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Any Celiac(s) From Canada


Gerri

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ilindsay Newbie

Yes, I am from Ontario - Whitefish (near Sudbury). Moved here from Toronto about 8 years ago. where r the rest of u?


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  • Replies 133
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lorraineh Newbie

I'm in Vancouver and new to the gluten-free life, but I feel so much better off the Gluten.

  • 1 month later...
Jodster72 Rookie

Hello there... Niagara Falls, Ontario here!!!

Jody

  • 3 weeks later...
Toni25 Newbie

Hello fellow Canadians!

My name is Toni and I am from the Fraser Valley BC, 25 years old.

I am new to this website, and new to celiac also. Just love this site- so much helpful info, I really feel the sense of community on here.

Its nice to not feel alone in this battle. :)

  • 1 month later...
Dennis Erickson Newbie

Hi, I just joined the forum today. I was diagnosed in 2001, after years of suffering. The doctor I had refused to test me even though I have a sister that has been a celiac for 20+ years. I suffered through many barium xrays and other tests on a regular basis and was told I had irritable bowel syndrome. I fired that doctor and found one who had me tested via a trans glutenaise (spelling) test and popped a very high number. They then did the biopsy to confirm it. My liver had started into cirrhosis and I had a very low vitamin B12 count. I went on a gluten free diet and six months later I was getting back to a normal as can be life. My wife has done an immense amount of research and come up with alternatives to almost everything I used to eat. We bake all our own and I live very well. Dinning out is tricky at times but not impossible. On another note my father passed away at age 77 of liver cancer. He had constant problems with diarrhea and could not tolerate many foods. I think he was an un diagnosed celiac. How many have died due to not being tested?

love2travel Mentor

Hi, I just joined the forum today. I was diagnosed in 2001, after years of suffering. The doctor I had refused to test me even though I have a sister that has been a celiac for 20+ years. I suffered through many barium xrays and other tests on a regular basis and was told I had irritable bowel syndrome. I fired that doctor and found one who had me tested via a trans glutenaise (spelling) test and popped a very high number. They then did the biopsy to confirm it. My liver had started into cirrhosis and I had a very low vitamin B12 count. I went on a gluten free diet and six months later I was getting back to a normal as can be life. My wife has done an immense amount of research and come up with alternatives to almost everything I used to eat. We bake all our own and I live very well. Dinning out is tricky at times but not impossible. On another note my father passed away at age 77 of liver cancer. He had constant problems with diarrhea and could not tolerate many foods. I think he was an un diagnosed celiac. How many have died due to not being tested?

Hi Dennis. Thanks for sharing your story. I too wonder how many have died with celiac-related cancers and other illnesses because they were not tested. It would likely be startling.

I was diagnosed 1.5 years ago and do all my own baking - always have, always will. Dining out and international travel (airports, delays...) are frustrating and challenging at times. We must drive three hours to eat out safely. Thank goodness I adore cooking! :D

Welcome here! :)

  • 3 months later...
smalltown-t Newbie

Hello!  I'm from Stirling, Ontario.


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  • 3 weeks later...
gen1975 Newbie

i am from ottawa canada. I was just diagnosed this morning with celiac disease and am at a loss. This diet seems so complicated!

Life-Of-A-Gluten-Free-Wife Newbie

From Winnipeg, MB here! Very interesting to see others who are also from winnipeg!

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      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
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    • Ginger38
      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
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