Crohns Patient New To Celiac

[redspot321]

Hello

I was diagnosed with Crohns in 2004, Have had more bad days then good days since diagnosis. 30 yo male 63cm bowel resection and have failed most treatments.

In my research I have found that many people with Crohns are sensitive to gluten, casin, and lactose. I am trying to eliminate these things from my diet and I AM feeling better!!

I was blood tested for Celiac and the test results were negitive. I was allergy tested for 60 common foods by blood and all was negitive. After years on dead ends I decided to tyr this diet eventhough all of my test results were negitive.

Has anyone else run into this kind of thing?

Also Ive been living off of Almond milk, rice checks, rice cakes, fruit, veggies chicken, fish, and yougart.

I have an occasional potato chip and plantain chip. Are all of these things Okay?

[rinne]

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Also Ive been living off of Almond milk, rice checks, rice cakes, fruit, veggies chicken, fish, and yougart.

I have an occasional potato chip and plantain chip. Are all of these things Okay?

Hi.

If you are interested in a diet for Crohns I suggest you check out CROHNSBOY.com.

I am glad you are feeling better, the items you mention fit a gluten free diet, assuming there are no cross contamination factors.

I suspect I may have Crohns in addition to the Celiac but I have lost all interest in doctors, I followed the strict gluten free diet for two and a half years without healing and am now following the SCD (Specific Carbohydrate Diet) and seeing improvement.

[quietmorning01]

My father has Crohns disease, and when I told him that I had a positive biopsy for Celiac, he said, "yeah, I.m not 'supposed' to eat wheat, either." **chuckles** He didn't say anything more, so I have no idea whether he is also Celiac or what that actually meant. . .knowing my dad, I SERIOUSLY doubt he's changed his diet on iota! Getting health / illness information out of him is like pulling teeth, though - so I doubt I'll find out anything more.

Have you had a biopsy completed for Celiac?

[skymgirl]

Hi there -

I have both Crohn's and Celiac - diagnosed with both in a span of 2 weeks. I always had symptoms of Celiac so I wasn't too surprised when my blood work came back positive, my blood work showed positive for IBD as well. (My GI could feel the inflammation in my terminal ileum during my exam.) I was diagnosed with Crohn's after a CT scan, I'll be having my first colonoscopy the day after Memorial Day. (Yay!) I'm on Asacol right now for the Crohn's, and I'm on the gluten-free diet, of course. I'm also allergic to peanuts, and have shown sensitivity to dairy.

I'm still having pain and problems with C, but my doctor told me to be patient and to give the diet and Asacol time to work. If I'm still not feeling better she said we can adjust the medication. I'm lucky that my case of Crohn's is considered mild.

Has your doctor recommended a low fiber diet? If so you might want to check out how much fruit/veggies you're eating to make sure you're not overdoing the fiber. I know some Crohn's patients also have trouble with raw fruits/veggies; I've been ok on that front.

It can be rough to have both of these things going on - I'm still pretty new to it so I'm learning how to deal with it. Hope you're feeling better soon!

[GFinDC]

....

In my research I have found that many people with Crohns are sensitive to gluten, casin, and lactose. I am trying to eliminate these things from my diet and I AM feeling better!!

...

Also Ive been living off of Almond milk, rice checks, rice cakes, fruit, veggies chicken, fish, and yougart.

I have an occasional potato chip and plantain chip. Are all of these things Okay?

...

Hi Redspot321

I have celiac and I cut out dairy due to lactose intolerance and casein. Lactose is a milk sugar an casein is a milk protein. Either one can cause problems, or both. If you are only lactose intolerant you might do ok on some brands of yogurt. But I don't think you can find any yogurt that doesn't have casein, so if casein is a problem it's goodbye yogurt! You have to check your yogurt brand for gluten also. Some of them use fruit fillings that contain gluten. If you search for yogurt threads on this site you will probably find a number of threads on it with safe brand suggestions. I don't do yogurt myself so can't offer a brand that's good.

I make most of my food at home, rather than buying pre-made things like canned soups or cereals etc. That way I avoid hidden gluten from cross contamination (usually) and also lots of preservatives. I also can avoid soy that way and yeast. All things I think are bad for my body, although others may be ok with them.

Watch out for the milk substitutes as some of them were made with barley extracts (Rice Dream). I don't know if that's still the case though. Some rice cakes are ok some are not. Search on the brand name here to find out.

Sounds like you are getting a positive effect from cutting back on the gluten. You might want to read some of the threads on vitamin's and supplements also. Damaged intestines don't absorb them all that well.

I hope you keep with the gluten-free diet for a few months anyway and give it a real chance to work. It can take several months to learn how to eat right and avoid the stuff. Anyway, welcome to the gluten-free world!