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Do You Lose Your Marbles?

raisin

By raisin
in Coping with Celiac Disease

Recommended Posts

Newtoitall Enthusiast
Newtoitall
Posted

I'm still working on a diagnosis (possible celiac, also possible fructose malabsorption), but I definitely know what you're talking about. The intense cravings for crappy simple carbs & gluten (chips, sweets, etc) can take me to new levels. I've been thinking quite a bit lately about the correlation between foods I crave & foods that hurt me. I definitely have found a strong link in my world between binging on sweets & being an a$$hole the next morning.

side note: this morning I took the first B vitamin I've had in a while & now (4 hours later) I have noticed a major improvement in mood & energy. Now, I'm sure an arguement can be made for placebo effect, but it's a start.

The last 2 weeks have been kinda rough for me. Everything was under control, but had noticed some flare ups here & there recently. I received a message from a board member just recently & got back on here. Once I logged in & started reading a little, it was kind of depressing as the realization settled into me that this is something I will probably never be "cured" of.

I have no idea if this will help but.. go read some IBS horror stories, before I was tested for celiac disease I was going insane thinking it was IBS... which is like terrible pain at random or when you eat.. anything lol now that I am pretty sure it isn't that, celiac disease seemed like a blessing xD (controllable is what I mean)

  • 1 month later...
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LivesIntheSun Apprentice
LivesIntheSun
Posted

Yessss! Me too! I go 'crazy'. I'm normally calm, easy-going and very polite. After eating gluten I'm just foul to be around- I can't cope with anyone in my space, I cry and have rages, I feel like I'm wading through treacle just to get on with my daily chores.

I tend to completely over-react to things that normally wouldn't affect me. Like someone pushes in front of me in a line and so I shout at them then burst into tears. I'm a teacher, and I've cried in class 3 times in the last year because of gluten, when a student doesn't listen to me or something that would normally be like water off a ducks back. I feel like my 'frequency' has been turned up, thats the best way I can explain it, everything irritates me, people, noises, I even hate the water on my skin when I bathe.

If I'm 'not right' the first thing my man says is 'what have you eaten?'... haha.

I'm very interested in the esoteric angle to this discussion. Does anyone have any articles about this? It is also something that I have experienced (seeing ghosts), especially when very tired.

  • 2 weeks later...
mysteria2000 Newbie
mysteria2000
Posted

YESS lol. I pretty much am compulsive in everything i do and say things without thinking. I get very cranky and irritated. I really do hate it!

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      Feel like I’m starting over

      By Scatterbrain · Posted

      Thanks to those who have replied.  To Cristina, my symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell. To Trents, We didn’t do any of the construction but did visit the job site quite often.  While getting the old house ready we stirred up a lot of dust and I’m sure mold but haven’t been back there for over a month.
    • Kirita
      Recovery from gluten challenge

      By Kirita · Posted

      Thank you so much for your response! I have a follow-up appointment with her pediatrician next week, and also an appointment with her pediatric GI Dr. Your message gives me some ideas for questions to ask the doctors. My daughter went strictly gluten-free in January following her first endoscopy so I’m guessing her diet is pretty solid. She is compliant but also reliant on others to make her food (at school and home) but she didn’t have this problem prior to the gluten challenge when she went strictly gluten-free. It really makes sense to me that the gluten challenge inflammation hasn’t healed and I will be asking her doctors about nutritional issues. I ask for anecdotal stories because the research surrounding the gluten challenge seems to be inconsistent and inconclusive (at least what I’ve been able to find!). Thank you so much for your response!
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      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that a subsequent exposure hit her so hard. The persistent fatigue is a major red flag that her body is still struggling, potentially indicating that the initial damage hasn't fully healed or that her system is now in a heightened state of reactivity. Rather than seeking anecdotal timelines from others, her experience underscores the critical need for close follow-up with her gastroenterologist to rule out other nutrient deficiencies commonly caused by celiac flare-ups, like iron or B12, and to consult with a dietitian to scrutinize her diet for any hidden sources of cross-contamination that could be perpetuating her symptoms. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
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      Brain fog

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    • trents
      Feel like I’m starting over

      By trents · Posted

      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
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