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Enterolab


parkerrmmc

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parkerrmmc Apprentice

I have been reading from other posts alot of information on Enterolab and the Gluten Sensitivity Stool and Gene Panel test they sell. Is this the only way you can get these tests done? Will the doctors not order these tests so that insurance will pay for them?

Thanks,

Missy


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KaitiUSA Enthusiast

I know they are not widely accepted by the medical community yet (even though I think they are definately on the right track) so I doubt they would order them unless you find a doctor who is supportive of Enterolabs. I don't know about insurance paying because I haven't had one done. Good luck :D

Guest barbara3675

If I am not mistaken, there were a few that said that their insurance did pay for Enterolab, but not very many. They would be wise to, though, because the sooner that their patient nails down the fact that they need to eat gluten-free, the sooner they will be healthy and need to go to the doctor less. There was a thread as recent as yesterday dealing with Enterolab and the concensus is that Dr. Fine and his procendures are ahead of their time. The mainstream medical community will catch up with them eventually. It is beginning to be thought that testing by stool is much more sensitive than blood, which by the way is only 80% correct anyway. I would never have known that I carried the gene had I not had the full screening through Enterolab. It was worth every penny, which I paid myself.

Barbara

skbird Contributor

I'm curious - how long did it take for you to get your results? Any of you? I keep checking my email... I sent my kit in on the 8th of March and figure with the three weeks they said to wait to contact them, that would be the 30th of March. So I have a week left of waiting.

Just wondering, do they take a while (I read I think that Dr. Fine does all the testing????) or is it possible my spam filter has gotten my email?

Thanks -

Stephanie

bmorrow Rookie

Missy,

I had the complete panel from EnteroLab, and my insurance paid for everything except the gene testing. I did not have a doctor order the test. I have posted on here my experience with the other GI doctors that have accepted EnteroLab's test results. I feel very comfortable with my results from EnteroLab and would recommend Dr. Fine to anyone. My first GI told me that EnteroLab's test method were much more advanced then the blood test and the biopsy. My blood tests were negative and my biopsy showed patchy damage, but the pathologist reported that it was inconclusive.

I agree with Barbara, I would have paid for the tests myself, if my insurance would not have paid.

parkerrmmc Apprentice

Thanks to everyone for the information. I have an email in to Enterolab to see if they accept my insurance.

Missy

minivanmama0300 Newbie

Enterolab gives you the codes to submit to insurance after you pay. You have to order with a credit card first, so it would be a matter of getting it reimbursed. If you want I can give you those codes if you want to call your insurance and try to get it covered. My insurance doesn't cover it, but it count toward our out of pocket I guess, which is something. I also believe that it is a tax deduction if you itemize. Not sure tho. What I am saying is that it is well worth the cost.


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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
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    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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