Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Suffolk Celiacs


joelcontrol

Recommended Posts

joelcontrol Apprentice

::::::::

_____________________________________________________

We proudly present our

2009 FUNDRAISER &

3rd GLUTEN FREE VENDOR FAIR

The largest gluten-free consumer event in North America!!!

Over 50 gluten-free vendors selling their products!

(most vendors will have samples and some will accept credit cards)

________Date: ____Sunday, April 26, 2009

________Time: ___ 11:00 am


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jamie Contributor

I'll be there! Can't wait!

  • 4 weeks later...
joel Newbie

Sorry this is so late. The address for the Gluten Free Fair and Fundraiser

is 370 Vanderbilt Motor Parkway in Hauppauge.

By car from the West take the LIE to exit 55 (Motor Parkway); at the light

take left onto Motor Parkway West Bound. The IBEW Hall (at 370) will be on

your right about

joel Newbie

GOOD EXPERIENCE. I HELPED UNLOAD AND LOAD FOR THE MERCHANTS. THE PLACE WAS A LITTLE TO SMALL FOR THE GROUP. AS THE EVENT WENT ON IT WAS LESS CROWDED.IF PEOPLE CAME LATER IT WAS A LOT LESS CROWDE. SO IF YOU HAVE IDEAS WHERE TO HOLD IT FOR NEXT TIME. SUGGESTIONS ARE ALWAYS WELCOME. THE PLACE WOULD NEED A LOT OF ELECTRIC OUTLETS. REASONABLY PRICED. WE HAD PLEANTY OF VOLUNTEERS ON HAND. THEY EVEN PUT SIGNS ON THE HIGHWAY. ONE MORE SIGN WAS NEEDED. NEXT TIME DIRECTIONS WILL BE POSTED. IT WAS TOTALLY SOLD OUT TO MERCHANTS. ONE MERCHANT NEVER SHOWED. sOME MERCHANTS MADE NICE DONATIONS. nEXT TIME THERE WILL BE A JOURNAL. A LOT OF WORK IS DONE IN PLANNING BY VOLUNTEERS. PS DONT FORGET THE MEETUP HAD OVER 2000 PEOPLE. THE WALK IN QUEENS. THE NEXT BIG EVENT. I WAS SORRY I DID NOT RUN INTO THE OTHER MEETUP PEOPLE. IT WOULD HAVE NICE IF THE MEETUP GOUP HAD A PERSON TO HAND OUT ABOUT THIS BOARD AND THE OTHER CELIAC BOARDS. I AM SURE MORE PEOPLE WOULD JOIN IF WE HAD EXPOSURE. .

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,201
    • Most Online (within 30 mins)
      7,748

    Judy Wysocki
    Newest Member
    Judy Wysocki
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
    • trents
      @JettaGirl, "Coeliac" is the British spelling of "celiac". Same disease. 
    • JettaGirl
      This may sound ridiculous but is this supposed to say Celiacs? I looked up Coeliacs because you never know, there’s a lot of diseases related to a disease that they come up with similar names for. It’s probably meant to say Celiacs but I just wanted to confirm.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.