Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Your Parents Think You Are Crazy?


Lexi

Recommended Posts

Lexi Enthusiast

Wow - I am so frustrated! My parents just spent the weekend with my family because I was very sick, and they were trying to help out with my kids. Oh, what a big help that was! My Parents kept letting me know that they basically think I am crazy because I insist on using my own set of pans and utensils. Then my Mom will always try to cook something for me that I can't have, and I have to keep explaining EVERYTHING! They are supportive of me with Celiac Disease in itself, but they just can't seem to get all the crazy things that go along with it. I also have Candida, and they think I need to go to more Doctors to get second opinions because they have never heard of such a crazy thing. I wish there was some kind of class that family members could attend to understand the life of a Celiac. The hardest part is that I end up having a miserable time when they come to visit now. Anyone else go through this???


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



oceangirl Collaborator

Yup!

My older parents can't grasp the extenuating circumstances, either. Frustrating- I don't even try anymore.

It's hard to imagine walking in someone else's moccasins, I guess...

lisa

pennypicker Newbie

Absolutely.

I saw my parents for the first time post-Dx right around Christmas. They didn't intend to be rude, but because of a total lack of understanding, it appeared that way. They were most confused about cc and poorly labeled products. Educating some people, especially people I've known for a long time, is very difficult for me to do. I think it's because I used to be able to eat anything I wanted with them, and now I can't and it doesn't make sense to them. Counter intuitively, people I've met post-Dx seem to be more accepting, because this is the only way they've ever seen me.

NorthernElf Enthusiast

Yeah, I guess my folks go both ways too - supportive and then...not so much.

A couple of visits ago (they live 6 hours away) my mom bough gluten-free pasta and chips and such for me, which I thought was nice. At Christmas she had a lasagna made for us to eat when we arrived - NOT gluten-free. Very frustrating since we got there at 7 and I was hungry...but I do travel with my own food. Our last meal while I was there was store bought chicken wings (not gluten-free) and frozen fries. I sat there with my salad and toasted gluten-free bread. My mom actually said I was making her feel guilty. Oh, I so bit my tongue (wanted to say that she should !!). The sad part - I think the comment was actually more about me eating a healthy meal versus a fatty one, nothing to do with gluten. <_<

I'm spending a week with my inlaws in March - I'm bringing a lot of my own food and there is a Whole Foods near them so I will be shopping there ! My MIL is actually better with the diet than my mother.

I just think that they have fed me gluten all my life and don't get that I can't have it now - I don't live near them. My folks are also always on diets (weight loss) & I think they don't get a NECESASSARY diet at all.

FWIW, my DH was upset at my folks and their lack of support - he would never say anything directly to them (neither did I). I figure they'll get it eventually because I always eat gluten-free. DH certainly gets it - he knows what I'm like when I'm sick !!!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,761
    • Most Online (within 30 mins)
      7,748

    Manuel
    Newest Member
    Manuel
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect.  These three B vitamins together work way better than those over the counter pain relievers.  Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed.  Thiamine will also help the nausea. Interesting Reading... Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/#:~:text=Some of these processes include,Analgesics
    • knitty kitty
      @stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements?   Weight loss and failure to thrive are two symptoms of thiamine insufficiency.  Thiamine deficiency symptoms are not recognized as such by doctors.   I experienced similar symptoms when I became malnourished.  Thiamine deficiency symptoms can become worse quickly, and can affect one emotionally and mentally.  Although blood tests for thiamine aren't accurate, do have your daughter checked for nutritional deficiencies.  Thiamine B 1 works with the other B vitamins and magnesium.  Thiamine and Niacin B 3 help improve Gerd.  All the B vitamins are frequently low due to malabsorption.  Vitamin D will help calm the immune system.  Thiamine helps the immune system fight off viruses like those tick borne illnesses.   Thiamine Mononitrate, which is in many vitamin supplements, is not bioavailable.  I was taking a multivitamin containing thiamine mononitrate and still became deficient in thiamine. Thiamine in the form Benfotiamine has been shown to promote intestinal healing.  A form called TTFD (tetrahydrofurfuryl disulfide) is also excellent for correcting thiamine deficiency.  A combination of Thiamine, Cobalamine B12, and Pyridoxine B 6 has analgesic properties.  I take it for back pain.   Keep us posted on your progress! Interesting Reading... The importance of thiamine (vitamin B1) in humans https://pmc.ncbi.nlm.nih.gov/articles/PMC10568373/#:~:text=Thiamine absorption in the jejunum,system [51–53].
    • trents
      Has prednisone or some other systemic steroid been tried that might quiet her immune system down for a while? I have two acquaintances with Lyme's disease. It is a wicked condition that has long fingers.
    • stephaniekl
      We have.  She is so limited as to what she can eat.  She has a nutritionist, but they are even at a loss.  Right now, her pain is so significant that she can only eat 5-10 bites a meal.   We just got some labs back today and she is hypoglycemia, anemic and her immune system is shot.  She also is positive for 3 tickborne illnesses.  Thanks for your help! 
    • RMJ
      A much better suggestion than that of the new doctor!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.