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Just Diagnosed, Need A Nutritionist

celiacprincess

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celiacprincess Newbie
celiacprincess
Posted

I was just diagnosed with possible "mild" celiac disease, whatever that means!! :huh: The diagnostics were the IgA against tTG, with high "weak positive" and biopsy showing "Possible Mild Celiac Sprue". I am trying to find a nutritionist familiar with celiac in the Minneapolis/St. Paul area, and wondered if that is even necessary. Any suggestions would be appreciated.

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sbj Rookie
sbj
Posted

May I suggest that you not even bother with a nutritionist but go see a dietitian? They are two different things - anyone can call themselves a nutritionist so be careful.

This site:

Open Original Shared Link

looks helpful. There's even a dropdown box for specialty and Celiac disease is one of the choices . . .

celiacprincess Newbie
celiacprincess
Posted
  • Author
May I suggest that you not even bother with a nutritionist but go see a dietitian? They are two different things - anyone can call themselves a nutritionist so be careful.

This site:

Open Original Shared Link

looks helpful. There's even a dropdown box for specialty and Celiac disease is one of the choices . . .

Oh, thanks so much, This site you gave me gave more information than my own search!! Wish me luck!

sbj Rookie
sbj
Posted
Oh, thanks so much, This site you gave me gave more information than my own search!! Wish me luck!

Good luck!

Try to conduct a phone interview, if possible. Many people on this forum have not been happy with nutritionists - I found the dietitian to be helpful. You might find it helpful to bring your significant other or family members along so that they can better appreciate the gravity of the situation. I don't understand 'mild' celiac so that might be your first question . . .

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      I don't see how cornstarch could alter the test results. Where did you read that?
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    • Julie 911
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      By Julie 911 · Posted

      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
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      By trents · Posted

      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
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