Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab


parkerrmmc

Recommended Posts

parkerrmmc Apprentice

I have been reading from other posts alot of information on Enterolab and the Gluten Sensitivity Stool and Gene Panel test they sell. Is this the only way you can get these tests done? Will the doctors not order these tests so that insurance will pay for them?

Thanks,

Missy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

I know they are not widely accepted by the medical community yet (even though I think they are definately on the right track) so I doubt they would order them unless you find a doctor who is supportive of Enterolabs. I don't know about insurance paying because I haven't had one done. Good luck :D

Guest barbara3675

If I am not mistaken, there were a few that said that their insurance did pay for Enterolab, but not very many. They would be wise to, though, because the sooner that their patient nails down the fact that they need to eat gluten-free, the sooner they will be healthy and need to go to the doctor less. There was a thread as recent as yesterday dealing with Enterolab and the concensus is that Dr. Fine and his procendures are ahead of their time. The mainstream medical community will catch up with them eventually. It is beginning to be thought that testing by stool is much more sensitive than blood, which by the way is only 80% correct anyway. I would never have known that I carried the gene had I not had the full screening through Enterolab. It was worth every penny, which I paid myself.

Barbara

skbird Contributor

I'm curious - how long did it take for you to get your results? Any of you? I keep checking my email... I sent my kit in on the 8th of March and figure with the three weeks they said to wait to contact them, that would be the 30th of March. So I have a week left of waiting.

Just wondering, do they take a while (I read I think that Dr. Fine does all the testing????) or is it possible my spam filter has gotten my email?

Thanks -

Stephanie

bmorrow Rookie

Missy,

I had the complete panel from EnteroLab, and my insurance paid for everything except the gene testing. I did not have a doctor order the test. I have posted on here my experience with the other GI doctors that have accepted EnteroLab's test results. I feel very comfortable with my results from EnteroLab and would recommend Dr. Fine to anyone. My first GI told me that EnteroLab's test method were much more advanced then the blood test and the biopsy. My blood tests were negative and my biopsy showed patchy damage, but the pathologist reported that it was inconclusive.

I agree with Barbara, I would have paid for the tests myself, if my insurance would not have paid.

parkerrmmc Apprentice

Thanks to everyone for the information. I have an email in to Enterolab to see if they accept my insurance.

Missy

minivanmama0300 Newbie

Enterolab gives you the codes to submit to insurance after you pay. You have to order with a credit card first, so it would be a matter of getting it reimbursed. If you want I can give you those codes if you want to call your insurance and try to get it covered. My insurance doesn't cover it, but it count toward our out of pocket I guess, which is something. I also believe that it is a tax deduction if you itemize. Not sure tho. What I am saying is that it is well worth the cost.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748

    denise.milillo
    Newest Member
    denise.milillo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.