Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tsh 3rd Generation?

Crystal Brown

Recommended Posts

Crystal Brown Rookie
Crystal Brown
Posted

My Mom had the Celiac blood panel. Or so I thought. When looking at her results, the only thing on the piece of paper is:

TSH 3rd Generation 11305

Diagnoses: 1 degree - 244.9 degrees = Hypothyroidism

.... That's it.

Now, I did do a search within this forum and on Google, however I am wondering if doctors use different terminology and just lump it under one name?

Or did the doctor forget half the tests?

Any advice would be greatly appreciated, as usual :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mother of Jibril Enthusiast
Mother of Jibril
Posted

Wow. TSH is a test for thyroid disorders, not celiac :blink:

So... now your mom knows that she's hypothyroid (which needs to be treated with replacement thyroid hormones)... all the more reason to test for celiac disease! Here are the tests:

Total IgA

Anti-gliaden IgA and IgG

Endomesial antibodies (EMA)

Tissue transglutaminase (ttg)

Crystal Brown Rookie
Crystal Brown
Posted
  • Author
Wow. TSH is a test for thyroid disorders, not celiac :blink:

So... now your mom knows that she's hypothyroid (which needs to be treated with replacement thyroid hormones)... all the more reason to test for celiac disease! Here are the tests:

Total IgA

Anti-gliaden IgA and IgG

Endomesial antibodies (EMA)

Tissue transglutaminase (ttg)

LOL!!!!!!!!! I thought it didn't look right :)

Oh happy days! The doctor wrote on a piece of paper, check thyroid in 3 months. <---- that was it.

Great, I'm going to have a field day trying to get my Mom to have the right tests. The one "Celiac" blood test cost her $197.50.. I just say this because she makes a big hooplah about how much it cost.. She was wondering, being that her insurance doesn't cover the blood tests, are there any suggestions for her not having to pay "an arm and a leg" for the additional tests?

Any suggestions would be greatly appreciated :D

Thank you!

happygirl Collaborator
happygirl
Posted

Trying the diet without testing is free.

Crystal Brown Rookie
Crystal Brown
Posted
  • Author
Trying the diet without testing is free.

Good point. I have a feeling it will be even harder to convince her to do that. She doesn't have the classic symptoms, therefore she sees no reason to investigate this whole "Celiac" business. She does her best to support me, but doesn't want to incur the expense to find out if she has it. My Dad is the same way. She swears he gave it to me and he swears that he didn't. I don't really care who "gave" it to me, I just want to make sure they are as healthy as possible. Based off of some of their symptoms (classic or not), I think they should at least check.. if anything, just to prove me wrong. :/

But they're adults and can fend for themselves.

I have to give my Mom credit though. She did try. It's not her fault the doctor forgot the other tests.

:P

curiousgeorge Rookie
curiousgeorge
Posted

It sounds to me like you paid for a test you didn't get. Some curt phonecalls are likely in order.

Crystal Brown Rookie
Crystal Brown
Posted
  • Author
It sounds to me like you paid for a test you didn't get. Some curt phonecalls are likely in order.

Huh, okay. I don't know how much just one of the tests usually cost.

Does the $197.50 seem too much for the TSH?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mother of Jibril Enthusiast
Mother of Jibril
Posted
Huh, okay. I don't know how much just one of the tests usually cost.

Does the $197.50 seem too much for the TSH?

It's definitely too much... even without insurance, it should cost about $50 to check your TSH.

Crystal Brown Rookie
Crystal Brown
Posted
  • Author

Thank you for the information. :)

I will definitely look into this with my Mom. If there is a discrepancy with the amount she paid, then I would hope they would be willing to give her the right tests equal to the cost of what she has already paid for.

There's still hope yet!

Just to clarify, I don't want her or my Dad just to get tested for the fun of it. She has a lot of peripheral neuropathy issues, intermittent C (which she swears is just because she eats too much dairy), arthritis and now she has developed some sort of rash on her cheeks. I don't necessarily think the rash is DH, but I have noticed that it shows up more depending on what she is eating.

