Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lactose Intolerant Too?


skyepie

Recommended Posts

skyepie Newbie

Ugh, can I also be lactose intolerant - can that rear it's ugly head after 1 1/2 years?

In July 07 when I was diagnosed with celiac, my GI doc tested me for gluten as well as lactose intolerance. The results were definitely gluten, which was confirmed with the endoscopy & biopsy. I had no problems with dairy at the time.

I think I know the answer, as I know many celiacs also are lactose intolerant or have other allergies or intolerances. But recently I've been feeling like I've been glutened a lot. I know that is not the case because I've been extremely careful in choosing my foods. After lunch today (cheese enchiladas), I think my lactose fears are definitely true. I'm doubled in pain, bloating, and even feel kind of dizzy/brain foggy - much like after my daily lattes.

Now I'm fearful that I'll continue to develop more and more intolerances............


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ang1e0251 Contributor

Don't get ahead of yourself worrying about other allergies yet. It sounds like you have a good reason to suspect dairy so go ahead and cut it out. You will know how you feel soon. Then after you've been dairy free for awhile, challenge it by eating some dairy again. The reaction should be strong if that is your problem. Keep a diary for awhile to track how you're feeling with what you eat. That can help pinpoint problems. Let us know how it works for you.

Gfresh404 Enthusiast
Ugh, can I also be lactose intolerant - can that rear it's ugly head after 1 1/2 years?

In July 07 when I was diagnosed with celiac, my GI doc tested me for gluten as well as lactose intolerance. The results were definitely gluten, which was confirmed with the endoscopy & biopsy. I had no problems with dairy at the time.

I think I know the answer, as I know many celiacs also are lactose intolerant or have other allergies or intolerances. But recently I've been feeling like I've been glutened a lot. I know that is not the case because I've been extremely careful in choosing my foods. After lunch today (cheese enchiladas), I think my lactose fears are definitely true. I'm doubled in pain, bloating, and even feel kind of dizzy/brain foggy - much like after my daily lattes.

Now I'm fearful that I'll continue to develop more and more intolerances............

I understand your fears but I agree, don't get ahead of yourself. Lactose intolerance is very common with celiac disease, you have nothing to worry about. It occurs because of the damage that gluten does to your gut. You lose the enzyme lactase (digests lactose) for a while, but if you remain gluten free for long enough, your gut will heal and you will be able to have dairy again! :D Just give it some time.

chatycady Explorer

Colby cheese, swiss cheese and cheddar cheese have less lactose in them. You may be okay to eat these.

Or you can always make your own 24 hour yogurt that is totally lactose free. Many of us celiacs make our own.

You can find the recipe at www.scdiet.org

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,741
    • Most Online (within 30 mins)
      7,748

    Kaz 1
    Newest Member
    Kaz 1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.