Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Classic Symptoms Of Celiac?


Peta

Recommended Posts

Peta Explorer

Hi to all.

I just want to run a few things by you all and see what you think.

My 11 year old son has suffered GERD since he was born...he has tried many things and was referred to a specialist 4-5 years ago who did a biopsy for celiac whilst testing for GERD. The test was clear.

Fast forward 4 years and his GERD remains... plus he has a new problem of a nail disorder in all 20 of his nails (flaky, spooned etc) so after being referred to another specialist this specialist is being very thorough running full blood tests including full iron levels, full celiac panel, as well as a ph level test and finally a biopsy.

He is the CELIAC SPECIALIST of the very large hospital so I feel he is knowledgeable.

My sons symptoms are:

MAIN TROUBLE: GERD (daily)

Bloated stomach

Trouble sleeping

Pains in his knees

and toe/fingernail disorder with spooning of some nails(possible iron deficiency?)

He is sometimes constipated

Sometimes has diarrhea

Has been known to have stools with white spots?

Sometimes sore eyes

Plus my sister, and my nephew have celiac, and my other niece has diabetes/celiac so it's in the family.

He is NOT underweight...maybe a little overweight. He is NOT a sickly child and the symptoms do not seem to interfere with his day to day life... but I'm looking at his future!

What do you think of any of those symptoms?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rumbles Newbie

Peta,

Please ask the doctors to test him for hypochlorhydria (low stomach acid);

it has the same symptoms as GERD (including acid reflux), and can cause

at least seven of the eight signs that you listed (I wasn't underweight and

had those same seven symptoms growning up, plus a few others).

rumbles.

Peta Explorer

Rumbles,

Thankyou for taking the time to answer my post.

I feel the more informed I am when we approach all of these tests the more I will understand about the results. I will certainly make note of your advice as I have heard of that before.

Add to my list... dental problems (teeth growing above teeth...and bits breaking off!?)

I feel satisifed that the specialists is performing enough test and procedures to get to the bottom of this.... hopefully.

Thanks again,

Peta

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,590
    • Most Online (within 30 mins)
      7,748

    uhlissuh
    Newest Member
    uhlissuh
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.