Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trying To Figure Out Intolerance Vs. Sensitivity


nw0528

Recommended Posts

nw0528 Apprentice

I understand there is a difference between having Celiac Disease and just having a sensitivity to gluten. I understand with Celiac damage is actually being done to the villi in the small intestine..

I just had my gastroendoscopy and my GI said everything looked "FINE." I asked him if I had Celiac would he have seen it (damaged villi) and he said, no, not necessarily because it can be microscopic. (He took biopsies which I am awaiting the results of).)

When my primary dr. first mentioned it sounded like I had Celiac Sprue, I went gluten free for one week. During that time I had tremendous improvement in my symptoms, but went back on gluten in prep. for the endoscopy. During the time I was gluten free, when I made errors (our soy sauce has wheat, for example), I had problems soon after those meals. Now, I have been having gluten free breakfasts and lunches (I'm a teacher and can't be racing to the bathroom all the time!), and then consuming gluten for dinner and evening snacks (pasta, pizza, etc.) and I have problems in the evenings.

So, what I am curious about is are the symptoms different for gluten intolerance (celiac,) vs. gluten sensitivity? For example, oily stools, very frequent bowel movements, gas, etc.

Thanks for your help!

Nicole


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Hi Nicole,

You might be interested in this:

Open Original Shared Link

dizzygrinch Enthusiast

Hello Nicole. Just thought I would say a little something here. I would def. recommend going gluten free. I have suffered most of my adult life, and have been gluten free now since October, and I have to say, I feel 70-80-% better! my blood tests came back neg, and I just had my colonoscopy and endoscopy last week, but I have a feeling that will be neg for celiac too, I have been gluten free for so long, but anyway, I am showing improvements all around. In fact, my rhumatoid arthritis panel came back neg, but just a year and a half ago, it was positive. My doctor explained that, as he has seen himself, some of these symptoms actually can go away, once you remove gluten from your diet. Sometimes it may take some time though. I guess what Im saying is, if your ready to give the diet a try, I def would! some doctors want you to be consuming gluten for their tests, but my stomach issues were so severe, that I couldnt see my self living like that, just for postive tests results. However, I do recommend the colonoscopies and tests to rule out other diseases, but I believe once you go gluten free, and if you feel better, why not? your health and life is so much more important than eating foods, that you know get you sick. I hope you get your answers, and start to feel better. God Bless and good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - Scott Adams replied to Matthias's topic in Gluten-Free Foods, Products, Shopping & Medications
      4

      Unexpected gluten exposure risk from cultivated mushrooms

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
    • Matthias
      Thanks a lot for your response! Can you maybe specify which kind of cheeses I should be cautious about? Camembert/Brie and blue cheeses (the molds of which are nowadays mostly grown on gluten-free media, though, so I've read, right?) or other ones as well? Also, I was under the impression that yeast is generally gluten-free if not declared otherwise. Is that false?
    • Scott Adams
      I agree with @trents, but thank you for bringing this up here!
    • Jane02
      Hi @trents, yes I've had my levels checked in Dec 2025 which revealed vit D deficiency. I considered eggs although they only contain about 45 IU vitamin D/egg. I need 2000 IU vitamin D for maintenance as per my doctor. Although now, I likely need way more than that to treat the deficiency. My doctor has yet to advise me on dosing for deficiency. I've also considered cod liver oil, although again, if it's processed in a facility that has gluten, especially on flour form, I worried to test it, even if they have protocols in place to mitigate cross-contamination with gluten.
    • trents
      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.