hips, low back and neck, plus anxiety plus depression at the very least, plus canker sores, eczema, inflamed kidney etc.

The going nuts part isn't nice. It is one of the reasons I try to detox with herbs etc. after the D is gone, assuming D appeared. If you can go out and walk or even better run etc. its very healing. Drink lots of water. The main thing to realize is that its a passing state and try not to get caught up in it with too much fear.

Support from others helps however you can get it. Find people who you can talk to. Writing here on celiac.com too is a godsend since you will get support. If you need to email me, do.

It also helps to do some meditation, writing or art if you are up to it.

Meanwhile you should find out more about celiac to see if you have it or just gluten intolerance, a far less demanding condition.

Bea

LadyCyclist87 Apprentice
I am new to blogging, this being my first time. has anyone experienced psychological withdrawal's after eliminating certain gluten foods? I have an intolerance for sugar too, and the food I experienced having a major panic attack with, where I felt like I was going to die, was Cinnamon Toast Crunch cereal-- which BTW, should not even be sold to people. First the physical exhaustion, then 2 days later, the panic set in full force.

My fear was so intense, that I wanted to go to the hospital just to feel "safe."

I am reaching out because I simply cannot go through this alone....

Any feedback would be appreciated:)

Mirasol~

Oh my goodness yes...you are NOT alone!!

I do get panic attacks, but whether it is a direct result of being glutened or withdrawal symptoms is questionable...however, I think it could be both. I do lose inability to concentrate on things that need to get done, I become very irritable, irrationally anxious, etc. I literally drive myself up the walls during this time and ALWAYS have this intense desire for anything that I cannot eat. I feel like I'll go out of my mind if I can't get it.

Don't be afraid to reach out for help if you feel you're having a hard time dealing with your diagnosis. I have, and if you find the right person with an open mind, it really does help. We also need to remember that it will be so much better for us in the long run keeping our bodies healthy...

Good luck with your symptoms!

LadyCyclist87 Apprentice

Oh -- of course, if you need (additional) support, feel free to send me a private message (PM). I love meeting new people and helping out. :-)

arajput7777 Newbie
Oh -- of course, if you need (additional) support, feel free to send me a private message (PM). I love meeting new people and helping out. :-)

How do I send you a PM? I am not even sure if I'm writing you now, to correct location that is:) This blogging stuff is all so new to me! I ended up sending my message to myself before I got it to go to the forum--ah:)

Mirasol

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    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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