Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Lose Your Marbles?

raisin

By raisin
in Coping with Celiac Disease

Recommended Posts

Newtoitall Enthusiast
Newtoitall
Posted

I'm still working on a diagnosis (possible celiac, also possible fructose malabsorption), but I definitely know what you're talking about. The intense cravings for crappy simple carbs & gluten (chips, sweets, etc) can take me to new levels. I've been thinking quite a bit lately about the correlation between foods I crave & foods that hurt me. I definitely have found a strong link in my world between binging on sweets & being an a$$hole the next morning.

side note: this morning I took the first B vitamin I've had in a while & now (4 hours later) I have noticed a major improvement in mood & energy. Now, I'm sure an arguement can be made for placebo effect, but it's a start.

The last 2 weeks have been kinda rough for me. Everything was under control, but had noticed some flare ups here & there recently. I received a message from a board member just recently & got back on here. Once I logged in & started reading a little, it was kind of depressing as the realization settled into me that this is something I will probably never be "cured" of.

I have no idea if this will help but.. go read some IBS horror stories, before I was tested for celiac disease I was going insane thinking it was IBS... which is like terrible pain at random or when you eat.. anything lol now that I am pretty sure it isn't that, celiac disease seemed like a blessing xD (controllable is what I mean)

  • 1 month later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


LivesIntheSun Apprentice
LivesIntheSun
Posted

Yessss! Me too! I go 'crazy'. I'm normally calm, easy-going and very polite. After eating gluten I'm just foul to be around- I can't cope with anyone in my space, I cry and have rages, I feel like I'm wading through treacle just to get on with my daily chores.

I tend to completely over-react to things that normally wouldn't affect me. Like someone pushes in front of me in a line and so I shout at them then burst into tears. I'm a teacher, and I've cried in class 3 times in the last year because of gluten, when a student doesn't listen to me or something that would normally be like water off a ducks back. I feel like my 'frequency' has been turned up, thats the best way I can explain it, everything irritates me, people, noises, I even hate the water on my skin when I bathe.

If I'm 'not right' the first thing my man says is 'what have you eaten?'... haha.

I'm very interested in the esoteric angle to this discussion. Does anyone have any articles about this? It is also something that I have experienced (seeing ghosts), especially when very tired.

  • 2 weeks later...
mysteria2000 Newbie
mysteria2000
Posted

YESS lol. I pretty much am compulsive in everything i do and say things without thinking. I get very cranky and irritated. I really do hate it!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,600
    • Most Online (within 30 mins)
      7,748
    rita jean
    Newest Member
    rita jean
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Potential celiac need advice

      By Wheatwacked · Posted

      Yes.  Now, if you hit your finger with a hammer once, wouldn't you do your best not to do it again?  You have identified a direct connection between gluten and pain.  Gluten is your hammer.  Now you have to decide if you need a medical diagnosis.  Some countries have aid benefits tgat you can get if you have the diagnosis, but you must continue eating a gluten-normal diet while pursuing the diagnosis. Otherwise the only reason to continue eating gluten is social. There are over 200 symptoms that could be a result of celiac disease.. Celiac Disease and Non Celiac Gluten Sensitivity  both cause multiple vitamin and mineral deficiency.  Dealing with that should help your recovery, even while eating gluten.  Phosphatidyl Choline supplements can help your gut if digesting fats is a problem,  Consider that any medications you take could be causing some of the symptoms, aside from gluten.        
    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.