Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Until I Won't Need A Nap During The Day?


River*

Recommended Posts

River* Contributor

Hi, My doctor told me I have Celiac Disease

I have been gluten free for 2 weeks now.

I feel much better.

I would like to know how long it takes until I won't need a nap during the day anymore?

I would also like to know how long until the hypoglycemia goes away completely?

I look forward to reading any responses.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



curiousgeorge Rookie

It was a good month for me before I gave up my nap :) Now I nap MAYBE once a month if that.

Tallforagirl Rookie

Have you had a full blood count done to check your vitamin levels?

My B12 was in the normal range, but low in the range, so my doctor gave me a series of B12 injections which seemed to help enormously with the fatigue I'd been experiencing.

In all it took me four months to feel well enough to not want to nap during the day, and to be able to start exercising again.

Gfresh404 Enthusiast

Took me about 3 months. B12 complex helped a lot. Now I take one maybe once a week if I need it.. Exercising also gave me a lot of energy during the day and helped me sleep like a rock.

caek-is-a-lie Explorer

I take L-Tyrosine. That helps a lot, too.

pele Rookie

It may depend on how long you have been eating gluten and much damage has been done. Fatigue can result from malnutrition and also from thyroid or adrenal problems related to gluten. I have been gluten free for two years and still get very tired in the afternoon.

ianm Apprentice

It depends upon how sick you were. It took me two years before I stopped needing a three hour nap everyday. I was already half-past dead when I found out I had celiac. Take a good multi-vitamin and minerals. Exercise helps a lot. I hate doing it but I feel like crap if I don't.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



angieInCA Apprentice
I would also like to know how long until the hypoglycemia goes away completely?

Have you had a glucose sensitivity test to see if you truly are hypoglycemic. Hypoglycemia is a disorder that you will have to treat with proper diet as well and depending on the cause it will probably never go away.

River* Contributor
Have you had a glucose sensitivity test to see if you truly are hypoglycemic. Hypoglycemia is a disorder that you will have to treat with proper diet as well and depending on the cause it will probably never go away.

I was found to have been hypoglycemic on a test years ago at the time I had taken the test.

I have since then got a blood sugar monitor and I can become too low if I don't eat all the time.

My Naturopath doctor says it will go away for sure and is caused from Celiac disease.

I have read about others who had said they had hypoglycemia, then found out they were Celiac, stopped eating gluten and their hypoglycemia went away.

I mainly have problems with it in the morning but, again sometimes my numbers are within range but, I still feel terrible.

I can have the same numbers as in the morning, in the evening at times and feel perfect but not in the morning to afternoon.

Basically I have problems feeling normal from morning to afternoon then in the evening I start feeling normal finally with energy and the whole thing repeats itself again the next day, been happening since I was a child. Any ideas? I was thinking I should get my cortisol levels checked...?

angieInCA Apprentice

Wheather or not the hypoglocemia will go away will depend on what causes it for you. I do not respond to simple carbs well especialy if not balanced with protein. Mine has actually gotten worse since going gluten free. I am currently working with a dietitian and an endocrinologist to try to get my blood sugar stabilized. For some reason my pancreas misfires and releases insulin at the wrong times. It might be related to celiac disease and then it might not.

Ironically my cortisol levels were fine but of course my Vit D and B's were through the floor. About 2 weeks after starting supplements I started to realize I was actually feeling some energy in the afternoons.

I think you have to really experiment to find the golden combination of what your body needs and what works for you. I'm still working on mine :)

diannalynn0711 Rookie

I've been gluten-free for 5 years now and I will still get tired in the afternoon if I have had a long day or been stressed. I'll take a nap in those instances, but other than that I dont really. It took me a long while to feel better after I was diagnosed.

