Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

'nother Enterolab Question


dfish

Recommended Posts

dfish Apprentice

First of all, I want to say thanks to everyone who responded to my question about the testing kits. Once again, you are all the experts, since everyone said they think I got the second test kit in error and lo and behold, when Enterolab got back to me, they said the exact same thing!

This may seem kind of silly because, well, common sense would say that anyone who tests negative would probably not be on this message board, but I'm wondering, has anyone ever tested negative through Enterolab? I'm just wondering because it seems like everyone has tested positive and it makes me kind of wonder if anyone ever tests negative? I'm waiting for my results but I am also really starting to think that Celiac is not what is wrong with me; My blood tests were inconclusive and I've been eating gluten for several weeks now in order to do a challenge with my doctor (that I will cancel as soon as I get the Enterolab results because I trust them more), and I don't feel bad at all. I've had no stomach problems, no diarrhea, no cramping, nothing out of the ordinary since beginning the gluten challenge four weeks ago. I have eliminated eggs from my diet and that has seemed to help more than eliminating gluten ever did; I also have noticed that about the time I began to get very sick last year, I was also trying the Atkins diet and eating eggs and chicken like a fiend. I don't eat either one of them any longer and feel better than I have in a long time. I have also been under a tremendous amount of stress this last year or so and that is getting dealt with too. What if I do test negative through Enterolab? Does that mean I absolutely do not have celiac disease?

Thanks much in advance for all of your posts! I almost don't want to test negative because I enjoy reading everyone's posts and how friendly and supportive everyone is here :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



gf4life Enthusiast

Yes, people do test negative with the Enterolab tests. They of course wouldn't be hanging around here ;) but there are some people here who have had relatives test negative on the Enterolab tests. I think a lot of people do test positive though because the gluten sensitivity spectrum covers a much larger range of people than just Celiacs, and most people ordering the tests are symptomatic or have a relative who tested positive, and thus their chances of having a problem with gluten are higher.

God bless,

Mariann

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,159
    • Most Online (within 30 mins)
      7,748

    Greymo
    Newest Member
    Greymo
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.