Dad, on the other hand, has (I'm just gonna list his, lol):

Acid reflux

D

C

Gas/bloating

Arthritis

Thrombocythemia - he takes medication for this

Prostate Cancer - surgery

Basil Cell Carcinoma - surgery

Hernia - surgery

Scoliosis - surgery

Hemorrhoids

Diverticulitis - dx back in the early 90's

Those are just the things I can remember off the top of my head. His sister also has gluten-intolerance and is a self-diagnosed Celiac.

Anyway, they both support me, but don't want to spend the big bucks to get tested. They have a PPO and it has a high deductible, hence all this hesitation to pursue further testing. This is great information about the test being cheaper than what my Mom paid, hopefully this will be an incentive to have her get the right tests - insurance permitting (and cooperating).

curiousgeorge Rookie
curiousgeorge
Posted

I agree, that is WAY too much for thryoid tests. I highly suspect you paid for what you didn't get and it was a lab screw up. Is there a chance that they celiac stuff just hasn't come in yet? They likley went to different labs. Pretty much anywhere can do a tsh but not celiac panel.

Crystal Brown Rookie
Crystal Brown
Posted
  • Author
I agree, that is WAY too much for thryoid tests. I highly suspect you paid for what you didn't get and it was a lab screw up. Is there a chance that they celiac stuff just hasn't come in yet? They likley went to different labs. Pretty much anywhere can do a tsh but not celiac panel.

Well, she had the tests done about 5 months ago.. So, I'm hoping they would have all come back. We put a call in to the doctor to find out if maybe she forgot to send all of the test results. At the time of the Celiac panel she also had her cholesterol checked and a couple other routine blood tests. She said that they filled 6 viles of blood. I remember when I did the panel, they took more like 12-16 viles. What is the typical number of viles for a full panel?

Thank you again, all this is really helping :)

Mother of Jibril Enthusiast
Mother of Jibril
Posted
I remember when I did the panel, they took more like 12-16 viles. What is the typical number of viles for a full panel?

Wow! When I had my celiac panel done, I also checked my TSH and ANA... I think we used maybe three vials :blink: Definitely not twelve!

curiousgeorge Rookie
curiousgeorge
Posted

I had a whack of stuff done when I had it. I stopped counting at 16 viles.

celiac panel, full thryoid panel, cbc, a bunch of vitamens, homoccystine, c-reactive protein and some other stuff that I forget at the moment.

What did they do for her thyroid?

Crystal Brown Rookie
Crystal Brown
Posted
  • Author
Wow! When I had my celiac panel done, I also checked my TSH and ANA... I think we used maybe three vials :blink: Definitely not twelve!

It is quite possible that I had everything under the sun tested.. So, maybe she actually had the right amount. I'll have to find the results for my panel.. now I'm curious :)

Crystal Brown Rookie
Crystal Brown
Posted
  • Author
I had a whack of stuff done when I had it. I stopped counting at 16 viles.

celiac panel, full thryoid panel, cbc, a bunch of vitamens, homoccystine, c-reactive protein and some other stuff that I forget at the moment.

What did they do for her thyroid?

The doctor mailed her a piece of paper that said:

"slightly low thyroid level, check in three months"

That was it. No other follow-up or further information was provided.

Yeah, I would say anything over 10 viles and you just sort of stop caring.. haha :P

curiousgeorge Rookie
curiousgeorge
Posted

Egads, she needs to follow up on the thryoid stuff. Its not something that should just be followed. I'm sure she feels HORRID.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      I worried at one point on my journey whether I had MS, having many of the symptoms myself. However, my symptoms improved dramatically with high dose thiamine hydrochloride, Benfotiamine, and Thiamine TTFD. Thiamine deficiency symptoms overlap with MS symptoms, including changes on brain MRIs. Thiamine deficiency affected my eyes (light sensitivity),...
    2. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    3. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    5. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,329
    • Most Online (within 30 mins)
      7,748
    Jane02
    Newest Member
    Jane02
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.