Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Ordered My Hla Test Last Night!

caek-is-a-lie

Recommended Posts

caek-is-a-lie Explorer
caek-is-a-lie
Posted

I got my tax return yesterday, so I did what I promised myself I'd do and went to the Enterolab site to order my HLA test. I'm just testing myself for starters and might test my son at a later date depending on the results of this one. I'm so excited! I can't wait to see the results. It can't be negative...there's too much that runs in our family. I'm really hoping it validates some of my suspicions.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Mother of Jibril Enthusiast
Mother of Jibril
Posted

Cool! I look forward to reading your results. DQ7.3 is associated with narcolepsy... so I'll be very curious to see if that turns up ;)

caek-is-a-lie Explorer
caek-is-a-lie
Posted
  • Author

The "Narcolepsy gene" that Stanford discovered is DQB1*0602. I have read that DQB1*0603 is associated with gluten intolerance, and it is only one nucleotide different. Have you heard that? Because they did a study where 28% of Narcoleptics they screened had the *0603 variant and there are quite a few of us that are symptom free on a gluten-free diet. My dream is to go to grad school and do a clinical study of gluten intolerance in Narcoleptics. I know it will help a lot of people...if I could just get accepted to a school...lol. :rolleyes: At this rate I'm sure someone will beat me to it, but I can still fantasize, can't I? :P

Do you have a link to somewhere where I can read more about DQ7.3? I'm still kind of an HLA noob. My specialty is more neuroscience and neuroendocrinology.

  • 3 weeks later...
caek-is-a-lie Explorer
caek-is-a-lie
Posted
  • Author

Here's the results!

HLA-DQB1 Molecular analysis, Allele 1 0202

HLA-DQB1 Molecular analysis, Allele 2 0301

Serologic equivalent: HLA-DQ 2,3 (Subtype 2,7)

I've done some research and 0301 is implicated in Narcolepsy, too, which I have. This totally validates everything I've hypothesized about my own health. Gluten triggers my Narcolepsy symptoms and now maybe I have the answer as to why. If I'm reading this right, I have 2 copies of 0301. Am I reading this right? They said in the analysis that I have 2 copies of one of these genes, and I can only guess it's the one next to "Allele 2".

Thanks for any input. :) I'm sooooo happy! I've been shunned from some Narcolepsy circles because I don't have the other, more prevalent gene, DQB1*0602. But it turns out I really do have a Narcolepsy gene...that doubles as a gluten intolerance gene. Yaaaay! Answers!! :D

Mother of Jibril Enthusiast
Mother of Jibril
Posted
I've done some research and 0301 is implicated in Narcolepsy, too, which I have. This totally validates everything I've hypothesized about my own health. Gluten triggers my Narcolepsy symptoms and now maybe I have the answer as to why. If I'm reading this right, I have 2 copies of 0301. Am I reading this right?

That's awesome!! :D I know how good it feels to have some answers :)

So... you have one copy of DQ2 (the major one connected with celiac disease) and one copy of DQ7. I have a mixed HLA-DQ genotype too (DQ7, DQ8) and I suspect that's why my allergies are so bad. It's easy to develop allergies when your intestines are damaged by celiac disease... but I was already predisoposed to allergies because of the DQ7 gene. Argh :angry:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    2. Jmartes71
      - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets...
    3. Wheatwacked
      - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values. Both are made with sugar, not high fructose corn syrup. I use them as a gluten free substitute...
    4. Theresa2407
      - Theresa2407 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

      I see it everyday on my feeds. They go out and buy gluten-free processed products and wonder why they can't heal their guts. I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field. Some days I would just like to scream. So much better when we had support groups and being able to teach...
    5. Scott Adams
      - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Have Tru Joy Sweets Choco Chews been discontinued??

      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,264
    • Most Online (within 30 mins)
      7,748
    butteguy
    Newest Member
    butteguy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      Doctors and Celiac.com

      By Jmartes71 · Posted

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
    • Theresa2407
      Doctors and Celiac.com

      By Theresa2407 · Posted

      I see it everyday on my feeds.  They go out and buy gluten-free processed products and wonder why they can't heal their guts.  I don't think they take it as a serious immune disease. They pick up things off the internet which is so far out in left field.  Some days I would just like to scream.  So much better when we had support groups and being able to teach them properly. I just had an EMA blood test because I haven't had one since my Doctor moved away.  Got test results today, doctor ordered a D3 vitamin test.  Now you know what  type of doctors we have.  Now I will have to pay for this test because she just tested my D3 end of December, and still have no idea about my EMA.    
    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      Some of the Cocomels are gluten and dairy-free: https://cocomels.com/collections/shop-page
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.