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Symptoms Of Being Glutened

Defkid

By Defkid
in Coping with Celiac Disease

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Defkid Rookie
Defkid
Posted

Hi,

Just wondering how immediate or delayed people's reactions to gluten are, as well the severity.

I went on a gluten-free diet for 3 months, after years of coping with several gluten-sensitive related symptoms. The diet helped in countless ways - I want to get tested, so I decided to try a gluten challenge - some symptoms came back, but they weren't as severe. For the most part, I just have really bad headaches.

I'm starting to doubt whether gluten really is the problem because I have no serious symptoms.

I find this strange because my health improved so much when I was following the gluten-free diet and I would have immediate reatiions to being glutened.

Thanks

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cat3883 Explorer
cat3883
Posted

How long have you been doing the gluten challenge? When I get glutened the first thing I get is a headache then the fatigue and mood changes come. I never really had the stomach problems that alot of people had. My problems were mostly neurological,

Defkid Rookie
Defkid
Posted
  • Author

I've been doing it for a week now, at first I would get terrible headaches all the time (they've reduced), my symptoms are actually pretty similar to yours, mood changes, fatigue/lethargy, feeling loopy, and foggy but it's no where near as bad as before I went on a gluten-free diet. i was gluten-free for nearly 4 months..

Have you been diagnosed?

How long have you been doing the gluten challenge? When I get glutened the first thing I get is a headache then the fatigue and mood changes come. I never really had the stomach problems that alot of people had. My problems were mostly neurological,
SGWhiskers Collaborator
SGWhiskers
Posted

I'm glad you posted. I've read posts saying that people's reactions get stronger for the first months/years after diagnosis, then may almost dissappear when they have been gluten-free for a long time. My pattern seems to be different, more like yours. I've been gluten-free for almost six months after positive blood tests and Marsh 3c endoscopy results. I seem to be extremely sensitive to reacting to invisible amounts of gluten, but the reaction is weaker and weaker every time. My reaction is almost exclusively neurologic both before gluten-free and now.

Day of glutening: tingly scalp and start of headache.

Night: headache, vertigo, lethargy

Next day: the headache gets worse and the confusion/stupidity starts. clumsiness/pain/occasional slurring/double vision/exhaustion/reflux/cramps/neuralgia/twitching muscles.

Night: well, it's 4:30 right now, and I can't think.

Day 4-5 ish: Super Pooper. (Not D, just happy poop). Then the world gets a increasingly better for the next two weeks until I screw up again. I've been tempted to take a laxative to see if getting to super pooper day sooner helps get rid of the glutening faster.

Hope the weeks of glutening pass easily and quickly for you while you await your testing dates.

Defkid Rookie
Defkid
Posted
  • Author

Hi -

My symptoms are very similar to yours - the headaches are horrible - sometimes it feels like my head's on fire, and I get this throbbing pain in my ears.

I totally sympathise with the confusion and stupidity. I'm so glad you said clumsiness, I've noticed it in myself when I'm glutened, but feel ridiculous trying to explain this to people, as they think I'm crazy -

They don't understand how food can make me clumsy...It's like I'm drunk 24/7!

Thanks for your reply -

I'm glad you posted. I've read posts saying that people's reactions get stronger for the first months/years after diagnosis, then may almost dissappear when they have been gluten-free for a long time. My pattern seems to be different, more like yours. I've been gluten-free for almost six months after positive blood tests and Marsh 3c endoscopy results. I seem to be extremely sensitive to reacting to invisible amounts of gluten, but the reaction is weaker and weaker every time. My reaction is almost exclusively neurologic both before gluten-free and now.

Day of glutening: tingly scalp and start of headache.

Night: headache, vertigo, lethargy

Next day: the headache gets worse and the confusion/stupidity starts. clumsiness/pain/occasional slurring/double vision/exhaustion/reflux/cramps/neuralgia/twitching muscles.

Night: well, it's 4:30 right now, and I can't think.

Day 4-5 ish: Super Pooper. (Not D, just happy poop). Then the world gets a increasingly better for the next two weeks until I screw up again. I've been tempted to take a laxative to see if getting to super pooper day sooner helps get rid of the glutening faster.

Hope the weeks of glutening pass easily and quickly for you while you await your testing dates.

cat3883 Explorer
cat3883
Posted

Yes I was diagnosed October 15, 2008. I consider it my "other birthday" as that is the beginning of a feel good life!!

My bloodwork was positive. After doing the biopsy my GI said I had a severe case of Celiac. I did have some bloating but other than that all my symptoms were neurological. I am still on anti depressants because my doctor said it takes the brain longer to heal. He said I should be able to go off my meds one year from diagnosis.

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