Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Exactly What Tests Do I Need?

Guest ajlauer

By Guest ajlauer
in Celiac Disease Pre-Diagnosis, Testing & Symptoms

Recommended Posts

Guest ajlauer
Guest ajlauer
Posted

I'm going to the doctor on Monday and want to get the tests done for celiac disease. *exactly* what do I ask for (in abbreviations and long names, if you know both)? I also want to get tested for food allergies. The nurse/receptionist (not exactly sure of her title) had no idea there was a blood test for allergies - so I doubt they know anything about celiac's. One of the disadvantages to living in a small town I suppose.

This has probably been asked and answered a dozen times here, but for the life of me, I just couldn't find it!! Thank You.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gf4life Enthusiast
gf4life
Posted

The food allergies test is called RAST, and they can check for many different foods. Usually they specify the top 8-10 allergen foods on the test order form.

The celiac tests you need are:

o Anti-Gliadin (AGA) IgA

o Anti-Gliadin (AGA) IgG

o Anti-Endomysial (EMA) IgA

o Anti-Tissue Transglutaminase (tTG)

o Total Serum IgA

Preferrably from a reliable lab like Prometheus. My insurance won't pay for them, so I had to do our blood tests through Quest Diagnostics. They are just not specialised enough to accurately run the celiac disease tests. Here is the website info from Prometheus.

Open Original Shared Link

God bless,

Mariann

KaitiUSA Enthusiast
KaitiUSA
Posted

Yep those are the tests you need done and I second Prometheus. They are an experienced lab when it comes to celiac. Also, they offer a gene test but my insurance didn't cover that part <_< but it was a good thing for me to get done

gf4life Enthusiast
gf4life
Posted

The way Prometheus works is that they run the bloodtests, and automatically run the gene test if the blood tests are negative. At least that is what their paperwork said when I filled it out for my kids. Then of course the insurance refused to pay, so the tests were actually run by Quest <_< for a second time! The reason the pedi GI ordered the Prometheus tests was they are the only lab he trusts to run celiac disease testing! He actually has worked closely with them in getting their celiac disease panel put together when he was in San Diego. Him and some of his collegues down there are the reason that they ALWAYS include the total serum IgA on their tests. Before they only included it if the doctor thought it was necessary. This pedi GI thinks a person being tested for celiac disease needs to have the total IgA count done EVERY TIME, not just when the doctor thinks it might be a good idea!

I think there is a spot on the Prometheus form where you can request to have the gene test run even if the blood is positive also.

God bless,

Mariann

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Unexpected gluten exposure risk from cultivated mushrooms

      By Scott Adams · Posted

      I agree with @trents, but thank you for bringing this up here!
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.