Increased Antibody Levels After Gluten Free!

[Meegz717]

Hi All,

At the end of november of last year i was "unofficially" diagnosed with celiac's disease. My biopsy came back negative by my ttg levels were at 250 and i had D8 gene present and was 10x more likely then normal to have celiacs. A number of autoimmune diseases run in my fam included chron's, thyroid, lupus. My gastro dr. put me on the gluten free diet since then but wouldnt officially diagnose me until he retested my blood after 3 months on the diet. I just got my blood results back and my ttg levels were up to 300! other than a few accidental mishaps while adjusting to the gluten free lifestyle, i have not purposely ate any gluten at all. has anyone experienced their antibody levels increasing or know if it could be related to anything other than gluten/celiacs??

i feel way better than i did before the diet although i could definitely tell when i accidentally had something with gluten in it. im going to a nutritionist to go through my diet and make sure im not ingesting any hidden gluten at all but wanted to get some opinions!

thanks and have a great weekend!!

[mushroom]

Hi All,

At the end of november of last year i was "unofficially" diagnosed with celiac's disease. My biopsy came back negative by my ttg levels were at 250 and i had D8 gene present and was 10x more likely then normal to have celiacs. A number of autoimmune diseases run in my fam included chron's, thyroid, lupus. My gastro dr. put me on the gluten free diet since then but wouldnt officially diagnose me until he retested my blood after 3 months on the diet. I just got my blood results back and my ttg levels were up to 300! other than a few accidental mishaps while adjusting to the gluten free lifestyle, i have not purposely ate any gluten at all. has anyone experienced their antibody levels increasing or know if it could be related to anything other than gluten/celiacs??

i feel way better than i did before the diet although i could definitely tell when i accidentally had something with gluten in it. im going to a nutritionist to go through my diet and make sure im not ingesting any hidden gluten at all but wanted to get some opinions!

thanks and have a great weekend!!

That must be really annoying, to have them go up instead of down.

Some possibilities come to mind for gluten exposure (forgive me if you have already taken these steps to make yourself gluten free): lipsticks, lip gloss, cosmetics, toothpaste, other toiletries; gluten residual on cookware, wooden cutting boards and spoons, plastic containers, colander, toaster; gluten filler in prescription medications or in supplements; cross-contamination in spreads, jams, etc. (especially if you are not in a gluten-free household); pet food; also cross-contamination in restaurants if you have been eating out; processed food items that list things like "natural flavouring", starch, and other items whose source is not clear, and don't forget that soy sauce contains wheat.

I hope your nutrition appointment goes well and she might be able to idenify further things for you if you have found a knowledgeable one.

Good luck in tracking down the source.

[Gfresh404]

Perhaps your body has just become more sensitive to gluten? And when you accidentally ingested gluten it released all the antibodies it had stored up?

Those are just guesses, I really don't know what I am talking about. But I have noticed that after going gluten-free I have become more sensitive to gluten.