I also have hypoglycemia and have tested positive. I have to control that by eating 6 to 8 smalls meals a day and constantly checking my sugar and I also make sure to have some candy around just in case. As far as I know, the doctors said for me it just has to be controlled by your diet and constant monitoring. I dont believe that it will go away. They told me that I'd have to live with it and adjust. I dont know if that may vary or not. :unsure:

mm&j Apprentice

That's funny, I was just headed up for a nap before I read your post and it is only 9:45am! It does get better and everyone is different depending on many factors, especially how long you may have been suffering with the disease before being diagnosed and how much damage to your entire body has been done. Before I was diagnosed, I litterally slept round the clock, except for getting kids ready and off to school etc. I would get up to do one chore, then back to bed all through the day. I wasn't diagnosed until age 50. You didn't say how old you are, but I probably had Celiac for 20-30 years I expect. Hopefully your recovery won't be as long as mine. AS I've read in the posts, some people feel better in weeks, not months or years. The biggest key is the gluten. Be very careful not to get ANY and you will recover faster.

Welcome and good luck!

Susie (mm&j) :)

SBisglutenfree Rookie

I've only been gluten-free for a week today, but my sister has been gluten-free for a few months now. She also has/had hypoglycemia since she was young (she's now 49) and says she has never felt better. Since going gluten-free, she says it's like living in a new body. Lots of energy!

Are you eating protein with every meal? I know it was always a must with her. Good luck, I hope you feel as go as she does soon. Maybe it will take a few months... it's tough at the beginning - I know I want to see results right away. I've only noticed the bloating decreasing.

Sandi B)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Iam replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - trents replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over

    3. - bobadigilatis replied to Larzipan's topic in Related Issues & Disorders
      33

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - cristiana replied to Scatterbrain's topic in Sports and Fitness
      6

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,299
    • Most Online (within 30 mins)
      7,748

    Philbin
    Newest Member
    Philbin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Cristiana makes a good point and it's something I've pointed out at different times on the forum. Not all of our ailments as those with celiac disease are necessarily tied to it. Sometimes we need to look outside the celiac box and remember we are mortal humans just like those without celiac disease.
    • bobadigilatis
      Also suffer badly with gluten and TMJD, cutting out gluten has been a game changer, seems to be micro amounts, much less than 20ppm.  Anyone else have issues with other food stuffs? Soy (tofu) and/or milk maybe causing TMJD flare-ups, any suggestions or ideas? --- I'm beginning to think it maybe crops that are grown or cured with glyphosphate. Oats, wheat, barley, soy, lentils, peas, chickpeas, rice, and buckwheat, almonds, apples, cherries, apricots, grapes, avocados, spinach, and pistachios.   
    • cristiana
      Hi @Scatterbrain Thank you for your reply.   Some of these things could be weaknesses, also triggered by stress, which perhaps have come about as the result of long-term deficiencies which can take a long time to correct.   Some could be completely unrelated. If it is of help, I'll tell you some of the things that started in the first year or two, following my diagnosis - I pinned everything on coeliac disease, but it turns out I wasn't always right!  Dizziness, lightheaded - I was eventually diagnosed with cervical dizziness (worth googling, could be your issue too, also if you have neck pain?)  A few months after diagnosis I put my neck out slightly carrying my seven-year-old above my head, and never assigned any relevance to it as the pain at the time was severe but so short-lived that I'd forgotten the connection. Jaw pain - stress. Tinnitus - I think stress, but perhaps exacerbated by iron/vitamin deficiencies. Painful ribs and sacroiliac joints - no idea, bloating made the pain worse. It got really bad but then got better. Irregular heart rate - could be a coincidence but my sister (not a coeliac) and I both developed this temporarily after our second Astra Zeneca covid jabs.   Subsequent Pfizer jabs didn't affect us. Brain fog - a big thing for people with certain autoimmune issues but in my case I think possibly worse when my iron or B12 are low, but I have no proof of this. Insomnia - stress, menopause. So basically, it isn't always gluten.  It might be worth having your vitamins and mineral levels checked, and if you have deficiencies speak to your Dr about how better to address them?    
    • knitty kitty
      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.