Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No E Mass / So Nh - Support Groups ?

lpjourney

Recommended Posts

lpjourney Rookie
lpjourney
Posted

I'm in Chelmsford - I'm wondering if there are any support groups in this area?

Just officially diagnosed with Celiac, have wondered if I might be for a while - no real major symptons - just accaisonal ones, my mother has been dealing with it for about 17 years. I also was started on Type 2 Diabetes oral medication to help keep the blood sugar down and not progress to higher levels. My research has only shown links to Type 1. I requested that my PC doctor run the antibody tests to rule out Celiac - which lead me to be further tested by endoscopy biopsy. So this is my new journey for life.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


munkee41182 Explorer
munkee41182
Posted

Hey neighbor!!!! I'm actually in Lowell. As far as I know there really aren't any support groups in this area...but there are some in Newton I believe. I have to go digging through old emails to find it though :-)

lpjourney Rookie
lpjourney
Posted
  • Author

Hi Jami - I'm Liisa - I know there are more people in the area that are dealing with Celiac - maybe it's time to start one around here. But I wouldn't know the first thing about how to go about doing so.

I'd like to get an idea of those that might be interested in participating.

If anyone has any ideas, suggestions, where to get material to share, etc.....

thanks in advance

Laurossi Newbie
Laurossi
Posted

Hi

I am in Bedford. Diagnosed with Celiac 4 years ago by Dr Catherine Cheney of Beth Israel. I am interested in starting a local group.

Lets all put our heads together,

Laura

  • 9 years later...
John B. Newbie
John B.
Posted

hello everyone I am john and I was just diagnosed with celiac. Is there any local support groups in or around the Billerica area I can join and find out more about it.

GFinDC Veteran
GFinDC
Posted
7 hours ago, John B. said:

hello everyone I am john and I was just diagnosed with celiac. Is there any local support groups in or around the Billerica area I can join and find out more about it.

Welcome to the forum John! :)

Try this search:

Open Original Shared Link

Also, we have a "newbie 101" thread for getting started in the Coping With forum section.  This forum is a great place to get information on what to eat and other things that can help.  Think whole foods rather than processed foods.  Foods you cook from scratch yourself are best.  That way you know what's in the food.  Dairy can cause problems for the first several months until some healing happens.  There are lots of gluten-free foods and restaurants now.  But it's best to stick with meats, veggies, nuts and fruits for awhile.  No eating out for 6 months or so.  For a bread sub Mission brand corn tortillas are good and Aldi makes some good gluten-free wraps.  Some people like rice cakes also.  Gluten-free breads are available but should be avoided until you have got some months under your belt.

Cross-contamination can happen when somebody uses a knife or spoon to get peanut butter or some condiment out and then you use the same jar of peanut butter.  Little crumbs do matter to the immune system and it will react, sometimes for months.  So if you are sharing such items with others who aren't gluten-free you need to stop.  Wooden spoons and dishes are too difficult to clean adequately.  Metal is usually fine though.

It's all a steep learning curve at first but it gets easier in time.  We can help you over the rough spots.  We've hit a few of them ourselves.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,598
    • Most Online (within 30 mins)
      7,748
    April Williams
    Newest Member
    April Williams
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Alibu
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By Alibu · Posted

      I was tested back in 2017 and my TTG-IGA was mildly elevated (an 11 with reference range <4) but my EMA was negative and biopsy was negative. Fast forward to 2 weeks ago where I was like y'know what, I still have so many symptoms and I'm always so sick, I should repeat this, thinking it was not going to be positive.  I also found out through 23 and me that I do have the HLA-DQ2.5 gene so I thought it would be good to repeat given my ongoing symptoms. Well my blood work came back with a ttg-iga level of 152.6 with a reference range of <15 and my EMA was positive and EMA titer was 1:10 with reference range of <1:5. I guess I'm nervous that I'm going to do the biopsy and it's going to be negative again, especially since I also had an endoscopy in 2020, not to look for celiac but just as a regular 5 year thing I do because of all my GI issues, and they didn't see anything then either. I have no idea how long the EMA has been positive but I'm wondering if it's very recent, if the biopsy will show damage and if so, if they'll say well the biopsy is the gold standard so it's not celiac? I of course am doing all the things to convince myself that it isn't real. Do a lot of people go through this? I think because back in 2017 my ttg-iga was elevated but not a huge amount and my EMA was negative and my biopsy was negative, I keep thinking this time it's going to be different. But this time my ttg-iga is 152.6 with reference range <15, and my EMA was positive. BUT, my titer is only 1:10 and I keep reading how most people here had a ttg-iga in the hundreds or thousands, and the EMA titer was much higher. So now I am convinced that it was a false positive and when they do the biopsy it'll be negative.
    • trents
      Found coffee or coffee pods that contain gluten

      By trents · Posted

      Welcome to the forum, @linnylou73! Are you claiming this based on a reaction or based upon actual testing?
    • linnylou73
      Found coffee or coffee pods that contain gluten

      By linnylou73 · Posted

      Sams club membermark columbian coffee is either cross contaminated or the pods contain gluten
    • KimMS
      Helping child go strict gluten-free and concerns about growth/height

      By KimMS · Posted

      Thank you! Very helpful.
    • Scott Adams
      Helping child go strict gluten-free and concerns about growth/height

      By Scott Adams · Posted

      This varies a lot from person to person. I include foods that are not certified gluten-free but are labelled "gluten-free", while super sensitive people only use certified gluten-free. Both types of products have been found to contain gluten, so there are no guarantees either way: It you are in the super sensitive group, eating a whole foods based diet where you prepare everything is the safest bet, but it's also difficult. Eating out is the the most risky, even if a restaurant has a gluten-free menu. I also include items that are naturally gluten-free, for example refried beans, tuna, pasta sauces, salsas, etc., which have a low overall risk of contamination.
×
×
  • Create New...